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I have secondary progressive ms, I live in Widnes and heard about a gym especially for multiple sclerosis sufferers, unfortunately I can’t find it, does anybody know about this

Hello everyone. Just joined! I have secondary progressive ms with multiple lesions on spinal cord. My ms is no longer active and the lesions are now described as ‘black holes’ where there is damage to axons. Bottom line is, there is no treatment now. Siponimod was a consideration at one point but it...

Advance apologies as you might need to bear with me on this one. Following a very recent (Monday) visit to my ‘new’ super-duper neurologist (the new super-duper one is a ‘MS specialist neurologist’ opposed to the old ‘just a regular neurologist’ < soooo effectively the same but just with a more imp...

Hi, my neuro believes that I am now on a path of secondary progressive. My relapse rate has increased and my ability to walk is becoming more and more restricted with high levels of pain in there too. They have started me on Copaxone and it's all being delivered today. Any hints or tips from fellow ...

Hi all, We've got Prof Alan Thompson from the Institute of Neurology in London lined up to respond to your questions about the transition from Relapsing Remitting MS to Secondary Progressive MS. Professor Thompson is a world leader when it comes to progressive MS and this is your chance to ask...

Hi my mum has had MS for 40 + years and done well over the years. She’s in the secondary progressive stage and it seems she’s had an attack recently that has now affected her arms as well as her legs. I didn’t think you got attacks with SP ? I don’t know anyone who’s had MS as long as my mum

Yes.please how will I start drugs,does it work for secondary progressive MS.

Yeah my diagnosis has been upgraded to secondary progressive multiple sclerosis and it honestly scares me a bit. I'm alone for nearly 15 years now and I don't even have a way to get out and meet others. I'm very positive and have a great sense of humor and I wish I could get out to just make friends...

I have had ms for at least 25yrs and just recently been told it has moved on to secondary progressive. Just wondering about other treatments people are using and how the results are going for them.

Hi everyone. I just wanted some advice on secondary progressive. I can't believe it I got diagnosed with ms - relapsing remitting 15 months ago,no treatments and then Friday I get told by the neurologist I have lots of lesions in my brain,brain stem and spine. I just feel devastated. I feel this cou...

Hi - I've very new to MS and I would love to know if anyone out there can give me a better understanding of how and when it's possible to get Secondary Progressive MS? My initial understanding was that it is something someone with RRMS gets after a series of relapses and thus comes after a few year...

Has anyone else being given a diagnosis of Secondary Progressive MS without ever been aware of the Relapsing Remitting phase. Never aware of ever having a relapse? I appreciate relapses might be hard to determine and a neurologist is an expert at evaluating your description of events up to this poin...

I have secondary progressive MS this causes me to have mobility issue on my right side hand and leg, I also have bladder problems frequently going to the loo.

Hi I want to know about secondary progressive msp

Like I said to the neurologist, I guess the clue's in the name! Most people I know with MS are younger than me and have Relapsing Remitting. I went to a seminar once when I was surprised to hear of other MSers who had run the marathon, and at other times, they are disabled in some way. Whilst my con...

Hi guys was just wondering if any of you who have spms has found a medication good for aching and stiffness.. Although most of my body hurts I'm having trouble with my left leg it aches like mad has burning in the shin and the muscles are bouncing all over. I was diagnosed in July 2015 with secondar...

I was wondering at what age MS changes from relapsing/remitting to secondary progressive. I think that for the majority of MSers it is around 50 - or am I totally wrong and age does not play a role?

Does anyone have this on here? I was diagnosed with it a few months back and I am just wondering, if you have it, how are you dealing with it?? Cheers

I get pressure like pain in my head on top my skull almost feels like my brains swelling or something and recently my neck has been stiff and sore...anyone else? I have secondary progressive ms

Hi, Looking for some advice really. I have had MS for 8 years now and medics believe (after months of decline and no remission) that I have started on the path of secondary progressive. Since last summer, I became a full time wheelchair user due to a severe relapse leaving my left leg paralysed. Si...