#diagnosis - Shift.ms

30 Mar 2022 21:38Last reply 31 Mar 2022 16:31

new diagnosis

so my diagnosis went from rrms to rapidly evolving severe rrms and idk how to feel, i’m sn more scared and depressed ab it especially since i can’t even google much on it :( help ???

4

@shiftms-films

25 Jan 2000 17:28Last reply 30 Mar 2022 15:28

Belong | A short film about finding support after diagnosis

Belong is a short film that sees Dave, who has recently been diagnosed with MS, meet with others affected by the condition for the first time. They discuss MS symptoms, how MS has affected their relationships and how MS can also have a positive effect on a person's life. What good out of bad have ...

1

@jazminfannon

19 Mar 2022 09:52Last reply 24 Mar 2022 22:25

Running after diagnosis

Does anyone manage to run? Running used to be a huge hobby for me for lots of reason but after breaking my ankle which lead to my diagnosis I haven’t managed to. It feels like I have a mental block, I can jog when I’m indoors but not when outdoors… I’ve got a treadmill but can’t manage to jog ...

6

@Loves

22 Mar 2022 21:02

I'm Ranting!!! Bc I have no diagnosis

Ive somewhat started the process of being treated for hep c. Yay! But the fact they are completely over looking my migraines and just pushing meds at me is annoying. Yesterday I didn't have a painful migraine. More like a tiring one making it hard to focus, confusing numbers, spacing out, it's one t...

@Dx24012021

28 Jan 2021 21:06Last reply 15 Mar 2022 02:06

Recent MRI confirmed diagnosis

I was diagnosed on January 24th. MRI showed numerous old lesions in brain- a mix of old and new as well as C spine involvement. I am 37, fit and healthy up until now. I feel like the rug has been pulled from under me. To the members of this community, what helped you cope, what advice can you give s...

32

@Schwalbe

13 Mar 2022 20:02

Just ran my first 5k since my diagnosis

Today was the last run of the "Couch to 5K" program which I followed for the last five months. And I did it! I ran 5k! I remember how weak I was after steroid therapy, walking 500 meters was a major challenge. And it took 2 months of physio therapy to get me to a point where I was allowed to run at...

@Loves

13 Mar 2022 12:49

To start off...no ms diagnosis

So I've been trying to advocate for my own health. Why do I feel so guilty, for trying to be the best me? I've prompted more visits to the local sliding scale Dr. Office. Bc of migraines, that every MRI has said my brain in fine. Made an eye appointment bc honestly I don't remember ever having an ey...

@Hollys

5 Mar 2022 21:03Last reply 7 Mar 2022 09:52

Think that was a diagnosis ..

I think this morning's letter with an appointment to a MS clinic might be my neurologist's way of informing me that my 2nd MRI has more of less confirmed it - he did say someone would contact me with the MRI results but never did - they just sent me this instead. I feel OK, I have said to my GP a f...

5

@Jackalanch

3 Mar 2022 07:17Last reply 5 Mar 2022 22:03

New Diagnosis

Hi everyone, I was diagnosed on Tuesday this week. I still need to have a couple more tests but my neurologist is looking to get me started on medication soon. It’s quite daunting knowing what I’m coming up against. I’m a young man who loves nothing more than getting out and about because I live ...

6

@Bttrfly_Angel

3 Mar 2022 22:36 Edited

Am Dealing With MS Diagnosis & Imposter Syndrome

I read a blog entry on here about dealing with the MS diagnosis & imposter syndrome & it put into so many words what I've been feeling lately: https://shift.ms/blogs/ms-a-new-kind-of-imposter-syndrome Intially with my MS diagnosis I was struck with grief and denial, which has since subsided into a l...

@selma1

19 Feb 2022 18:41Last reply 19 Feb 2022 21:32

my diagnosis story because i feel like sharing it

hi everyoneee it all started in 2020 october, november, december and january- march 2021. i had extreme pain in my ribs but it started on my right side whenever i’d eat junk food or breathe incense sticks weirdly enough. this spread to my left ribs and it got sm worse over the months they originally...

London, United Kingdom

3

@moonannr

17 Feb 2022 22:03 EditedLast reply 19 Feb 2022 16:22

Medication and Navigating This New Diagnosis

Hi there. I was diagnosed in Dec. 2021 and my neurologist wanted to start me on Aubagio. After doing the necessary lab work prior to starting any meds, it was discovered that my JC Virus index was on the higher side, putting me at risk for PML. He wanted to start me on the medication anyway, and co...

4

@fzms93

16 Feb 2022 14:27Last reply 16 Feb 2022 23:14

Lesion , mobility , diagnosis

Does the location of your lesion determine your long term mobility? Or makes your EDSS score higher ??

5

@NASCARprof

16 Feb 2022 19:36

An interesting diagnosis

I went to my GP for a minor bowel issue (a one-time experience). He had me get an MRI of my lumbar region. He then referred me to a neurosurgeon who immediately introduced the possibility of a lumbar spinal fusion. He requested a CT scan, a bone density test, and a spinal x-ray, which I am presently...

Charlevoix, United States

@TJFulcher

6 Feb 2022 16:48Last reply 6 Feb 2022 21:21

A little more about my journey to my MS diagnosis

At the age of 13 I met my first ever MS specialist after a diagnostician at a children's hospital had finally decided that, that was the diagnosis that fit best. I loved this specialist as he seemed very interested in my case because of the fact that I was so young. This was the longest intake app...

2

@ConnieT

1 Feb 2022 08:58Last reply 4 Feb 2022 22:04

How did you come to terms with your diagnosis?

I’m 38, and have 2 beautiful boys (11 and 8). I feel like our lives are over. I don’t want to become a burden on everyone around. The idea of a relapse that renders me bed bound for weeks is terrifying. How will I take care of my family, and participate in normal life stuff? Am I at risk of drivin...

30

@Liz1966

27 Jan 2022 11:08Last reply 28 Jan 2022 14:37

No proper diagnosis yet - confused & anxious!

Hi everyone! first post here but have been lurking for quite a while 😉 As background I have always suffered with some health anxiety/depression after losing my precious son James who was 2 1/2yrs old from neuroblastoma in 2002 but went onto have my daughter who is now 18 who has got me through th...

3

@shiftms-films

11 Jan 2022 11:07

#LightningTalks: MS Diagnosis Top Tips

“Don’t fear the internet but if things are stressing you out - just walk away." Kelsey gives her MS diagnosis tips. Especially filtering through scary MS info from Dr Google. Have you ever scared yourself with information overload? 💬 Check out Kelsey’s #LightningTalk above ⬆️ https://www.youtube...

@Alexzem

26 Dec 2021 03:18Last reply 9 Jan 2022 10:00

Waiting diagnosis

I had a brain injury a couple years ago. I wanted to check my brain out so I got an MRI. There were some worries so we decided to do another MRI 6 months later. The new mri has come back and I have done another lumbar puncture to see if proteins are present. (Previously they weren't) I'm terrified...

11

@Schwalbe

4 Jan 2022 19:43Last reply 7 Jan 2022 20:39

Hello everyone, and: feelings since my diagnosis

Hello everyone. I just wanted to introduce myself and get some thoughts out. I'm a 26 year old from Germany. Somewhere around the middle of this year, I noticed surface level numbness in the feet and leg area and went to see a doctor. It took some time to get an MRI done, I then was send to hospita...

7

Topics