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Registered Company: 06000961

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@Joparrott1978 

Last reply

Joparrott1978

PPms

Hi all hope all well, I finally got my diagnosis yesterday after seeing my neurologist, I have ppms which I wasn’t expecting, but feeling ok about it , it is what it is, why is there no treatment for this ms, or is there I don’t understand really, will my ms nurse explain this to me, my neurologist...
  • Diagnosis
  • Primary progressive
  • Treatment
  • MRI
  • Symptoms
42

@Mavrikis 

Last reply

Mavrikis

PPMS

Hello group, this is my first post. I was diagnosed with PPMS here in Greece almost 3 years. I just had my 4th Ocrevus dose. My walking is not that great and I’m tired a lot. Would love to hear advice from you. Thanks
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Ocrevus
  • Exercise
  • Primary progressive
  • Treatment
  • Symptoms
  • Fatigue
29

@PeterW 

Last reply

PeterW

PPMS

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater...
  • Pain
  • Symptoms
  • Diagnosis
  • Primary progressive
  • Healthy living
  • Exercise
  • Balance
  • Newly diagnosed
  • Treatment
  • Work and play
25

@loulou 

Last reply

loulou

PPMS

Hello all I apparently have PPMS I often feel alone reading posts and chat as most people talk about RRMS, feel quite alone sometimes, say hello if you have PPMS so we can talk about OUR MS and compare notes!
  • Primary progressive
  • Diagnosis
  • Relapsing remitting
21

@Lester 

Last reply

Lester

Ppms

I've been diagnosed with primary progressive MS I'm 45 was very active. I know it's a question everyone will ask. I have a young family and need to try and support them by continuing to work. Is it likely I'll work until I retire. Am I likely to walk without crutches?I can't walk very far anymore. R...
Birmingham, United Kingdom
  • Work and play
  • Exercise
  • Healthy living
  • Diagnosis
  • Newly diagnosed
  • Family and children
  • Primary progressive
  • Work and Study
21

@Craig1 

Last reply

Craig1

PPMS

PPMS anyone? It seems to be a rare thing. Has anyone been given any medication for this ? Just wondering what lays ahead.
First posted on the Shift.ms app
18

@Ireneb74 

Last reply

Ireneb74

PPMs

Just been told I have Primary Progressive MS. wow!!! What should I be thinking/doing?
Edinburgh, United Kingdom
  • Primary progressive
  • Diagnosis
  • Disclosure
  • Symptoms
  • Treatment
13

@kantikalidas 

Last reply

kantikalidas

ppms

how is one coping with ppms? what medicine is working for this?
  • Primary progressive
  • Diagnosis
  • Treatment
  • Work and play
11

@Kaseylea 

EditedLast reply

Kaseylea

Ppms

I am only 37 with this horrid diagnosis. Is there anyone else here that is under 40 that was diagnosed with ppms?
First posted on the Shift.ms app
11

@markms 

Last reply

markms

PPMS

HI all ppms come on in to the ppms group say hi its getting to quiet in the group lol
  • Primary progressive
  • Diagnosis
  • Disclosure
  • Ocrevus
8
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