#secondary progressive

30 Jul 2022 17:12 EditedLast reply 7 Aug 2022 06:47

Calling all Secondary Progressive MS people!

Ok people, I would appreciate some advice from Secondary Progressive MS’ers (SPMS). Diagnosed with RRMS in 2009, and been on and off mickey mouse drugs AKA beta interferons/ Rebif, Plegridy etc. for past 14 yrs. Only recently I started a highly effective drug- Ocrevus- end 2021. However, I feel li...

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@WinchesterMark

13 Jan 2022 14:02 Edited

Secondary Progressive MS ?

Advance apologies as you might need to bear with me on this one. Following a very recent (Monday) visit to my ‘new’ super-duper neurologist (the new super-duper one is a ‘MS specialist neurologist’ opposed to the old ‘just a regular neurologist’

@chloeautumnx

2 Nov 2021 06:03Last reply 3 Nov 2021 02:33

Copaxone for active secondary progressive MS

Hi, my neuro believes that I am now on a path of secondary progressive. My relapse rate has increased and my ability to walk is becoming more and more restricted with high levels of pain in there too. They have started me on Copaxone and it's all being delivered today. Any hints or tips from fellow ...

4

@gpeps

25 Mar 2013 18:44Last reply 17 Feb 2021 22:00

From Relapsing Remitting MS to Secondary Progressive - questions please!

Hi all, We've got Prof Alan Thompson from the Institute of Neurology in London lined up to respond to your questions about the transition from Relapsing Remitting MS to Secondary Progressive MS. Professor Thompson is a world leader when it comes to progressive MS and this is your chance to ask...

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@Hblatham

16 Dec 2020 12:49Last reply 19 Dec 2020 22:52

Secondary progressive MS

Hi my mum has had MS for 40 + years and done well over the years. She’s in the secondary progressive stage and it seems she’s had an attack recently that has now affected her arms as well as her legs. I didn’t think you got attacks with SP ? I don’t know anyone who’s had MS as long as my mum

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@Ekwe1234

26 Oct 2020 17:01Last reply 27 Oct 2020 12:21

Please how will I start drugs, does drug work for secondary progressive MS.

Yes.please how will I start drugs,does it work for secondary progressive MS.

London, United Kingdom

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@NiceandcaringMike

11 Feb 2020 11:07Last reply 12 Feb 2020 13:05

Secondary progressive

Yeah my diagnosis has been upgraded to secondary progressive multiple sclerosis and it honestly scares me a bit. I'm alone for nearly 15 years now and I don't even have a way to get out and meet others. I'm very positive and have a great sense of humor and I wish I could get out to just make friends...

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@jackie3113

14 Aug 2019 17:36Last reply 14 Aug 2019 22:12

Secondary progressive

I have had ms for at least 25yrs and just recently been told it has moved on to secondary progressive. Just wondering about other treatments people are using and how the results are going for them.

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@Lushy

12 Mar 2019 09:10Last reply 30 Apr 2019 19:13

Secondary progressive ms

Hi everyone. I just wanted some advice on secondary progressive. I can't believe it I got diagnosed with ms - relapsing remitting 15 months ago,no treatments and then Friday I get told by the neurologist I have lots of lesions in my brain,brain stem and spine. I just feel devastated. I feel this cou...

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@piers83

23 Oct 2017 14:38Last reply 24 Oct 2017 14:52

RRMS to Secondary Progressive?

Hi - I've very new to MS and I would love to know if anyone out there can give me a better understanding of how and when it's possible to get Secondary Progressive MS? My initial understanding was that it is something someone with RRMS gets after a series of relapses and thus comes after a few year...

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@PaulX

1 Feb 2017 10:57Last reply 4 Mar 2017 13:29

Diagnosed with Secondary Progressive MS

Has anyone else being given a diagnosis of Secondary Progressive MS without ever been aware of the Relapsing Remitting phase. Never aware of ever having a relapse? I appreciate relapses might be hard to determine and a neurologist is an expert at evaluating your description of events up to this poin...

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@burgme

16 Feb 2017 17:47Last reply 28 Feb 2017 21:47

Secondary Progressive MS

I have secondary progressive MS this causes me to have mobility issue on my right side hand and leg, I also have bladder problems frequently going to the loo.

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@zmaryam

9 Jan 2017 10:35Last reply 10 Jan 2017 04:44

Secondary progressive ms

Hi I want to know about secondary progressive msp

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@chriscamp

15 Jul 2016 15:14Last reply 16 Jul 2016 21:08

secondary progressive

Like I said to the neurologist, I guess the clue's in the name! Most people I know with MS are younger than me and have Relapsing Remitting. I went to a seminar once when I was surprised to hear of other MSers who had run the marathon, and at other times, they are disabled in some way. Whilst my con...

8

@scooby76

2 Mar 2016 00:15Last reply 3 Mar 2016 10:14

Medication for secondary progressive

Hi guys was just wondering if any of you who have spms has found a medication good for aching and stiffness.. Although most of my body hurts I'm having trouble with my left leg it aches like mad has burning in the shin and the muscles are bouncing all over. I was diagnosed in July 2015 with secondar...

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@Caterpillar

14 Feb 2015 20:07Last reply 27 Dec 2015 18:41

RRMS to secondary progressive MS

I was wondering at what age MS changes from relapsing/remitting to secondary progressive. I think that for the majority of MSers it is around 50 - or am I totally wrong and age does not play a role?

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@gareth1987

11 Jun 2015 14:15Last reply 16 Jun 2015 09:52

Secondary progressive MS

Does anyone have this on here? I was diagnosed with it a few months back and I am just wondering, if you have it, how are you dealing with it?? Cheers

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@SanjayS

12 Aug 2022 09:42 Edited

Newly diagnosed

Hi, just thought I'd introduce myself to the group. I'm Sanjay, male, aged 47 and I've been diagnosed with secondary progressive MS as it turns out I've had PRR MS for over 20 yrs and have been managing each of the symptoms over that time being pragmatic and sensible. Explains a lot including 'Sanja...

@AddyBG

31 Jul 2021 15:29 EditedLast reply 12 Jul 2022 17:36

Copaxone described as first treatment.

Hey guys ;) how are you? Well, i am officially diagnosed with Relapsing-remitting MS with EDDS - 1,5 (mild symptoms). I am curently waiting for my medication - Copaxone with injector pen. How many of you are on copaxone? What do you feel? I am wondering - could this medicine worsen my MS? I met a gu...

12

@alderstream

10 Jul 2022 17:59Last reply 11 Jul 2022 23:29

Milich

Hi i am secondary progressive and i would like to know if anybody has discovered the best way to slow it down

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