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Hi all. I'm 58. I have Primary Progressive Multiple Sclerosis. I was diagnosed 2 weeks before Christmas 2017. I lost my husband November 23. Found life hard. Weird sensations in my head. Itchy hands. Numb fingers. Pain across eyes. Feels like I'm falling apart. Hope everyone is doing as well as th...

Do we get these via post? Or do we have an appointment with the Neurologist? I've tried asking my MS nurse but no-one has got back to me as of yet. I only ask because I don't want the results unless I absolutely need to have them. Like I know I've got this crap ass disease but i don't want to know a...

i’ve been coping with progressive MS for over 20 years. i’ve been on 3 different disease modifying therapies over that span. When does primary turn to secondary? i’ve never been satisfied with broad descriptions of this diseassesincd it really does seem like e every experience is unique.

I'm originally from Yorkshire where my experience of MS support was brilliant at the time I was relapse remitting. Two years they gave me diagnosis of secondary progressive. I moved due to work. But found services here in Somerset are obismal. No sign of contact from Ms nurse. Primary care GP hav...

Hi everyone New to this .Not to cause a division but has anyone got primary progressive MS ? Which I have . Somedays it feels like a slow motion death, as my walking slowly declines etc I have a drop foot which apparently can't be fixed aswell as, all the other aches ,pains and worries.

We look forward to your post on the topic For all of you interested: watch out for news of TOLEBRUTINIB and FENEBRUTINIB, for us progressive MSers, in the upcoming Euopean Congress of MS in Copenhagen, Denmark (ECTRIMS). Currently in phase III (the last before filing to EMA or FDA), the drugs coul...

Why is ECTRIMS important? There are over 8700 people, mostly MS Neurologists, all together sharing knowledge and learning. Prof Jackie Palace was my first ever neurologist. I only realise now how v fortunate I was. Jackie has a very progressive approach and believes in high efficacy meds as soon...