Hello to anyone attempting this message, apologies in advance - it's bound to be a ramble....... I've been lurking a while - reading all the other posts and watching all the wonderful video's trying to figure out my place in this. The picture dear reader is decidedly blurred, unlike my MRI which was clear. I already have a diagnosis of Hashimoto Thyroidis, Long covid M.E, Histamine Intolerance, Anaphylactic, ADHD.... A lot of the symptoms of autoimmunity seem to blend and it's so hard to untangle. So the difference is possibly that my symptoms are progressively getting worse rather than stabilising despite meds. I thought I had Lyme, I've had lots of weird bites /stings and a bullseye but my elisa test was negative. (I could pay for a western blot for a definitive answer..) the only other possibility looks like M.S. the neurologist agreed but he was seeing me under a referral from my GP who thought my vertigo headaches and brain zaps were epilepsy. So one month ago I had an eeg and mri (without contrast, brain only) in which I had a terrible allergic reaction. I felt like my face was burning and had to use the panic button and run off to wash my face. I can only think that was an allergic to reaction to disinfectant if they had just wiped down the machine, has anyone else had this happen???? Kind of niche I guess. So my symptoms all get worse in heat, during the heatwave, I had to cut trips short as I literally felt like I had forgotten how to see and walk. I went to the optician and they agreed my prescription is getting worse but no inflammation.. I have no smoking gun. I feel like I have to really fall apart even more than I am before I'm taken seriously. I think I'm getting the hug too - deep pressure on the right side of my chest, the eyes is new to me everything else been happening off and on for a few years. So if I post my epic list of symptoms, can you feel free to give your opinion? I know you cant diagnose but has anyone been in the same situation with a ton of symptoms but a clear mri? Because my GP said the next trip is to the psychiatrist if the neurologists finds nothing (screams into the void). The neurologist has arranged a telephone appointment in July. Here's the list... * Excessive dribbley wet droopy feeling around mouth * Vestibular migraine * Wet feeling down right side of face * Blurry vision (especially in the sun or when drinking tea) * Pulsating feeling in fingers * Stinging sensation randomly over the body mainly feet legs * Pull in the fingers on left hand when I need a wee * BRAIN ZAP followed by disassociation, tinnitus, fatigue, nausea (so tired slept and couldn’t move position for two nights, vivid dreams) * Buzzing feeling in right ovary * Whites look yellow when I know they are white * Stabby pain the right eye * Tingling, buzzing in the hands (right by thumb) feet, back (along middle of spine) leg (back of right calf) * Sinus headaches or migraines * Difficulty with memory or doing complicated tasks, no patience or confidence * Altered smell and taste, food tastes off, tea tastes bad, smelling urine or vomit * My body smells stale when symptoms are flaring * Burning tingling buzzing feeling throughout body * Confusion or cognitive changes, Poor word recall (forgetting / confusing known names) * Fatigue from simple thins like washing, cooking, talking * Loss of balance, loss of confidence in feet /shoes especially on hot days * Muscle weakness especially arms, elbows (lymph?) * Numbness from emotions and fatigue from others emotions * Eyes feel like they are going left and right with grey spots like vertigo when closed in the night * Restless leg, thought there was a mouse in the bed running up my leg but nothing there. Vibration feeling moving up thigh. (Iron low) * Bladder urgency/ leaking, constipation, diarrhoea * Sounds and lights disturbing and painful, make me feel sick * Worse in heat, eyes blur cant see where I’m going, walking feels odd * Can’t see through glass in cabinets, one eye more blurry than the other, prescription worsening constantly * Chest pains and rib pain, especially right side - pressure * Breathless with palpitations when doing nothing * Voice goes croaky/horse * Heat intolerance, can’t read because of nausea and blurring * Can’t bare movement close to me, nausea, vertigo, dizziness * Very strong vertigo on hills or looking at a picture of hills. * Balance feels impaired * Ankle painful on waking then standing/ feels locked * Neck pain, can’t turn head some times * Right ankle locked in the morning * Hands feel cramped when holding ipad * Post exercise malaise * Intrusive thoughts that aren’t logical * Sudden cold sensation in chest right side * Exploding head syndrome: a loud noise or explosive crashing sound in your head waking me up in between 3-5am. Flash of light or have a sudden muscle jerk. Coincided with low blood sugar events. * Can’t tell which direction noises are coming from * Car lights are blinding me, make me lose my sense of direction * I regularly feel like I literally don’t know where I’m going or what I’m doing * Dropping things * Over pouring drinks beyond capacity * Need a lie/sit down after a hot bath * Can’t talk or walk when stressed/flaring * Slow decision making when driving * Chemical sensitivity * Food intolerance * Anxiety * Brain fog * Fatigue * Can’t read anymore it hurts my brain and my eyes * Crawling scalp S once again - thanks and sorry for the looooonnnnggggg post.