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Recent activityNewest posts

@Screwdriver 

23 Sep 2022 22:05Last reply 24 Sep 2022 18:38

Screwdriver

Coming down from Methylprednisolone

OK so I have had the MOST spectacular response to this corticosteroid imaginable. I am a different person (a much better one). It has been a dark and dim time these past few decades. Whatever the actual prognosis eventually transpires MS/Encephalitis/cerebro spinal vasculitis, all similar condition...
  • Symptoms
  • Fatigue
  • Relapsing remitting
  • Diagnosis
  • Work and play
  • Mental health
  • Treatment
  • Positives of MS
  • Relapses
  • Going out
2

@JeanetteBirdB 

4 Dec 2020 17:09

JeanetteBirdB

Help to stay positive!

MS Comedy Podcast Hello! We have just launched a comedy podcast about having MS and would love to share with you. Myself and co-host Lytisha have both has MS for 10+ years, so have a fair bit to chat about, but also to laugh about. Because sometimes you just have to! Anyway, here is the trailer, f...
  • Symptoms
  • Work and play
  • Positives of MS

@Alice352 

24 Aug 2020 22:12Last reply 25 Aug 2020 11:20

Alice352

How long AE after pulse therapy?

Hello everyone! I was recently diagnosed with optic neuritis (and what apparently has been MS for several years now) and after long consideration I finally decided to opt for steroid pulse therapy (5 x 1000 mg methylprednisolone). The first few days were fine, I didn't experience any euphoria, slee...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Symptoms
  • Blurred vision
  • Dizziness
  • Fatigue
  • Mental health
  • Steroids
2

@Amber_Pie 

16 Oct 2019 03:01Last reply 7 Nov 2019 20:19

Amber_Pie

Good days lead to bad 🤦

Whenever I'm having a good day, I always wind up being so productive, and getting so much done, because I feel so good, almost "normal" again.... But then the next morning I can barely move... And I never learn, I'm just in my constant cycle of overdoing it on my good days, and it just keeps increas...
12

@Danielg 

1 Jul 2019 08:59Last reply 1 Jul 2019 10:59

Danielg

Emotions

Can MS affect your emotions? Can it damage your brain to a point where you can't really understand what emotion you're feeling or not? I keep getting phases of Euphoria but I've also been diagnosed depressed before so I don't know if this is my mind playing with ne or an actual affect of this condi...
  • Diagnosis
  • Newly diagnosed
3

@heartland 

2 May 2018 01:58Last reply 3 May 2018 09:59

heartland

Confused

So another clean MRI after 12 yrs of MS type symptoms. Dont get me wrong I was initially euphoric at that news. Two apparent "attacks 12 yrs apart, the most recent and ongoing by far more severe and a raft of paroxysmal symptoms inbetween. The tinnitus and mouth stiffness have more or less been per...
  • Diagnosis
  • Symptoms
  • Spasticity
  • MRI
6

@Sphere 

21 Feb 2017 20:58Last reply 22 Feb 2017 08:23

Sphere

Need help with understanding letter

What does the following excerpts mean from a letter I received. Has near left exophoria with good recovery, does have a relevant afferent pupillary defect. OCT test of discs shows a normal left disc and some mild infratemporal thinning of right optic disc. Current findings could be consistent with...
  • Diagnosis
  • Limbo land
  • Symptoms
  • Blurred vision
1

@yipdtc 

22 May 2016 12:13Last reply 23 May 2016 16:45

yipdtc

Dancing like a man on fire!

I've lost count on the many sensory disturbances I've experience in the last year and a half of being diagnosed. These include electrical currents of euphoria I feel in my legs (in the evenings), to the fittingly named MS hug around my diaphragm. But nothing compares to the burning sensation I exper...
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Symptoms
  • Mental health
  • Numbness
  • Pain
  • Relapses
15

@poptart1977 

20 May 2015 22:42Last reply 21 May 2015 08:43

poptart1977

Bigger quantity of meds from GP?!

Has anyone figured out how to get their GP to give them larger quantities of medication when getting a prescription to reduce the number of times you have to pay prescription charges? My neuro suggested baclofen about 6-8 months ago to help with muscle spasms. I didn't suffer from this at the tim...
  • Symptoms
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  • Spasticity
  • Treatment
  • Which DMT
  • Work and play
  • Fun drugs
  • Going out
  • Money
2

@Stumbler 

1 Nov 2012 19:36Last reply 3 Nov 2012 02:36

Stumbler

Clever Jokes!

King Ozymandias of Assyria was running low on cash after years of war with the Hittites. His last great possession was the Star of the Euphrates, the most valuable diamond in the ancient world. Desperate, he went to Croesus, the pawnbroker, to ask for a loan. Croesus said, "I'll give you 100,000 d...
  • Healthy living
  • Exercise
  • Work and play
  • Money
11
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