#primary progressive

@adeacon

Edited

I was diagnosed with primary progressive and mass in 2000. I currently live in the Nurse at 66 years old because none of my limbs work. I paint with the paintbrush attached to the brim of my head check out my website alandeacon.com if you want to see me in action there is a television interview on there from one year ago

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@SamuelJS

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MS drug fenebrutinib shows ‘unprecedented results’ in trialsBTK inhibitor tested in relapsing, primary progressive forms of disease

https://multiplesclerosisnewstoday.com/news-posts/2025/11/13/ms-drug-fenebrutinib-shows-unprecedented-results-trials/

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@JoshuaOct2024

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Please comment on your treatment for Primary Progressive Multiple Sclerosis. Trying to understand what options are out their and the success of them.

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@TraceyR

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Need to show activity before offered meds for Primary Progressive MS

I have had my diagnosis changed from RRMS to PPMS but my latest scan in April shows it is currently not active, therefore, can not start medication yet. I have lesions showing on my brain, neck and chest but I was unaware I had MS until a year ago so I’m concerned that when the MS becomes active, I ...

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@Leighann

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Any experience of Primary Progressive MS, Crohn’s disease and HSCT

Hi everyone. My Husband recieves his lumber puncture results next week but we have already been told that he has PP MS and is EDSS 4 - so just waiting for the confirmation of diagnosis. Because he also has Crohn’s (ocrevus not compatible with Crohn’s) we have been told there are no standard treatme...

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@Danny1989

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I was diagnosed with primary Progressive MS. I was prescribed Prednisone 50 MG. Take 24 tablets (1,200 mg). Take it one time daily for five days total. This is all new to me, if anyone can explain in detail please? Is this the first step, taking all theses pills for further treatment?

San Diego, United States

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@Danny1989

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Easy diets, meals, snacks, fruits, vegetables etc…. When dealing with, Primary progressive MS

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@lizelliott

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Newly diagnosed with Primary Progressive

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...