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No new lesions at my last scan after two full treatments of Ocrevus

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...

I was diagnosed 5years ago with Ppms The other night I woke with severe pains in my diaphragm. I wasen’t sure what it was and thought maybe heart attack. Then I read about the ms hug. Anyone experience this?

I got meylena this month never had treatment before. So I feel very excited. My MRI doesn't show any new lessons in the brain but ons straight one at my spine. Why only there?

So today I was told that I likely have Primary Progressive MS. Immediately I started doing research and I am just so bummed. I was really hoping this thing wouldn’t take too much from me but that doesn’t seem to be likely now.

New here, I was diagnosed 3 1/2 years ago but when I think back I’m pretty sure I’ve had MS for at least 20 years. Last time I saw my neurologist she said I was at primary progressive and has kept me off of meds. I feel physically that I have progressed since I’ve last seen here…I go and see her nex...

I struggle every moment of every day and my case is so advanced that I’m close to needing a wheelchair. I was an athlete and a genius iQ of 140! Now I can’t remember the name of my best friend if I don’t sit and think for a second. I cannot jump hurdles anymore. I was an all state won first place i...

I recently got diagnosed with primary progressive MS. I know that any type is bad but when ever i talk to anyone about it they say "it's not that bad", "i have a friend with it"..... and it always turns out they have the remitting one. Does any one with the progressive kind, feel trapped? and doomed

Does anyone experience heaviness in legs or foot drop?

When I was diagnosed with MS in June of 2020, I could only walk for a few minutes at a time. I had steroids then which drastically improved my walking, but now I'm back where I started. I can just walk for a few minutes, and even that's a struggle. Does anyone have tips on improving walking? I'm ter...

Hello all, Well I don't know where to begin!? Guess I should start here. Joined this site nearly 4 years ago just after I was diagnosed. I have had this thing approximately 20 years. Not on any medication, not that there seems to be much, the same as help with this - not much. I suppose when I w...

Has anyone gotten the HSCT procedure that has primary progressive MS? I spoke with one of Selma Blair's friends who had it done and she suggested a Mexico clinic for PP MS. I heard Mexico and didn't think that sounded safe, but I'm just beginning to learn about HSCT and it's benefits. The whole p...

Hi, I am new to shift ms and am wondering is there anyone who is on or knows anything about Rituximab? There are hardly any treatments for PPMS and my neurologist briefly mentioned this, but only in a letter after my consultation. I can only walk very short distances with a stick before my legs sta...

I am 32, is this young to get this particular type? Also what I can expect? Apart from the unexpected. What have others experienced?

I was diagnosed the other with primary progressive MS. I am 32 year old female and was wondering is having children an option anymore? It was one of my first questions as I really wanted children.

Last year, when I was diagnosed with multiple sclerosis, my world ended. I have heard stories of how autoimmune disorders ruin lives, so I believed that's what would happen to me. Over the past year, I've read more literature, and read some success stories. One story that I've read was a book wr...

Hi my name is Corey and I was diagnosed with primary progressive ms in February of 2020. I was instantly wheelchair bound and from their the fight has been on and I am constantly getting stronger by the day. I am also the founder of the cmmsfoundation. Cmmsfoundation.org.

Diagnosed with Primary Progressive MS 2011- First post on this site

i only share with you the only thing i can do since i was diagnosed to depict the shock & the happiness i live in. by the day tomorrow i was diagnosed with MS. *open this in a code writter app

I have taken the first step in tackling my depression by getting referred to mental health clinic, my mood has been low since being told my MS dx'd in 2020 is Primary Progressive, have the secret hope that the next fall I have is the last one, that I don't get back up. But hopefully the help will b...