Shift.ms

7 Mar 2025 07:21Last reply 7 Mar 2025 10:50

New user with secondary progressive ms

Hi there I'm new to this site Currently having a flare up starting with loss of sensation and muscle weakness in my right abdomen which has slowly worked it's way down and spread down to my foot all right sided usual for my ms as I don't have relapse with secondary ms anyone else experiencing any...

, United Kingdom

First posted on the Shift.ms app

@stumpylumpy

27 Feb 2025 06:02Last reply 28 Feb 2025 12:24

I have had RRM MS since 2000 and was told I'm now secondary progressive since 2023. It feels like it's become quite aggressive again interfering with work. I live alone. I've pushed to have my consultant appointment moved forward. I've been left mostly by myself with no constructive support in place. I'm not on disease modifiers. I've done so well but let's say since moving services has been obismal. I'm always pushing forward and challenging myself, but feeling like I'm loosing grip on reality. I'm that exhausted with the MS is anyone same and any advice to help is appreciated

First posted on the Shift.ms app

@Teddy123456

23 Feb 2025 14:57Last reply 23 Feb 2025 16:27

Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

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@jumpingJacks

20 Feb 2025 17:21 EditedLast reply 22 Feb 2025 00:52

Just Me Thinking Out Loud 🤔

For years, MS has been classified into RRMS, SPMS, and PPMS. But what if we looked at it differently? Would proposing a classification system based on lesion location be better to predict the disability risk and personalize treatment. Brain-Dominant MS (BDMS) – More cognitive and fatigue symptoms ...

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@seancanread

3 Feb 2025 05:38 EditedLast reply 4 Feb 2025 22:46

Progressive MS

i’ve been coping with progressive MS for over 20 years. i’ve been on 3 different disease modifying therapies over that span. When does primary turn to secondary? i’ve never been satisfied with broad descriptions of this diseassesincd it really does seem like e every experience is unique.

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@stumpylumpy

21 Jan 2025 05:37Last reply 21 Jan 2025 09:04

Accessing services

I'm originally from Yorkshire where my experience of MS support was brilliant at the time I was relapse remitting. Two years they gave me diagnosis of secondary progressive. I moved due to work. But found services here in Somerset are obismal. No sign of contact from Ms nurse. Primary care GP hav...

First posted on the Shift.ms app

@LifeCrisis68

15 Jan 2025 17:07Last reply 15 Jan 2025 17:55

Medication switch

I’m currently in a MS flare and I had differences of opinion with my last neurologist that was an actual MS specialist. I have been on Tecfidera and gelynia In the past, but when I got into an argument with my neurologist about MS causing pain and she didn’t want to even acknowledge my pain, she do...

First posted on the Shift.ms app

@Paulie51174

12 Jan 2025 16:14Last reply 13 Jan 2025 03:34

How to Diagnose

Have a quick question. How do doctors Diagnose progressive and secondary progressive?

First posted on the Shift.ms app

@lg1978

22 Nov 2024 14:44Last reply 23 Nov 2024 02:21

To go on meds or not

I have secondary MS for the Last. I think 10 years it has progressed worse and I’m seeing my neurologist. I have been on nine different DMD over the 27 years of having MS and I did not stay on them for long because I found that they were giving me side-effects. Because I hear there is a lot of new ...

Banksia Grove, Australia

First posted on the Shift.ms app

@Robi5101

17 Nov 2024 23:31Last reply 3 Jan 2025 06:53

Anyone with secondary progression?

First posted on the Shift.ms app

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