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Am dealing with my disease progressing, it's very difficult. Charlie horses in my buttock, back of quads and calves. Trying to get physio but hard to get. Waiting game.... trying to do stretches but doesn't help. I have 2 friends to talk to but don't want to burden them. Legs just don't feel right, ...

For those who are a couple decades into their diagnosis, how do you know when you are transitioning into the Secondary Progressive category? It sounds like SPMS involves less active inflammation and more side effects of prior MS damage. Is that basically correct? If you are willing to share, did ...

Our data support previous observations that smoking is a modifiable risk factor for secondary progressive MS and confirms that spinal cord involvement, age, and more severe disease at onset are prognostic factors for converting to secondary progressive MS. https://www.sciencedirect.com/science/arti...

Hi all, If you’ve been diagnosed with SPMS, how did that change from RRMS to SPMS play out? What was your body doing? Did you know before the docs? Did you have to convince them something was still not right? I’ve had an increase/change in symptoms about every other month. It’s exhausting, I don’...

I have secondary progressive ms, I live in Widnes and heard about a gym especially for multiple sclerosis sufferers, unfortunately I can’t find it, does anybody know about this

Hi my mum has had MS for 40 + years and done well over the years. She’s in the secondary progressive stage and it seems she’s had an attack recently that has now affected her arms as well as her legs. I didn’t think you got attacks with SP ? I don’t know anyone who’s had MS as long as my mum

Hi all it’s been a strange time but my neurologist is amazing he spent 3 hours with me and I got a six page report. He knows his stuff. Dr Steven Bailey. I never had a EDSS score before and scored 6/10 so I have been diagnosed with Active secondary progressive MS and start Siponimod in a month. Wish...

Joined a new club today . I hate being right all the time . I have about 500 Tecfidera tablets going free if needed 😂

Hello everyone. Just joined! I have secondary progressive ms with multiple lesions on spinal cord. My ms is no longer active and the lesions are now described as ‘black holes’ where there is damage to axons. Bottom line is, there is no treatment now. Siponimod was a consideration at one point but it...

Advance apologies as you might need to bear with me on this one. Following a very recent (Monday) visit to my ‘new’ super-duper neurologist (the new super-duper one is a ‘MS specialist neurologist’ opposed to the old ‘just a regular neurologist’ < soooo effectively the same but just with a more imp...