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Hello to anyone attempting this message, apologies in advance - it's bound to be a ramble....... I've been lurking a while - reading all the other posts and watching all the wonderful video's trying to figure out my place in this. The picture dear reader is decidedly blurred, unlike my MRI which wa...

To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...

To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...

Hi does anyone find a change in temperature annoys them in anyway. The temperature has got warmer and I am sweating buckets more tired than usual

Hello all! I’m seeking out some good vacation spots for someone with heat intolerance and mobility issues (I use a wheel chair for longer distances). Have you gone anywhere (in the world) that you really enjoyed? I’d love to hear about it! 😃

Hi all! I’m giving myself things to look forward to in this new year. I would love to go to Hawaii. Any tips on dealing with heat intolerance? I live in the northern US so it’s pretty mild or cold most of the year. It does get hot in the summer, but I would love any and all tips so I can actually l...

Hi all! I’m giving myself things to look forward to in this new year. I would love to go to Hawaii. Any tips on dealing with heat intolerance? I live in the northern US so it’s pretty mild or cold most of the year. It does get hot in the summer, but I would love any and all tips so I can actually l...

I have been to multiple doctors over the past couple years and nothing. Things are only getting worse. At first it was pain in my legs. Now tingling and numbing in arms and legs, headaches, eye pain, dizzy, bladder control, brain fog, fatigued beyond belief, heat intolerance,speech issues, and weak...

Hey, I'm new here and just wanted to vent and get some advice. My journey started May 1st 2016 after a very long hot day out in the sun at my eldests first footie tournament. The next day my hands and feet were tingling and everything was spinning so I put it down to too much sun and prescribed my...

Hi, although I was initially given a probable MS diagnosis in 2012, I did not develop any symptoms till 2019 and have primarily dealing with fatigue, heat intolerance and constant muscle tightness in most of my body. Just wondering what others find works best. I take baclofen for the worst days and ...