#secondary-progressive

Secondary progressive multple sclerosis (SPMS) is progressive stage of MS which can comes after living with relapsing remitting MS. Speak to members of our community about this transition or watch our 'MS Reporters' videos with world experts sharing their advice.

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@LesleyT

3 Jul 2025 10:53Last reply 3 Jul 2025 13:59

Wake up with headache and shaking inside but not outside. Anybody else like this.

I’m feeling down as my legs are heavier and I just now want to sit and do nothing as my legs are heavy and I get the MS hug at the first sign of tiredness. Also, I’ve been told I’ve now got secondary progressive MS and am going through tests to see if I can take Mayzent ( simonipod). Any one else ta...

First posted on the Shift.ms app

@Lenz

30 May 2025 14:06Last reply 4 Jun 2025 16:51

Good Afternoon Everyone my name is Lensey I have secondary progressive multiple sclerosis

First posted on the Shift.ms app

@sbodamer

10 May 2025 17:57Last reply 11 May 2025 23:57

DMT and aging

Good morning all. I was diagnosed a very long time ago... so long ago that there were no DMTs available. When they did come out my doctor felt that because I was stable I didn't need to take anything. Fast forward several years and I was given Rebif which I stayed on for many years. I switched doct...

First posted on the Shift.ms app

@Padthai1

22 Apr 2025 08:27Last reply 22 Apr 2025 16:41

Hi everyone, I’m new here so I’ll just tell you a bit about myself. I was struck down with secondary progressive ms in 2016 with no warning a numb big toe on Sunday and paralysis to my left side by the Thursday! Do any of you guys have a sibling or family member who has ms ? I’ve been told it isn’t hereditary, but my sister had it before me and very sadly she passed away in February 2021, to advanced ms and Covid pneumonitis 😢

First posted on the Shift.ms app

@rach

15 Apr 2025 18:34Last reply 15 Apr 2025 18:44

Hi All, I have the worst water infection I have had a few. I’m secondary progressive anyone else on here get them bad ?

First posted on the Shift.ms app

@tlmodglin

28 Mar 2025 04:35Last reply 28 Mar 2025 22:13

Vision with ms

I was told I have secondary progressive ms. After hearing my dr. Say I have ms. He tells me to research online about it. As a woman we know when it's not a mental issue. But we get looked over. It frustrates me. I was in the hospital for losing my speech and my whole right side, like a stroke. I reg...

Maricopa, United States

@Amacy96

21 Mar 2025 02:14Last reply 21 Mar 2025 10:11

Clarification

Hi, I’m new here it’s great to see how supportive everyone is. I was initially diagnosed why RRMS years ago but i guess I also have secondary progressive. So does that mean I have both? Or did it mutate to become SPMS? If anyone else here has this experience can you please help me understand. Tha...

First posted on the Shift.ms app

@shellfromhell

7 Mar 2025 07:21Last reply 3 Apr 2025 20:30

New user with secondary progressive ms

Hi there I'm new to this site Currently having a flare up starting with loss of sensation and muscle weakness in my right abdomen which has slowly worked it's way down and spread down to my foot all right sided usual for my ms as I don't have relapse with secondary ms anyone else experiencing any...

, United Kingdom

First posted on the Shift.ms app

@stumpylumpy

27 Feb 2025 06:02Last reply 3 Apr 2025 20:38