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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Lenz 

Last reply

Lenz

Good Afternoon Everyone my name is Lensey I have secondary progressive multiple sclerosis

First posted on the Shift.ms app
3

@sbodamer 

Last reply

sbodamer

DMT and aging

Good morning all. I was diagnosed a very long time ago... so long ago that there were no DMTs available. When they did come out my doctor felt that because I was stable I didn't need to take anything. Fast forward several years and I was given Rebif which I stayed on for many years. I switched doct...
First posted on the Shift.ms app
11

@Padthai1 

Last reply

Padthai1

Hi everyone, I’m new here so I’ll just tell you a bit about myself. I was struck down with secondary progressive ms in 2016 with no warning a numb big toe on Sunday and paralysis to my left side by the Thursday! Do any of you guys have a sibling or family member who has ms ? I’ve been told it isn’t hereditary, but my sister had it before me and very sadly she passed away in February 2021, to advanced ms and Covid pneumonitis 😢

First posted on the Shift.ms app
44

@rach 

Last reply

rach

Hi All, I have the worst water infection I have had a few. I’m secondary progressive anyone else on here get them bad ?

First posted on the Shift.ms app
2

@tlmodglin 

Last reply

tlmodglin

Vision with ms

I was told I have secondary progressive ms. After hearing my dr. Say I have ms. He tells me to research online about it. As a woman we know when it's not a mental issue. But we get looked over. It frustrates me. I was in the hospital for losing my speech and my whole right side, like a stroke. I reg...
Maricopa, United States
5

@Amacy96 

Last reply

Amacy96

Clarification

Hi, I’m new here it’s great to see how supportive everyone is. I was initially diagnosed why RRMS years ago but i guess I also have secondary progressive. So does that mean I have both? Or did it mutate to become SPMS? If anyone else here has this experience can you please help me understand. Tha...
First posted on the Shift.ms app
5

@shellfromhell 

Last reply

shellfromhell

New user with secondary progressive ms

Hi there I'm new to this site Currently having a flare up starting with loss of sensation and muscle weakness in my right abdomen which has slowly worked it's way down and spread down to my foot all right sided usual for my ms as I don't have relapse with secondary ms anyone else experiencing any...
, United Kingdom
First posted on the Shift.ms app
9

@stumpylumpy 

Last reply

stumpylumpy

I have had RRM MS since 2000 and was told I'm now secondary progressive since 2023. It feels like it's become quite aggressive again interfering with work. I live alone. I've pushed to have my consultant appointment moved forward. I've been left mostly by myself with no constructive support in place. I'm not on disease modifiers. I've done so well but let's say since moving services has been obismal. I'm always pushing forward and challenging myself, but feeling like I'm loosing grip on reality. I'm that exhausted with the MS is anyone same and any advice to help is appreciated

First posted on the Shift.ms app
5

@Teddy123456 

Last reply

Teddy123456

Hi I have only just been diagnosed with secondary progressive ms and wanted to know how you all get on with pain and problems with walking as my legs are alway so stiff ?

First posted on the Shift.ms app
5

@jumpingJacks 

EditedLast reply

jumpingJacks

Just Me Thinking Out Loud 🤔

For years, MS has been classified into RRMS, SPMS, and PPMS. But what if we looked at it differently? Would proposing a classification system based on lesion location be better to predict the disability risk and personalize treatment. Brain-Dominant MS (BDMS) – More cognitive and fatigue symptoms ...
First posted on the Shift.ms app
9
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