#secondary progressive

11 Nov 2022 12:48Last reply 8 May 2025 04:38

Secondary Progressive

Hello everyone. Just joined! I have secondary progressive ms with multiple lesions on spinal cord. My ms is no longer active and the lesions are now described as ‘black holes’ where there is damage to axons. Bottom line is, there is no treatment now. Siponimod was a consideration at one point but it...

@Teddy123456

23 Feb 2025 14:57Last reply 7 May 2025 22:42

Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

First posted on the Shift.ms app

@Padthai1

22 Apr 2025 08:27Last reply 22 Apr 2025 16:41

Hi everyone, I’m new here so I’ll just tell you a bit about myself. I was struck down with secondary progressive ms in 2016 with no warning a numb big toe on Sunday and paralysis to my left side by the Thursday! Do any of you guys have a sibling or family member who has ms ? I’ve been told it isn’t hereditary, but my sister had it before me and very sadly she passed away in February 2021, to advanced ms and Covid pneumonitis 😢

First posted on the Shift.ms app

@rach

15 Apr 2025 18:34Last reply 15 Apr 2025 18:44

Hi All, I have the worst water infection I have had a few. I’m secondary progressive anyone else on here get them bad ?

First posted on the Shift.ms app

@stumpylumpy

27 Feb 2025 06:02Last reply 3 Apr 2025 20:38

I have had RRM MS since 2000 and was told I'm now secondary progressive since 2023. It feels like it's become quite aggressive again interfering with work. I live alone. I've pushed to have my consultant appointment moved forward. I've been left mostly by myself with no constructive support in place. I'm not on disease modifiers. I've done so well but let's say since moving services has been obismal. I'm always pushing forward and challenging myself, but feeling like I'm loosing grip on reality. I'm that exhausted with the MS is anyone same and any advice to help is appreciated

First posted on the Shift.ms app

@shellfromhell

7 Mar 2025 07:21Last reply 3 Apr 2025 20:30

New user with secondary progressive ms

Hi there I'm new to this site Currently having a flare up starting with loss of sensation and muscle weakness in my right abdomen which has slowly worked it's way down and spread down to my foot all right sided usual for my ms as I don't have relapse with secondary ms anyone else experiencing any...

, United Kingdom

First posted on the Shift.ms app

@Danielle924

8 Nov 2023 05:06 EditedLast reply 3 Nov 2024 05:57

Secondary progressive ms, is finally going downhill.

Am dealing with my disease progressing, it's very difficult. Charlie horses in my buttock, back of quads and calves. Trying to get physio but hard to get. Waiting game.... trying to do stretches but doesn't help. I have 2 friends to talk to but don't want to burden them. Legs just don't feel right, ...

Victoria, Canada

@MSDani

27 May 2024 21:28Last reply 28 May 2024 11:01

Secondary progressive

Hi! I'm new to this site. How have you dealt with the progression to secondary progressive MS?

Alameda, United States

@Daisy11

7 Mar 2024 18:57Last reply 1 Apr 2024 16:28

So my neurologist told me that I am now secondary progressive!

My neurologist has just told me that I am now secondary progressive with my MS! I feel lost, what can I do?

Shepton Mallet, United Kingdom

@Criscross21

18 Oct 2023 11:50Last reply 19 Oct 2023 20:36

Secondary Progressive - same old MS, right?

For those who are a couple decades into their diagnosis, how do you know when you are transitioning into the Secondary Progressive category? It sounds like SPMS involves less active inflammation and more side effects of prior MS damage. Is that basically correct? If you are willing to share, did ...

Akron, United States

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