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Hey! Anyone diagnosed with PPMS at their 20s? What age and how are you?

Hi, new here. 👋🏻 Just looking to have conversations with others who understand what I’m going through on a daily basis. Anyway, I was dx in July 2018. By September 2018, I had started on Lemtrada. Only a few months after my 5 year DMT monitoring period concluded, my neurologist put me on Kesimpt...

Well, after 38 year, four consultant neurologists and three GPs, I'm cured! Yes, I don't have PPMS (or any other kind of MS for that matter). My latest consultant says that my brain is in excellent shape . . . .nothing to see. (But then there never was) My spine is clear of the lesions first seen...

Nit been on in a while due to lots of factors but here now. Just wanted to bounce this moment of deep thought off you. It occurs to me that being diagnosed with MS is one of the cruelest things going. No real medication, no real understanding of the disease, and not very much support networks. I ...

I had my annual check up with my consultant 2 hours ago at RUH Bath. Here is a brain dump of our discussion, while it's fresh in my mind, in case it helps anyone else with RRMS/SPMS who takes a T Cell based DMD: - Lymp count was 1.3 and right where they want it. - The very slow annual increase in...

Hi All , this is a question for anyone that is on ocrevous,to my knowledge this is the only signed off med for PPMS so looking to go on it. What was the criteria you had to meet to be on it? Does age or cost come into it? Does having active lessons affect it? Do I need to push the neurologis...

Hi everyone, long time MSer, 1st time poster. Here's my story. In January I transitioned from RRMS to SPMS. It sent me into shock. For a time I was inconsolable. However after a period of grieving, I picked myself up and got to work. I cut dairy, gluten, eggs, most carbs, refined sugars and nightsh...

Today I had an appointment with my neurologist, and I don’t know whether or not. It’s a positive or negative appointment, she is thinking I’m SPMS now, instead of PPMS. They also thought about switching to a medication called Zeposia…