#secondary progressive

25 Mar 2013 18:44Last reply 17 Feb 2021 22:00

From Relapsing Remitting MS to Secondary Progressive - questions please!

Hi all, We've got Prof Alan Thompson from the Institute of Neurology in London lined up to respond to your questions about the transition from Relapsing Remitting MS to Secondary Progressive MS. Professor Thompson is a world leader when it comes to progressive MS and this is your chance to ask...

31

@gareth1987

11 Jun 2015 14:15Last reply 16 Jun 2015 09:52

Secondary progressive MS

Does anyone have this on here? I was diagnosed with it a few months back and I am just wondering, if you have it, how are you dealing with it?? Cheers

13

@Lushy

12 Mar 2019 09:10Last reply 30 Apr 2019 19:13

Secondary progressive ms

Hi everyone. I just wanted some advice on secondary progressive. I can't believe it I got diagnosed with ms - relapsing remitting 15 months ago,no treatments and then Friday I get told by the neurologist I have lots of lesions in my brain,brain stem and spine. I just feel devastated. I feel this cou...

11

@Caterpillar

14 Feb 2015 20:07Last reply 27 Dec 2015 18:41

RRMS to secondary progressive MS

I was wondering at what age MS changes from relapsing/remitting to secondary progressive. I think that for the majority of MSers it is around 50 - or am I totally wrong and age does not play a role?

10

@piers83

23 Oct 2017 14:38Last reply 24 Oct 2017 14:52

RRMS to Secondary Progressive?

Hi - I've very new to MS and I would love to know if anyone out there can give me a better understanding of how and when it's possible to get Secondary Progressive MS? My initial understanding was that it is something someone with RRMS gets after a series of relapses and thus comes after a few year...

9

@chriscamp

15 Jul 2016 15:14Last reply 16 Jul 2016 21:08

secondary progressive

Like I said to the neurologist, I guess the clue's in the name! Most people I know with MS are younger than me and have Relapsing Remitting. I went to a seminar once when I was surprised to hear of other MSers who had run the marathon, and at other times, they are disabled in some way. Whilst my con...

8

@Hblatham

16 Dec 2020 12:49Last reply 19 Dec 2020 22:52

Secondary progressive MS

Hi my mum has had MS for 40 + years and done well over the years. She’s in the secondary progressive stage and it seems she’s had an attack recently that has now affected her arms as well as her legs. I didn’t think you got attacks with SP ? I don’t know anyone who’s had MS as long as my mum

8

@scooby76

2 Mar 2016 00:15Last reply 3 Mar 2016 10:14

Medication for secondary progressive

Hi guys was just wondering if any of you who have spms has found a medication good for aching and stiffness.. Although most of my body hurts I'm having trouble with my left leg it aches like mad has burning in the shin and the muscles are bouncing all over. I was diagnosed in July 2015 with secondar...

7

@burgme

16 Feb 2017 17:47Last reply 28 Feb 2017 21:47

Secondary Progressive MS

I have secondary progressive MS this causes me to have mobility issue on my right side hand and leg, I also have bladder problems frequently going to the loo.

5

@PaulX

1 Feb 2017 10:57Last reply 4 Mar 2017 13:29

Diagnosed with Secondary Progressive MS

Has anyone else being given a diagnosis of Secondary Progressive MS without ever been aware of the Relapsing Remitting phase. Never aware of ever having a relapse? I appreciate relapses might be hard to determine and a neurologist is an expert at evaluating your description of events up to this poin...

4

@NiceandcaringMike

11 Feb 2020 11:07Last reply 12 Feb 2020 13:05

Secondary progressive

Yeah my diagnosis has been upgraded to secondary progressive multiple sclerosis and it honestly scares me a bit. I'm alone for nearly 15 years now and I don't even have a way to get out and meet others. I'm very positive and have a great sense of humor and I wish I could get out to just make friends...

3

@Ekwe1234

26 Oct 2020 17:01Last reply 27 Oct 2020 12:21

Please how will I start drugs, does drug work for secondary progressive MS.

Yes.please how will I start drugs,does it work for secondary progressive MS.

London, United Kingdom

3

@jackie3113

14 Aug 2019 17:36Last reply 14 Aug 2019 22:12

Secondary progressive

I have had ms for at least 25yrs and just recently been told it has moved on to secondary progressive. Just wondering about other treatments people are using and how the results are going for them.

2

@zmaryam

9 Jan 2017 10:35Last reply 10 Jan 2017 04:44

Secondary progressive ms

Hi I want to know about secondary progressive msp

2

@willow

30 Nov 2015 20:21Last reply 8 Dec 2015 18:17

What can I do if i'm refused Lemtrada?

Hello, I have a long waited appointment with my Neurologist this Wednesday. I had rrms for 14 years with occasional relapses. I've had 2 years with no relapses so have now moved into Secondary progressive MS. After doing my own research, and reading about other people's positive results from bein...

28

@Magnum1

2 Sep 2020 22:41Last reply 25 Nov 2020 20:17

Tough subject :(

So my wife of 31 years was diagnosed with RRMS in 1995. In that time she has tried many many medications. Nothing has stopped or even slowed her progression into secondary progressive MS. We travelled to Poland 2010 for CCSVI treatment. Still her MS progressed. She has been using a wheelchair now fo...

22

@Victoria5905

21 Jan 2016 09:59Last reply 17 Feb 2016 13:44

Alternative to drugs

This is something you might want to be aware of. As well as all the drugs out there for MS a diet has been scientifically proven to have better results than drugs. You can try this site for information on diet relating to MS https://overcomingms.org/ This talk explains a lot more https://www.youtub...

19

@Lozwo

20 Nov 2015 13:02Last reply 23 Nov 2015 11:37

Spms ?

Hey guys... When do you know if you have secondary progressive MS? I've had RR for 12 years and the last relapse i I had 3 years ago (burning right leg) never went into remission. Some days it's worse but it never ever goes away... I think the pain has intensified over the last three years but I n...

19

@northernlass

19 Jan 2015 03:39Last reply 25 Jan 2015 11:14

Been invited to a party.. :-(

I've been invited to a friends 50th this coming Friday.. it will be only the second trip out in public with people I know since I've been diagnosed back in April 2014. What is there to worry about I hear you ask...? well I am worried about questions en mass about my wobbly walk & walking stick. ...

18

@Peggy7

29 Jul 2020 09:00Last reply 29 Jul 2020 21:04

Wedding

Hi all, I rarely say anything on here but I am getting a little nervous instead of being excited. It’s my son’s wedding on the 8th August (30 guests only) it’s being held in a stunning listed property, the problem is I have Secondary Progressive MS and the toilets are downstairs with no lifts, I hav...

18