#secondary progressive

10 May 2025 17:57Last reply 11 May 2025 23:57

DMT and aging

Good morning all. I was diagnosed a very long time ago... so long ago that there were no DMTs available. When they did come out my doctor felt that because I was stable I didn't need to take anything. Fast forward several years and I was given Rebif which I stayed on for many years. I switched doct...

First posted on the Shift.ms app

@Padthai1

22 Apr 2025 08:27Last reply 22 Apr 2025 16:41

Hi everyone, I’m new here so I’ll just tell you a bit about myself. I was struck down with secondary progressive ms in 2016 with no warning a numb big toe on Sunday and paralysis to my left side by the Thursday! Do any of you guys have a sibling or family member who has ms ? I’ve been told it isn’t hereditary, but my sister had it before me and very sadly she passed away in February 2021, to advanced ms and Covid pneumonitis 😢

First posted on the Shift.ms app

@rach

15 Apr 2025 18:34Last reply 15 Apr 2025 18:44

Hi All, I have the worst water infection I have had a few. I’m secondary progressive anyone else on here get them bad ?

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@tlmodglin

28 Mar 2025 04:35Last reply 28 Mar 2025 22:13

Vision with ms

I was told I have secondary progressive ms. After hearing my dr. Say I have ms. He tells me to research online about it. As a woman we know when it's not a mental issue. But we get looked over. It frustrates me. I was in the hospital for losing my speech and my whole right side, like a stroke. I reg...

Maricopa, United States

@Amacy96

21 Mar 2025 02:14Last reply 21 Mar 2025 10:11

Clarification

Hi, I’m new here it’s great to see how supportive everyone is. I was initially diagnosed why RRMS years ago but i guess I also have secondary progressive. So does that mean I have both? Or did it mutate to become SPMS? If anyone else here has this experience can you please help me understand. Tha...

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@shellfromhell

7 Mar 2025 07:21Last reply 3 Apr 2025 20:30

New user with secondary progressive ms

Hi there I'm new to this site Currently having a flare up starting with loss of sensation and muscle weakness in my right abdomen which has slowly worked it's way down and spread down to my foot all right sided usual for my ms as I don't have relapse with secondary ms anyone else experiencing any...

, United Kingdom

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@stumpylumpy

27 Feb 2025 06:02Last reply 3 Apr 2025 20:38

I have had RRM MS since 2000 and was told I'm now secondary progressive since 2023. It feels like it's become quite aggressive again interfering with work. I live alone. I've pushed to have my consultant appointment moved forward. I've been left mostly by myself with no constructive support in place. I'm not on disease modifiers. I've done so well but let's say since moving services has been obismal. I'm always pushing forward and challenging myself, but feeling like I'm loosing grip on reality. I'm that exhausted with the MS is anyone same and any advice to help is appreciated

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@Teddy123456

23 Feb 2025 14:57Last reply 7 May 2025 22:42

Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

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@jumpingJacks

20 Feb 2025 17:21 EditedLast reply 22 Feb 2025 00:52

Just Me Thinking Out Loud 🤔

For years, MS has been classified into RRMS, SPMS, and PPMS. But what if we looked at it differently? Would proposing a classification system based on lesion location be better to predict the disability risk and personalize treatment. Brain-Dominant MS (BDMS) – More cognitive and fatigue symptoms ...

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@seancanread

3 Feb 2025 05:38 EditedLast reply 4 Feb 2025 22:46

Progressive MS

i’ve been coping with progressive MS for over 20 years. i’ve been on 3 different disease modifying therapies over that span. When does primary turn to secondary? i’ve never been satisfied with broad descriptions of this diseassesincd it really does seem like e every experience is unique.

First posted on the Shift.ms app

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