@I have had RRM MS since 2000 and was told I'm now secondary progressive since 2023. It feels like it's become quite aggressive again interfering with work. I live alone. I've pushed to have my consultant appointment moved forward. I've been left mostly by myself with no constructive support in place. I'm not on disease modifiers. I've done so well but let's say since moving services has been obismal. I'm always pushing forward and challenging myself, but feeling like I'm loosing grip on reality. I'm that exhausted with the MS is anyone same and any advice to help is appreciated on Shift.ms

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@stumpylumpy

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I have had RRM MS since 2000 and was told I'm now secondary progressive since 2023. It feels like it's become quite aggressive again interfering with work. I live alone. I've pushed to have my consultant appointment moved forward. I've been left mostly by myself with no constructive support in place. I'm not on disease modifiers. I've done so well but let's say since moving services has been obismal. I'm always pushing forward and challenging myself, but feeling like I'm loosing grip on reality. I'm that exhausted with the MS is anyone same and any advice to help is appreciated

First posted on the Shift.ms app

@EJCrager

Hey from across the pond. I have been diagnosed since 2023 and I can say that ocrevus, a disease modifying therapy, has restored some quality to my life. It has slowed progression and I don’t have nearly as many flare ups.

27 Feb 2025 14:15

@Lowlander

@stumpylumpy Ask your neuro about a DMT called mayzent or Siponimod

28 Feb 2025 12:12