Dear MS, Our story came out of the blue and you were found by accident. One minute i was having surgery for removal of endometriosis to then being bed bound with back pain and pins n needles down my right leg. I saw a pain management who did the MRI scans to be told its 99% MS with many lesions on my brain. We had a flare up in august time whilst waiting for bloods and a lumbar puncture. We were put on steriods for 5 days which was amazing BUT nobody talks about the withdrawals of the medication 😔. Fast forward to the lumbar puncture i was anxious and afraid but my nurse Emily was amazing and it was over before i knew it. 14th October came around soo quickly. I said in my neurologist room to be told the words “It is MS”, i felt my body wasn’t mine and didnt know how to feel nor what i should be doing. I get home to look at medication as i needed to pick on my own and i just broke down. The reality hit home and was mega overwhelming but we did it and chose kesempta. I had my first MS nurse appointment, i did chat gpt some questions and felt ready for the answers. Once the appointment was over i felt like i was in control. I had an honest conversation with my boss and broke down even more. He was soo supportive and just told me “let me know what i can do to support you and to make it easier at work”. To explain what MS is to someone who hasn’t got a clue was hard but i did it and worked part time. Fast forward to now, its been a rocky road but my new chapter starts next Thursday with medication and yea i feel nervous, emotional etc BUT i am ready. I won’t let MS define me or limit me to not living my life. I need to keep living but understand i have new limits and boundaries but that is ok. I will still find a partner when i am ready and would love to still be a mum. But all in good time. 2025 has broken me but 2026 i will be stronger and ready to face the new me. Love Angie