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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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  • Benign
  • Disclosure
  • Limbo land
  • MRI
  • Newly diagnosed
  • Primary progressive
  • Relapsing remitting
  • Secondary progressive
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Found 697 results

@MSWarrior84

Last reply

MSWarrior84

I was diagnosed with Primary Progressive MS a year ago if anyone would like to talk...

No new lesions at my last scan after two full treatments of Ocrevus
  • Diagnosis
  • Newly diagnosed
  • Ocrevus
  • Treatment
  • Primary progressive
  • MRI
5

@lizelliott

Last reply

lizelliott

Newly diagnosed with Primary Progressive

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
  • Symptoms
  • Balance
14

@Paige_Wheeler

Last reply

Paige_Wheeler

Primary Progressive ms

I was diagnosed 5years ago with Ppms The other night I woke with severe pains in my diaphragm. I wasen’t sure what it was and thought maybe heart attack. Then I read about the ms hug. Anyone experience this?
  • Diagnosis
  • Primary progressive
  • Newly diagnosed
  • Symptoms
  • Relapses
8

@2012ashleigh

Last reply

2012ashleigh

I have primary progressive ms for 7 years now

I got meylena this month never had treatment before. So I feel very excited. My MRI doesn't show any new lessons in the brain but ons straight one at my spine. Why only there?
  • Treatment
  • Diagnosis
  • Primary progressive
  • MRI
4

@Remika

Last reply

Remika

Primary Progressive

So today I was told that I likely have Primary Progressive MS. Immediately I started doing research and I am just so bummed. I was really hoping this thing wouldn’t take too much from me but that doesn’t seem to be likely now.
  • Diagnosis
  • Primary progressive
  • Research
  • Disclosure
  • Treatment
  • Symptoms
  • Secondary progressive
7

@Eanzi30

Last reply

Eanzi30

Primary Progressive

New here, I was diagnosed 3 1/2 years ago but when I think back I’m pretty sure I’ve had MS for at least 20 years. Last time I saw my neurologist she said I was at primary progressive and has kept me off of meds. I feel physically that I have progressed since I’ve last seen here…I go and see her nex...
Independence, United States
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
  • Symptoms
  • Secondary progressive
  • Treatment
  • MRI
  • Work and play
  • Which DMT
  • Spasticity
2

@brandee1177

EditedLast reply

brandee1177

Advanced Aggressive Primary Progressive

I struggle every moment of every day and my case is so advanced that I’m close to needing a wheelchair. I was an athlete and a genius iQ of 140! Now I can’t remember the name of my best friend if I don’t sit and think for a second. I cannot jump hurdles anymore. I was an all state won first place i...
  • Healthy living
  • Exercise
  • Work and play
  • Accessibility
  • Symptoms
  • Diagnosis
  • Primary progressive
  • Hot and cold
  • Bladder and bowel
  • Balance
5

@dave

Last reply

dave

primary progressive anyone?

I recently got diagnosed with primary progressive MS. I know that any type is bad but when ever i talk to anyone about it they say "it's not that bad", "i have a friend with it"..... and it always turns out they have the remitting one. Does any one with the progressive kind, feel trapped? and doomed
  • Diagnosis
  • Primary progressive
  • Newly diagnosed
  • Relapsing remitting
  • Secondary progressive
  • Symptoms
  • Treatment
9

@mcknighm77

Last reply

mcknighm77

Hi I’ve been diagnosed with primary progressive MS in 2017.

Does anyone experience heaviness in legs or foot drop?
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
  • Symptoms
14

@ashleynw1

Last reply

ashleynw1

Trouble walking with Primary Progressive MS

When I was diagnosed with MS in June of 2020, I could only walk for a few minutes at a time. I had steroids then which drastically improved my walking, but now I'm back where I started. I can just walk for a few minutes, and even that's a struggle. Does anyone have tips on improving walking? I'm ter...
London, United Kingdom
  • Exercise
  • Healthy living
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Steroids
3

@dam205

EditedLast reply

dam205

Primary Progressive MS - A touch Lost

Hello all, Well I don't know where to begin!? Guess I should start here. Joined this site nearly 4 years ago just after I was diagnosed. I have had this thing approximately 20 years. Not on any medication, not that there seems to be much, the same as help with this - not much. I suppose when I w...
  • Newly diagnosed
  • Diagnosis
  • Primary progressive
  • Work and play
  • Family and children
  • Symptoms
  • Work and Study
  • Which DMT
4

@Jackie_Brauer

Last reply

Jackie_Brauer

HSCT Primary Progressive MS

Has anyone gotten the HSCT procedure that has primary progressive MS? I spoke with one of Selma Blair's friends who had it done and she suggested a Mexico clinic for PP MS. I heard Mexico and didn't think that sounded safe, but I'm just beginning to learn about HSCT and it's benefits. The whole p...
  • Diagnosis
  • Work and play
  • Money
  • Primary progressive
1

@JeanetteKent

Last reply

JeanetteKent

Treatments for Primary Progressive MS

Hi, I am new to shift ms and am wondering is there anyone who is on or knows anything about Rituximab? There are hardly any treatments for PPMS and my neurologist briefly mentioned this, but only in a letter after my consultation. I can only walk very short distances with a stick before my legs sta...
  • Exercise
  • Healthy living
  • Primary progressive
  • Diagnosis
  • Symptoms
  • Treatment
4

@Matie-K

Last reply

Matie-K

Primary progressive

I am 32, is this young to get this particular type? Also what I can expect? Apart from the unexpected. What have others experienced?
  • Diagnosis
  • Primary progressive
2

@Matie-K

Last reply

Matie-K

Diagnosis-primary progressive

I was diagnosed the other with primary progressive MS. I am 32 year old female and was wondering is having children an option anymore? It was one of my first questions as I really wanted children.
  • Diagnosis
  • Newly diagnosed
  • Work and play
  • Family and children
  • Primary progressive
5

@Anitole78

Last reply

Anitole78

Primary Progressive Multiple Sclerosis

Last year, when I was diagnosed with multiple sclerosis, my world ended. I have heard stories of how autoimmune disorders ruin lives, so I believed that's what would happen to me. Over the past year, I've read more literature, and read some success stories. One story that I've read was a book wr...
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Diet
  • Symptoms
  • Blurred vision
  • Fatigue
  • Work and play
  • Work and Study
6

@Cmmsfoundation

Last reply

Cmmsfoundation

Hello everyone

Hi my name is Corey and I was diagnosed with primary progressive ms in February of 2020. I was instantly wheelchair bound and from their the fight has been on and I am constantly getting stronger by the day. I am also the founder of the cmmsfoundation. Cmmsfoundation.org.
Blythewood, United States
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
  • Accessibility
  • Work and play
  • Symptoms
  • Treatment
2

@StuartBaker

Last reply

StuartBaker

New to the site

Diagnosed with Primary Progressive MS 2011- First post on this site
Essex, UK
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
3

@AMD7L

EditedLast reply

AMD7L

HAPPY MS AWARNESS DAY

i only share with you the only thing i can do since i was diagnosed to depict the shock & the happiness i live in. by the day tomorrow i was diagnosed with MS. *open this in a code writter app
Cairo, Egypt
  • Relapsing remitting
  • Diagnosis
  • Treatment
  • Newly diagnosed
  • Relapses
  • Symptoms
  • Blurred vision
  • Work and play
  • Secondary progressive
  • Which DMT
1

@WheelsRfun

Last reply

WheelsRfun

Taking positive steps

I have taken the first step in tackling my depression by getting referred to mental health clinic, my mood has been low since being told my MS dx'd in 2020 is Primary Progressive, have the secret hope that the next fall I have is the last one, that I don't get back up. But hopefully the help will b...
Edinburgh, United Kingdom
  • Mental health
  • Symptoms
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
  • Balance
  • Treatment
  • Work and play
  • Disclosure
4
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