Today im just sad. Sad because its an effect of being to warm. To be highly heat intolerant I get sudden overwhelming reactions like sadness. The brain is SO.WEIRD. Also being confined inside, and not being able to function well outside, certainly puts a damper on things. So, enough about me.
How...
Evening folks, wishing you’re well and happy. I’m planning on going on the religious pilgrimage to Saudia Arabia and I’m slightly concerned about managing with the heat. Hoping if anyone can shed some light on how to cope and if anyone’s been can you advise me on things that may help from your own e...
Just trying to find out experiences of going through a relapse and noting an increased sensitivity to heat (from environmental factors, exercise etc).
Been wondering for a while now if there's a link between active ongoing disease activity/or perhaps a confirmed relapse and increased heat sensiti...
Hi
Has anyone got an useful tips they use when they are outside in the sun(apart from staying out of it )? I love the warm weather but unfortunately it doesn't like me.
Vanessa
To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...
To begin, I had a craniotomy in 2014 to remove a benign brain tumor from the left frontal lobe that was causing vision loss, the worst migraines I’ve ever had, and many other issues. Since 2020, I’ve noticed random nerve pain in other places on my body outside of my head. Random hot spots that feel ...
Hello all!
I’m seeking out some good vacation spots for someone with heat intolerance and mobility issues (I use a wheel chair for longer distances). Have you gone anywhere (in the world) that you really enjoyed? I’d love to hear about it! 😃
Hi all! I’m giving myself things to look forward to in this new year. I would love to go to Hawaii. Any tips on dealing with heat intolerance?
I live in the northern US so it’s pretty mild or cold most of the year. It does get hot in the summer, but I would love any and all tips so I can actually l...
I have been to multiple doctors over the past couple years and nothing. Things are only getting worse. At first it was pain in my legs. Now tingling and numbing in arms and legs, headaches, eye pain, dizzy, bladder control, brain fog, fatigued beyond belief, heat intolerance,speech issues, and weak...
Hey, I'm new here and just wanted to vent and get some advice.
My journey started May 1st 2016 after a very long hot day out in the sun at my eldests first footie tournament.
The next day my hands and feet were tingling and everything was spinning so I put it down to too much sun and prescribed my...
Hi, although I was initially given a probable MS diagnosis in 2012, I did not develop any symptoms till 2019 and have primarily dealing with fatigue, heat intolerance and constant muscle tightness in most of my body. Just wondering what others find works best. I take baclofen for the worst days and ...
Just wanted to share my current symptoms while I wait for my brain MRI results (my spine MRI is in 2 weeks). Just a bit of my medical history, I have PCOS and hypothyroidism with Autoimmune Hashimoto’s. My PCOS is medically ignored because my Dr says “metformin is only if you’re trying to get preg...
Finally got an apt with neurologist from referral from eye dr. Have had symptoms come and go for years. I’m to the point where
I can’t do anything I used to. Activities have to be done in small increments with rest in between. I have to hold everything with two hands not to drop things. I have brok...
I went walking with my dad in the park in 24 degrees heat.
I struggled so much with the walk and balance.
What helps with the heat?
I need to walk to help improve my MS
#Heat intolerance #UK Heat
Not only do I have extreme heat intolerance and going thru menopause and HOT FLASHES! My makeup runs off my face before I even get out the door to work! 🤦🤷
Hi its been tough stuck in limbo with no diagnosis yet showing many possible symptoms of ms such altered sensation all over my body wet patches but dry this can be any where the biggest issue right now is walking its like I have my very own personal muddy bog to try and walk in normally it just not ...
I somehow ended up here watching viral Facebook videos? Never seen this place before. Not in England, but Birmingham, Alabama. Diagnosed April 2012. Started wheelchair June 2017.
Not much to say. The wheelchair is not the problem. Because Trigeminal Neuralgia is do bad I cannot go in the bright sun...
So I just went to see my neurologist. I explained my symptoms to her (as I do each time I see her) and I feel that she completely downplays my symptoms. I.e. the constant pain I feel...she says that it has nothing to do with MS...the heat intolerance...the lapse in memory....etc. Have you experience...
Hi friends, I hope you're all well and surviving the summer heat. I've got a question for anyone willing to answer...
I saw a new neurologist the other day and she said that sweating and extreme susceptibility to heat (i.e. I sweat profusely and get super hot either from minimal physical activity or...