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Anyone have a child shortly after PPMS? If so, how did pregnancy impact your symptoms? How mobile were you when you got pregnant?

Since my SPMS diagnosis less than two years ago, I’ve been seriously struggling with getting social interactions. I’ve always been an extremely social person but since MS I’ve become the complete opposite. And struggle with anxiety, chronic fatigue, depression, and mobility issues that make socia...

Hi everybody. I'm new here. I'm currently on tysabri but my consultant has advised me that should my MRI show any changes that he will be stopping my infusion and that there is no treatment available for SPMS. My question is are any of you with SPMS on any disease modifying treatment and if so which...

Day before yesterday magic happened,after 3years I've reached 12500 steps dayli walk. At the end was extremely hard, but I did it with PPMS, my Long distance walk reached it's peak. Hope that superpower will stay with me 😉

You often hear someone falling back on the 'but studies prove it' justification/defence/explanation. Beware! Not all studies are created equal. Ask to look at the paper if in doubt. MD (Prof Baker) gives a good breakdown of one such flawed MS study here: https://multiple-sclerosis-research.org/...

Great article from Gavin Giannoni on this topic. Applies to Kesimpta and rituximab as well. If you have Substack, you can read for free. https://open.substack.com/pub/gavingiovannoni/p/serious-infections-on-anti-cd20-therapies?r=2f3ys&utm_medium=ios Bottom line - there is a 7% risk of serious infe...

I am between a rock and a hard place at present, lets says that things have not been easy and I ended up doing some stupid things (harm - I am safe), but with all that is going on my counsellor said I'm not surprised with a diagnosis with PTSD, I had to tell I wasn't. That's now leading to all sorts...

How safe and thought through are they? Some drugs are given out with little thought for their wider effects on us. Another great post from the MS-Selfie. Gavin is super kind because if you can't afford a subscription just say and he'll let you follow for free. https://gavingiovannoni.substack.com...

Anyone ever try? Benefits? MS fatigue is SO different than the fatigue/tiredness I remember pre Dx. Boundaries are my go to currently but my MS fatigue doesn’t necessarily need physical activity to trigger. #PPMS https://multiplesclerosisnewstoday.com/news-posts/2024/09/27/acupuncture-shows-benefit...

Could we ever just get Some continued positive news? #PPMS https://www.biospace.com/drug-development/study-casts-doubt-on-benefit-of-anti-cd20-therapies-in-multiple-sclerosis