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Hello everyone. Just joined! I have secondary progressive ms with multiple lesions on spinal cord. My ms is no longer active and the lesions are now described as ‘black holes’ where there is damage to axons. Bottom line is, there is no treatment now. Siponimod was a consideration at one point but it...

Hi all, We've got Prof Alan Thompson from the Institute of Neurology in London lined up to respond to your questions about the transition from Relapsing Remitting MS to Secondary Progressive MS. Professor Thompson is a world leader when it comes to progressive MS and this is your chance to ask...

Am dealing with my disease progressing, it's very difficult. Charlie horses in my buttock, back of quads and calves. Trying to get physio but hard to get. Waiting game.... trying to do stretches but doesn't help. I have 2 friends to talk to but don't want to burden them. Legs just don't feel right, ...

Does anyone have this on here? I was diagnosed with it a few months back and I am just wondering, if you have it, how are you dealing with it?? Cheers

Hi everyone. I just wanted some advice on secondary progressive. I can't believe it I got diagnosed with ms - relapsing remitting 15 months ago,no treatments and then Friday I get told by the neurologist I have lots of lesions in my brain,brain stem and spine. I just feel devastated. I feel this cou...

Hi my mum has had MS for 40 + years and done well over the years. She’s in the secondary progressive stage and it seems she’s had an attack recently that has now affected her arms as well as her legs. I didn’t think you got attacks with SP ? I don’t know anyone who’s had MS as long as my mum

My neurologist has just told me that I am now secondary progressive with my MS! I feel lost, what can I do?

I was wondering at what age MS changes from relapsing/remitting to secondary progressive. I think that for the majority of MSers it is around 50 - or am I totally wrong and age does not play a role?

Hi - I've very new to MS and I would love to know if anyone out there can give me a better understanding of how and when it's possible to get Secondary Progressive MS? My initial understanding was that it is something someone with RRMS gets after a series of relapses and thus comes after a few year...