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@PeterW 

Last reply

PeterW

PPMS

I am new to this site and wondered how many people with PPMS used it? Really interested to hear other people's experience of PPMS. I was diagnosed three year ago after investigations into what was then a mild gait/drop foot problem. Over the past 18 months I have experienced significantly greater walking/balance difficulties and quite a lot of hip pain and stiffness in my upper leg/thigh. Quite a lot of confusion among the medics over what was causing the pain - was it the MS or a separate back problem. Great though the NHS is it is very poor and joining things up. I have been left, after an MRI showing no evidence of MS progression and inconclusive treatment on my back, with increased walking difficulties and constant pain with no real idea about what is causing it. As i said interested to hear other experiences.
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@Shannon_Heppner
@Shannon_Heppner
 

Hello , I have just joined this group .. after about 25 years with symptomatic escapades of MS ,I have finally been told I have MS. I am not shocked becuase all the symptoms I have had point to this disease. I have have over 24 hyper intensities on my brain and they have grown since my last MRI, 13 of years ago. I think I have learned how to manage this disease but since I have reached 60 years old it seems like the symptoms have erupted again. I have just turned 64 and was diagnosed two years ago with chronic fatigue without any more investigation as to why I was always tired. In the back of my mind I wondered if it was due to the lesions I have on my brain. Last August I had a high fever and was hurting all over, the inflammation stats were up , which happens with MS also. I had a numb face in February of this year and that is when the doctor I saw, ordered another MRI. that revealed the lesions I have had for over 20 years had grown. Thus the diagnoses of Possible MS. I feel as though I have learned to handle the disease and right now am able to function on most days. I pray that I will always have my legs so I walk mostly every day , becuase if I don’t I know I won’t be able to . I have a great attitude so that is in my favor

@watsoncraig
@watsoncraig
 

Welcome @peterw Was 5years ago the Neuro told me I had PPMS. Balance and gait were the first symptoms