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I’m just diagnosed primary progressive, to get another MRI soon which I believe tells me if it’s active or not, my neurologist has mentioned Ocrevus, has anyone had any experience with this? I didn’t sound great when my neurologist told me about it

I have had my diagnosis changed from RRMS to PPMS but my latest scan in April shows it is currently not active, therefore, can not start medication yet. I have lesions showing on my brain, neck and chest but I was unaware I had MS until a year ago so I’m concerned that when the MS becomes active, I ...

No new lesions at my last scan after two full treatments of Ocrevus

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...

I was diagnosed 5years ago with Ppms The other night I woke with severe pains in my diaphragm. I wasen’t sure what it was and thought maybe heart attack. Then I read about the ms hug. Anyone experience this?

I got meylena this month never had treatment before. So I feel very excited. My MRI doesn't show any new lessons in the brain but ons straight one at my spine. Why only there?

So today I was told that I likely have Primary Progressive MS. Immediately I started doing research and I am just so bummed. I was really hoping this thing wouldn’t take too much from me but that doesn’t seem to be likely now.

New here, I was diagnosed 3 1/2 years ago but when I think back I’m pretty sure I’ve had MS for at least 20 years. Last time I saw my neurologist she said I was at primary progressive and has kept me off of meds. I feel physically that I have progressed since I’ve last seen here…I go and see her nex...

I struggle every moment of every day and my case is so advanced that I’m close to needing a wheelchair. I was an athlete and a genius iQ of 140! Now I can’t remember the name of my best friend if I don’t sit and think for a second. I cannot jump hurdles anymore. I was an all state won first place i...

I recently got diagnosed with primary progressive MS. I know that any type is bad but when ever i talk to anyone about it they say "it's not that bad", "i have a friend with it"..... and it always turns out they have the remitting one. Does any one with the progressive kind, feel trapped? and doomed