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I’m Kate Green conducting a research project as part of my PhD at the University of Central Lancashire and looking at your experiences of living with MS and if this has impacted your relationship with fashion. As part of this research, I am conducting a questionnaire. This project has been approved ...

In the past week, I've had the MS add spasms and neuropathy to a sciatica I'd been wrangling in the past month. I used to be not sporty by any measure, but active. Keen in walking, 12k+ a day. Now I walk with a stick. It is difficult to come to terms with, but I am blessed with a great clinical tea...

I thought I knew #ChronicPain ( and I don't mean being unable to score some sticky Icky) Then, during a month long attack of #sciatica (not my first) I developed a fucked ankle (not a medical term) - presumably #MS #spasticity in the peroneal muscle (shin/calf - not per_I_neal!). Can't walk (got t...

Researchers from the University of California, Irvine, have found that taking N-acetylglucosamine, a simple sugar compound that can be used as a dietary supplement, has helped ease MS patients’ inflammation levels and has the potential to promote myelin repair. Michael Demetriou, MD, PhD, the lead...

After Mr Musk ruined Twitter, I’m here to find my old MS pals and gain some new ones. I was diagnosed six years ago, I’ve been on Ocrevus and now Kesimpta (which I don’t find helpful at all). I’m working on my PhD looking at foot and lower limb health in people with MS (I’m a Podiatrist). I’m here f...

Hello! Has anybody tried the Wahls protocol diet? Any success stories, or otherwise?! I have done a lot of research and reading and it all sounds very positive, I tried it for a month and I must admit I felt amazing. Although I don’t really have severe symptoms to notice a massive change, but the fe...

Hi everyone, My name is Alanna. I have RRMS and started a PhD at University College Cork investigating medication adherence in MS. I am looking for people living in the Republic of Ireland to participate in online/in person focus group discussions on medication adherence. In particular what makes ...

Tuesday Oct 17 Post 112 Warning- some readers may find this post offensive. Everything can be taken from a man but one thing: the last of the human freedoms—to choose one’s attitude in any given set of circumstances, to choose one’s own way. — VIKTOR FRANKL, MD, PHD This is the quote that started m...

Hello! I just joined the group! Thank you for having me! A little bit about myself: I was diagnosed with MS in 2017. I'm 50 and a father of 2 kids. From 2017 to 2019, I tried 2 DMDs for a week each and got nasty. Incontinence, fogginess, numbness in my extremities, fatigue, and I couldn't talk. Sinc...

I just kind of wanted a bit of a moan & vent to a supportive ear. I volunteer with St John ambulance and have been for years, however, yesterday, MS took over everything! the pain I was in was excruciating the amount of walking I had to do I couldn’t lift someone in a carry chair and had to get hel...