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I've been diagnosed with primary progressive MS I'm 45 was very active. I know it's a question everyone will ask. I have a young family and need to try and support them by continuing to work. Is it likely I'll work until I retire. Am I likely to walk without crutches?I can't walk very far anymore. R...

Hello all I apparently have PPMS I often feel alone reading posts and chat as most people talk about RRMS, feel quite alone sometimes, say hello if you have PPMS so we can talk about OUR MS and compare notes!

Primary progressive multiple sclerosis (PPMS) is one of the rarest of the four forms of multiple sclerosis (MS), making up approximately 10 percent to 20 percent of MS cases worldwide. Like other forms of multiple sclerosis, PPMS is an autoimmune disorder that affects the brain, spinal cord, and opt...

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...

Two weeks ago I've been diagnosed with PPMS, I was chosen for FenTrepid program what has scary side effects, I don't know would it help me😔 I'm not living now normal life.. Is there anyone with this diagnosis and using this treatment maybe?

So my neurologist thinks I have PPMS. Should I be worried?

Hello group, this is my first post. I was diagnosed with PPMS here in Greece almost 3 years. I just had my 4th Ocrevus dose. My walking is not that great and I’m tired a lot. Would love to hear advice from you. Thanks

Hi all hope all well, I finally got my diagnosis yesterday after seeing my neurologist, I have ppms which I wasn’t expecting, but feeling ok about it , it is what it is, why is there no treatment for this ms, or is there I don’t understand really, will my ms nurse explain this to me, my neurologist...

HI all ppms come on in to the ppms group say hi its getting to quiet in the group lol

Hi it’s hilary. My brother has been diagnosed with ms in November last year. Very bad system here nobody taking it seriously. He has continued to degress he has slowed down his work load. Now he went to Spain to get a second opinion which now shown to have gone from remitting. And relapsing to PPMS....