Shift.ms

7 Mar 2025 07:21Last reply 7 Mar 2025 10:50

New user with secondary progressive ms

Hi there I'm new to this site Currently having a flare up starting with loss of sensation and muscle weakness in my right abdomen which has slowly worked it's way down and spread down to my foot all right sided usual for my ms as I don't have relapse with secondary ms anyone else experiencing any...

, United Kingdom

First posted on the Shift.ms app

@stumpylumpy

27 Feb 2025 06:02Last reply 28 Feb 2025 12:24

I have had RRM MS since 2000 and was told I'm now secondary progressive since 2023. It feels like it's become quite aggressive again interfering with work. I live alone. I've pushed to have my consultant appointment moved forward. I've been left mostly by myself with no constructive support in place. I'm not on disease modifiers. I've done so well but let's say since moving services has been obismal. I'm always pushing forward and challenging myself, but feeling like I'm loosing grip on reality. I'm that exhausted with the MS is anyone same and any advice to help is appreciated

First posted on the Shift.ms app

@Teddy123456

23 Feb 2025 14:57Last reply 23 Feb 2025 16:27

Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

First posted on the Shift.ms app

@Danielle924

8 Nov 2023 05:06 EditedLast reply 3 Nov 2024 05:57

Secondary progressive ms, is finally going downhill.

Am dealing with my disease progressing, it's very difficult. Charlie horses in my buttock, back of quads and calves. Trying to get physio but hard to get. Waiting game.... trying to do stretches but doesn't help. I have 2 friends to talk to but don't want to burden them. Legs just don't feel right, ...

Victoria, Canada

@MSDani

27 May 2024 21:28Last reply 28 May 2024 11:01

Secondary progressive

Hi! I'm new to this site. How have you dealt with the progression to secondary progressive MS?

Alameda, United States

@Daisy11

7 Mar 2024 18:57Last reply 1 Apr 2024 16:28

So my neurologist told me that I am now secondary progressive!

My neurologist has just told me that I am now secondary progressive with my MS! I feel lost, what can I do?

Shepton Mallet, United Kingdom

@Criscross21

18 Oct 2023 11:50Last reply 19 Oct 2023 20:36

Secondary Progressive - same old MS, right?

For those who are a couple decades into their diagnosis, how do you know when you are transitioning into the Secondary Progressive category? It sounds like SPMS involves less active inflammation and more side effects of prior MS damage. Is that basically correct? If you are willing to share, did ...

Akron, United States

@MiSha

3 Sep 2023 17:14

Early Predictors of conversion to secondary progressive MS-2021 study

Our data support previous observations that smoking is a modifiable risk factor for secondary progressive MS and confirms that spinal cord involvement, age, and more severe disease at onset are prognostic factors for converting to secondary progressive MS. https://www.sciencedirect.com/science/arti...

Toronto, ON, Canada

@Ematt0426

8 Aug 2023 21:07Last reply 9 Aug 2023 13:27

Secondary progressive MS?

Hi all, If you’ve been diagnosed with SPMS, how did that change from RRMS to SPMS play out? What was your body doing? Did you know before the docs? Did you have to convince them something was still not right? I’ve had an increase/change in symptoms about every other month. It’s exhausting, I don’...

Mequon, United States

@Denise4231

9 Mar 2023 18:24Last reply 14 Jul 2023 15:03

Hello my name is Denise, I have secondary progressive ms, I live in wi

I have secondary progressive ms, I live in Widnes and heard about a gym especially for multiple sclerosis sufferers, unfortunately I can’t find it, does anybody know about this

Liverpool, United Kingdom

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