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Found 6579 results

@Henrietta

30 Jul 2020 08:51Last reply 1 Dec 2020 20:30

Henrietta

Diagnosis - the long and winding road

2001 Optic neuritis. Go blind suddenly - and fortunately temporarily - in one eye. Ophthalmologist sends me to neurologist. The neurologist tells me in a jovial tone to say that I have had optic neuropathy to insurers - if I say optic neuritis they’d put me down as having MS. MRI done. No follow up...
  • Symptoms
  • Diagnosis
  • Treatment
  • Blurred vision
  • Newly diagnosed
  • Hot and cold
  • Tecfidera
  • MRI
  • Relapsing remitting
  • Disclosure
36

@MelvieMoon

20 Oct 2019 07:48Last reply 23 Nov 2020 21:34

MelvieMoon

What lead you to your MS diagnosis?

I would like to start a thread to find out how others found out lead others to their MS diagnosis... I found out I had MS by fluke and for that I am extremely grateful! I started out with what I can only describe as ‘my own legs not feeling like my own’...I got bloods done and found out I was defici...
  • Diagnosis
  • MRI
  • Newly diagnosed
  • Vitamins and supplements
  • Healthy living
34

@kateybash

26 Jul 2017 15:40Last reply 26 Nov 2017 17:14

kateybash

Revoked license following CIS diagnosis.

Really needing advice.. as of this afternoon I have been advised by the DVLA that I am no longer allowed to drive, I have to send my license back to them due to my CIS diagnosis. I have been crying all day. I am a health visitor and need my car to work. I was under the impression that this would not...
  • Diagnosis
  • Limbo land
  • Work and play
  • Symptoms
  • Relapses
  • Work and Study
  • Mental health
  • Treatment
25

@ciara1982

22 Jul 2020 18:27Last reply 22 Jul 2020 22:56

ciara1982

Diagnosis

Hi I have had a recent mri identifying inflammation on both spinal cord and brain. I’m seeing neurologist on Friday. Did anyone get a diagnosis with the same mri result? My symptoms are weak left leg, tingling in right hand and poor balance. I also tend to be very sensitive to alcohol.
  • Diagnosis
  • Symptoms
  • Balance
  • Work and play
  • Going out
  • MRI
24

@jps1980

30 Jan 2019 13:46Last reply 24 Jun 2019 12:37

jps1980

Not coping well after diagnosis

HI everyone I'm 38 years old and have recently been diagnosed with Ms after having ongoing problems with my vision. It took over 12 months to get my diagnosis and not finding things easy. I'm a father of four and I'm married, I've always had problems with my mental health but have been very low si...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Mental health
  • Work and play
  • Family and children
  • Blurred vision
22

@Aaron_Holden

21 Aug 2020 17:28Last reply 24 Aug 2020 15:39

Aaron_Holden

Recent diagnosis

Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences. Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be ...
  • Diagnosis
  • Symptoms
  • Blurred vision
  • Work and play
  • Family and children
  • Work and Study
  • MRI
22

@whitneya

6 Aug 2020 14:58Last reply 7 Aug 2020 08:13

whitneya

Quitting job after diagnosis?

Hi all, I am 22 and was diagnosed with rrms in July after an attack in May. I’ve just started a dmd. Still have some symptoms - fatigue, feeling faint and I overheat quickly. My managers know, but they just don’t get it. My job is so fast-paced and they still think I can do anything and everything...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Symptoms
  • Fatigue
  • Mental health
  • Relapses
  • Treatment
  • Which DMT
  • Work and play
  • Money
  • Work and Study
  • Coronavirus
22

@ShadowFox

19 Jun 2018 15:41Last reply 26 Jun 2018 05:12

ShadowFox

MS Diagnosis ... finally!

So I posted last week about being new to Shift and awaiting MRI results, and thought I'd give an update ... More lesions on the brain since my MRI in August 2017, but spine is clear. Neuro confirmed I have RRMS. As with many here, I'm relieved to have a diagnosis even if MS isn't exactly good new...
  • Diagnosis
  • Relapsing remitting
  • Treatment
  • MRI
20

@Linzzzi

11 Dec 2017 12:22Last reply 25 Jan 2018 11:41

Linzzzi

Waiting diagnosis

Hi this will probably be a bit long winded but here goes. I was told probable ms after a severe bout of vertigo and double vision. This was back in june/july time and since then i have had another mri scan and am awaiting results. I am in alot of pain at the moment in my arms shoulders and legs with...
  • Diagnosis
  • Disclosure
  • Symptoms
  • Blurred vision
  • Dizziness
  • Pain
  • MRI
20

@Sylvanna

22 Oct 2017 14:16Last reply 23 Oct 2017 15:24

Sylvanna

How long did your diagnosis take?

Here's the thing, although I am actually really pleased to finally have a diagnosis of 'mild' RRMS I am really angry about how long it has taken. It is 8 years since I first went to the GP after suffering what I now know to be my first really obvious relapse. The delay in diagnosis was not for wa...
  • Diagnosis
  • Disclosure
  • Limbo land
  • Newly diagnosed
  • Relapsing remitting
  • Symptoms
  • Pain
  • Relapses
  • Work and Study
18

@nobodyin

24 Sep 2018 08:52Last reply 1 Jan 2019 12:24

nobodyin

diagnosis confusion?

Hello all, having recently been diagnosed with primary progressive MS, after an uphill fight of over a year to get a diagnosis, I wonder if anyone else on here has had a diagnosis blaming alcohol abuse for their MS. My latest clinic letter, after an MRI of my brain and spinal cord with dyes would se...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Work and play
  • Going out
  • MRI
  • Primary progressive
17

@Phillip_Dark

9 Nov 2018 09:07Last reply 11 Nov 2018 10:39

Phillip_Dark

Recent Diagnosis - DMTs

Hello, so this week I have my second opinion from a consultant and been diagnosed with RRMS. I am 29 and currently have symptoms of pins and needles in both legs and random spasticity that come and goes in my calfs, feet and around my waste line. At the beginning of this relapse I had the occas...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Exercise
  • Symptoms
  • Bladder and bowel
  • Dizziness
  • Mental health
  • Relapses
  • Steroids
  • Treatment
  • Lemtrada
  • Which DMT
  • Ocrevus
16

@RMDaniels

10 Apr 2019 09:33Last reply 10 Apr 2019 17:19

RMDaniels

Age at Diagnosis

Good morning from the beautiful state of Kansas, USA! I'm wondering about disease course when diagnosed at an older age. I'll be 50 in June & was just diagnosed this year with RRMS. I've read that being diagnosed after 40 is often PPMS and/or can have faster progression. Anyone else here dia...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Primary progressive
15

@Cazzzzzy

10 Mar 2013 16:10Last reply 11 Mar 2013 20:05

Cazzzzzy

Theatre tickets bought before diagnosis...

I booked tickets before my diagnosis and so didn't tick the disability box as was hoping I'd have something more treatable.... Anyway my tickets are here now & not sure what to do :/ .... I will call them tomorrow but just wondered if anyone here may have an idea of what I could do etc... Th...
  • Diagnosis
15

@Peacezone

5 Apr 2018 19:42Last reply 8 Apr 2018 13:12

Peacezone

Recent diagnosis

Hi, I'm very recently diagnosed, last month in fact. I'm 36 mum of three and soon divorced, so all of this had happened very quickly and is Very overwhelming. At the moment I have hardly any symptoms apart from numbness but I'm really scared of getting some of the symptoms and whether they will remi...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Secondary progressive
  • Symptoms
  • Work and play
  • Family and children
15

@JasFromTas

21 Dec 2012 00:55Last reply 2 Jan 2013 09:06

JasFromTas

Hi and help with new diagnosis...

Hi Everyone, New to this forum and to MS, but thought I’d say Hi. Are most of you from the UK/Europe? I’m in Australia (originally from Tasmania, the island below Australia, though now live in Melbourne), but there aren’t any online young MS stuff on the net for down here, so thought I’d join you...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Bladder and bowel
  • Brain fog
  • Hot and cold
  • Mental health
  • Relapses
  • Treatment
  • Which DMT
  • Work and play
  • Going out
14

@dalebrooks

22 Jul 2020 19:27Last reply 23 Jul 2020 04:43

dalebrooks

Symptoms before diagnosis how long?

My doctor told me that I have dormant multiple sclerosis meaning that I have the gray areas in my head and most of the symptoms but not the bands in my spine. My question is : is it normal to have symptoms for years before a real diagnosis? My dr told me that dormant ms isn’t a real diagnosis. So as...
  • Diagnosis
  • Disclosure
  • Symptoms
14

@Lala_Stanton

5 Mar 2020 17:37Last reply 6 Mar 2020 12:23

Lala_Stanton

Diagnosis

What was the test that finally made everything clear and finally got you a diagnosis????
  • Diagnosis
14

@George1960

15 Jun 2017 16:16Last reply 21 Jun 2017 03:55

George1960

Diagnosis disclosure

Hi, I know it's fiction but has anyone seen Coronation Street? A character in the program has just been diagnosed with MS. He has reluctantly told his Daughter but only because she witnessed some symptoms, he said he doesn't want anyone else to know. Is this reaction usual? I myself have been to see...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Symptoms
  • Work and play
  • Family and children
13

@londonlad

7 Jun 2017 15:23Last reply 8 Jun 2017 14:25

londonlad

First relapse and diagnosis, worried.

Dear all, I am a male 33 old year old. 3 months ago; unaware of what was about to happen,one day I felt off balance and within a week was hospitalised. The balance issues were accompanied with nystagmus causing double vision. I also had Horrible vertigo and vomiting even when drinking water. Of ...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Blurred vision
  • Dizziness
  • Mental health
  • Relapses
  • Treatment
  • Work and play
  • Going out
  • Money
  • Work and Study
  • MRI
13
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