Looking for
something specific?

OK so I have had the MOST spectacular response to this corticosteroid imaginable. I am a different person (a much better one). It has been a dark and dim time these past few decades. Whatever the actual prognosis eventually transpires MS/Encephalitis/cerebro spinal vasculitis, all similar condition...

MS Comedy Podcast Hello! We have just launched a comedy podcast about having MS and would love to share with you. Myself and co-host Lytisha have both has MS for 10+ years, so have a fair bit to chat about, but also to laugh about. Because sometimes you just have to! Anyway, here is the trailer, f...

Hello everyone! I was recently diagnosed with optic neuritis (and what apparently has been MS for several years now) and after long consideration I finally decided to opt for steroid pulse therapy (5 x 1000 mg methylprednisolone). The first few days were fine, I didn't experience any euphoria, slee...

Can MS affect your emotions? Can it damage your brain to a point where you can't really understand what emotion you're feeling or not? I keep getting phases of Euphoria but I've also been diagnosed depressed before so I don't know if this is my mind playing with ne or an actual affect of this condi...

I've lost count on the many sensory disturbances I've experience in the last year and a half of being diagnosed. These include electrical currents of euphoria I feel in my legs (in the evenings), to the fittingly named MS hug around my diaphragm. But nothing compares to the burning sensation I exper...

Has anyone figured out how to get their GP to give them larger quantities of medication when getting a prescription to reduce the number of times you have to pay prescription charges? My neuro suggested baclofen about 6-8 months ago to help with muscle spasms. I didn't suffer from this at the tim...

Whenever I'm having a good day, I always wind up being so productive, and getting so much done, because I feel so good, almost "normal" again.... But then the next morning I can barely move... And I never learn, I'm just in my constant cycle of overdoing it on my good days, and it just keeps increas...

So another clean MRI after 12 yrs of MS type symptoms. Dont get me wrong I was initially euphoric at that news. Two apparent "attacks 12 yrs apart, the most recent and ongoing by far more severe and a raft of paroxysmal symptoms inbetween. The tinnitus and mouth stiffness have more or less been per...

It doesn’t matter if your sad, angry, grieving, anxious, irritable, shouty, tearful, hyper, eurphoric or over sensitive - these are practicle links that might help us all when we need a little bit of extra help, 2 mins rest or escape from our own heads or a situation we’re finding difficult - These ...

What does the following excerpts mean from a letter I received. Has near left exophoria with good recovery, does have a relevant afferent pupillary defect. OCT test of discs shows a normal left disc and some mild infratemporal thinning of right optic disc. Current findings could be consistent with...