So my neurologist told me that I am now secondary progressive!
My neurologist has just told me that I am now secondary progressive with my MS! I feel lost, what can I do?
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Surprised your constant did not discuss treatment options with you. Maybe speak to your nurse and ask what options you have . There are DMT for SPMS. Worth checking out then speaking to your MS nurse. I see you were on lemtrada, the treatment for SPMS is not as tough. Wish you all the best
I kind of see SPMS as a natural progression of MS. It is rubbish, for me it’s like one minute I could walk quite far with no aids, drive work and I took that for granted and lost it all in the space of a couple of years. I am now taking siponimod and have been told there are now more treatment options available to me. Maybe ask about that? I try to hang on to the memories of the things I have done before the mobility/ health issues. I am making adjustments and focusing on my family now. Like you I delayed taking treatment for years because I felt ok.