We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2024 Shift.ms

@Lester 

Last reply

Lester

Ppms

I've been diagnosed with primary progressive MS I'm 45 was very active. I know it's a question everyone will ask. I have a young family and need to try and support them by continuing to work. Is it likely I'll work until I retire. Am I likely to walk without crutches?I can't walk very far anymore. Really getting me down. Then you hear people in there 80s still managing? I'll try anything thank you for listening
Birmingham, United Kingdom
15
@Criscross21
@Criscross21
 

I am listening and I hear you. I was diagnosed in 2005 when my son was 11. Naturally, I was stunned and worried a lot about my future and ability to keep working. Short answer, God will provide a way for you. This I do believe. For me, although it was uncomfortable and sometimes exhausting, I worked though 2020…which I consider a pretty good run. (With some less stressful modifications in the last few years—took less stressful work). Then, I knew one day that it was time. So I applied for disability benefits. I am still mobile, but can’t walk very far without paying the price in fatigue and achy muscle pain. My son is almost 30 and has his own life. But I still have the same worries about being functional for my husband. So, on the good side, MS doesn’t mean that you only have X amount of time before you are in a wheelchair. Staying as calm as possible is key. Prayer and music for me have helped me live in a positive zone no matter what my circumstances. I still get down, but then I have a mental rebound. I remember that the more important feature is what example I set for my son. One day he will face trials in his life, and I want to show him how to stay calm and trust God even through something like this lousy disease.

2
@Clary
@Clary
 

Getting on a DMT could slow progression. Looking forward can be scary. I have been told to take one day at a time. Definitely worth using any aids that are needed. All the best.

2