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I used to see the main consultant twice a year, now I only see doctors under my consultant. This changed since I moved to SPMS. & I got a txt yesterday & my next appointment is Feb 2025 then a another txt today asking to confirm I can attend - in 2025 , I could be busy ... ? : )

https://www.youtube.com/watch?v=MM-6kNE4YYw&list=PLVUOB-ZqvZOGuy6t95B67vi5A6nQTY0BS Progression is often the elephant in the room, serving to build fear and trepidation for people who are living with MS. Through investigative conversations that unpick the human side of the topic, ‘Is my MS progres...

1998 I lost vision in my left eye for a period of time. Dr said it was a virus. 2003 I was suffering with balance problems. Dr said a lot of people suffer with balance problems. 2008 I was off work for 5 months following catching Chicken Pox. Dr said it could be ME, but eventually it will pass...

I always see the comments of "surround yourself with your friends and family and things will seem better". But what happens when you have no friends and you are not that close to your family (your family have their own troubles and you don't want to burden them with more) I sometimes feel totally...

I started Lemtrada June of 2018, completed May of 2019. It wasn’t an easy treatment. Ms for me began in 1995 (17 years old). Around 29 years of interferons…betaseron and then avonex. Then I stopped dmt’s and tried just diet…..bad idea.🤦🏼‍♂️. With my ms progressing and shouldering from RRMS to ...

Hi all, The last couple of days I have been experiencing some weakness in my left leg, going from the area around the base of my spine all the way down to my foot. Sometimes it extends upwards into my left arm and shoulder. This is a totally new symptom for me and otherwise I feel well but this co...

Hi guys. Having a MRI scan this week with contrast. I have one lesion on spinal cord. I am worried more our going to be found. Brain scan no change in two years. Spinal cord lesion is causing MS hug they told me so spinal cord being scaned. Still on Rebif. Last Relaspe was January 2018. Otherwise d...

I have just received my ms nurse's letter to my GP. I have recently been diagnosed with rrms (Aug 23) The letter states my diagnosis is now rapidly progressing ms. I've not heard of this type of ms. I can't find much information. No one informed me of this change. Does anyone know anything about th...

Hi, i’m on my 5th Ocranizimab transfusion now, and my MS is progressing, are used to walk with a Walkingstick, then a walker, now, when I’m outside a Mobility scooter or a wheelchair, so my MS is definitely progressing despite the Ocranizimab? Good luck with that???.

Hi all, I am new here and I have MS diagnosed in 2016 with RMMS. Since my diagnosis I have been on a slippery slope. I now take so many pills for pain and other pills for side effects of the other pills. I haven’t had a relapse for some time, my last being vertigo which my doctor said wasn’t a sympt...