Shift.ms

31 May 2025 10:33Last reply 31 May 2025 19:40

PPMS

PPMS anyone? It seems to be a rare thing. Has anyone been given any medication for this ? Just wondering what lays ahead.

First posted on the Shift.ms app

7

@Dnorwood

29 Apr 2025 03:20

PPMS

I’m just wondering if anyone with PPMS has anything that they’ve tried. This is a new experience for me so I’m open to suggestions that’ll help.

First posted on the Shift.ms app

@Joannelouise

17 May 2023 13:53Last reply 20 Jan 2025 00:13

Ppms

So my neurologist thinks I have PPMS. Should I be worried?

5

@Lester

19 Mar 2024 09:39Last reply 3 Jul 2024 08:00

I've been diagnosed with primary progressive MS I'm 45 was very active. I know it's a question everyone will ask. I have a young family and need to try and support them by continuing to work. Is it likely I'll work until I retire. Am I likely to walk without crutches?I can't walk very far anymore. R...

Birmingham, United Kingdom

15

@loulou

16 Oct 2011 22:00Last reply 19 Mar 2024 12:46

PPMS

Hello all I apparently have PPMS I often feel alone reading posts and chat as most people talk about RRMS, feel quite alone sometimes, say hello if you have PPMS so we can talk about OUR MS and compare notes!

21

@watsoncraig

13 Jan 2024 17:01Last reply 10 Feb 2024 10:09

PPMS

Primary progressive multiple sclerosis (PPMS) is one of the rarest of the four forms of multiple sclerosis (MS), making up approximately 10 percent to 20 percent of MS cases worldwide. Like other forms of multiple sclerosis, PPMS is an autoimmune disorder that affects the brain, spinal cord, and opt...

Falkirk,GB

First posted on the Shift.ms app

8

@PeterW

9 Sep 2020 12:26Last reply 2 Nov 2023 19:20

PPMS

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...

25

@Mithria

23 Jan 2023 17:27Last reply 24 Sep 2023 13:43

PpMS

Two weeks ago I've been diagnosed with PPMS, I was chosen for FenTrepid program what has scary side effects, I don't know would it help me😔 I'm not living now normal life.. Is there anyone with this diagnosis and using this treatment maybe?

8

@Mavrikis

2 Apr 2023 10:18Last reply 23 Aug 2023 16:18

PPMS

Hello group, this is my first post. I was diagnosed with PPMS here in Greece almost 3 years. I just had my 4th Ocrevus dose. My walking is not that great and I’m tired a lot. Would love to hear advice from you. Thanks

29

@Joparrott1978

26 Apr 2023 08:00Last reply 16 May 2023 20:41

PPms

Hi all hope all well, I finally got my diagnosis yesterday after seeing my neurologist, I have ppms which I wasn’t expecting, but feeling ok about it , it is what it is, why is there no treatment for this ms, or is there I don’t understand really, will my ms nurse explain this to me, my neurologist...

42

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