#secondary progressive

@Lenz

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Good Afternoon Everyone my name is Lensey I have secondary progressive multiple sclerosis

First posted on the Shift.ms app

@Annabella

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Secondary Progressive

Hello everyone. Just joined! I have secondary progressive ms with multiple lesions on spinal cord. My ms is no longer active and the lesions are now described as ‘black holes’ where there is damage to axons. Bottom line is, there is no treatment now. Siponimod was a consideration at one point but it...

@Teddy123456

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Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

First posted on the Shift.ms app

@Padthai1

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Hi everyone, I’m new here so I’ll just tell you a bit about myself. I was struck down with secondary progressive ms in 2016 with no warning a numb big toe on Sunday and paralysis to my left side by the Thursday! Do any of you guys have a sibling or family member who has ms ? I’ve been told it isn’t hereditary, but my sister had it before me and very sadly she passed away in February 2021, to advanced ms and Covid pneumonitis 😢

First posted on the Shift.ms app

@rach

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Hi All, I have the worst water infection I have had a few. I’m secondary progressive anyone else on here get them bad ?

First posted on the Shift.ms app

@stumpylumpy

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I have had RRM MS since 2000 and was told I'm now secondary progressive since 2023. It feels like it's become quite aggressive again interfering with work. I live alone. I've pushed to have my consultant appointment moved forward. I've been left mostly by myself with no constructive support in place. I'm not on disease modifiers. I've done so well but let's say since moving services has been obismal. I'm always pushing forward and challenging myself, but feeling like I'm loosing grip on reality. I'm that exhausted with the MS is anyone same and any advice to help is appreciated

First posted on the Shift.ms app

@shellfromhell

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New user with secondary progressive ms

Hi there I'm new to this site Currently having a flare up starting with loss of sensation and muscle weakness in my right abdomen which has slowly worked it's way down and spread down to my foot all right sided usual for my ms as I don't have relapse with secondary ms anyone else experiencing any...

, United Kingdom

First posted on the Shift.ms app

@Danielle924

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Secondary progressive ms, is finally going downhill.

Am dealing with my disease progressing, it's very difficult. Charlie horses in my buttock, back of quads and calves. Trying to get physio but hard to get. Waiting game.... trying to do stretches but doesn't help. I have 2 friends to talk to but don't want to burden them. Legs just don't feel right, ...

Victoria, Canada