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Just sounded out my boss' son. I had my days cut from 5 to 3 to 'save the company money'. I was told that this situation would be reviewed at the beginning of March. No-one has approached me about it yet so I took things into my own hands. I suggested to the boss' son that I could do 4 days a week i...

It's 2 months away to a 1 year since I was diagnosed with MS & what a drastic change it's made in my work life. Last year, around this time, I was getting ready to speak at 2 International Women's Day [IWD] events via work, while managing a foggy brain, undesirable bodily functions & pains througho...

At the moment my fatigue is through the roof. I am currently working full time but spend most of the weekends in bed or on the couch. I’ve thought about reducing my hours and doing a 9 day fortnight for a while but I’m not sure if this would help me. Has anyone found reducing their work hours ben...

It is hard to get across how bad I feel sometimes. I don’t need people to understand, but I don’t want to assumptions either. My cousin, who is always my boss five days a week, can be so hurtful. I may say my legs are achy, but don’t go into detail. He has no idea how much I struggle and can be ve...

Hello, Does anyone else struggle with full time work and running a home. I seem to be able to either work and the house ends up a total mess or i keep my house nice and are too worn out to cope at work. I want and need to reduce my hours but cant afford to. My MS is deteriorating and i feel like i ...

I work full time and hope to keep it that way for a very long time as seen as i am the bread winner. Recently i have had a few problems at work which have resulted in meetings with Occupational Health, who gave me a cognitive test to see exactly where i am compared to someone of the same age and edu...

Hi all, just heard about a new website that has been launched to provide information to employers and employees about the rights of employees with long term health conditions. I know a few people have posted in the past about concerns about work so thought it might be helpful.

Just venting… there is no such thing as work life balance with this disease. I go to bed early. I wake up zombie out of bed to go to work to come home to be back in bed. I want to be more active do more things with my husband, besides go to work and come home, I feel like I don’t have a life and the...

I've been putting on the happy face for a long time now and it's getting harder to hide it. I'm easily aggravated, angered, saddened. It's taking a toll on my marriage and work life. I'm lost.

I've been thinking about adopting a rescue dog for a while now. I'm finally settled in my home, have found a good work life balance and have my health (somewhat) under control. In other words, now is as a good a time as any and I feel ready to welcome a dog into my home. I'd been searching for a whi...

I didn’t think MS could still humiliate me. I feel bad about how I’m effecting those around me and how I am going to be a greater burden on my family. I lost it and tore into my wife. I was in such a haze that I can’t remember what I said. I acutely remember the feeling of being mortified. Of c...

Hey all, I’m a head of department at a busy grammar school and am lucky that my school has been super supportive and keen to facilitate any adjustments or new ways of working I can think of. I’ve asked for a ground floor classroom and not to move around during the day and no lunch duties and have b...

Work has been busy lately! I'm grateful outdoor event gigs have been more consistent but it's the out of the blue, brain fog, blurred vision, trouble with speech days that still give me the fear of relapse. My Glasgow neuro said anything could've triggered my last relapse but my strongest pre-relaps...

Hello, I am new to this website, having recently been introduced to it by my MS Nurse (legend!) and being recently diagnosed (I am 33). I am interested to see how teachers cope with the work/life balance of having MS and physically and mentally being a successful full-time teacher (English secondary...

Hi, I've been on plegridy for about 8 months and have found it a struggle, I feel like death on injection weekends and due to a busy work / life / family / in-laws commitment not a great deal better on the rest. Have talked to my consultant and on review after new mri's, the treatment has stopped...

Topic: Major failings by the DVLA in assessing people’s fitness to drive Having being inspired by the recent recognition of the MS rail disabled card I am using this enthusiasm to try and get the DVLA to take responsibility and to improve procedures in assessing people's fitness to drive. While t...

Hi I'm new to the forum but have been following for a while. Just wondered how any of you received your lp results and how long after? My brain mri showed demylination and the report states Ms however my neurologist disagrees with my report. On examination they found mild left limb weakness and when...

Sorry....this is a long post! I have RRMS, diagnosed 2006. I had 2&1/2 years of Rebif, from 2008, stopped due to bad side effects. I then started daily copaxone injections from 2011. Following a relapse (my first since starting copaxone) in 2016, I switched to 3x week copaxone injections. Neuro...

Hi all I am new on here. I was diagnosed last year as I had been suffering from numb legs for about 3-4 years. Just later the numbness is now at the top of my legs also finger tip on my right hand is now numb. Has anyone else had the same issue. I have seen my specialist nurse also for my work life...

Hi all, We’re working with an artist who has MS to create an artwork that is inspired by people's experiences of how MS affects work and the relationships around it. We want people with MS or people affected by MS to share written or verbal responses on how their work life has been affected after ...