@Lushyย 

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Lushy

Secondary progressive ms

Hi everyone. I just wanted some advice on secondary progressive. I can't believe it I got diagnosed with ms - relapsing remitting 15 months ago,no treatments and then Friday I get told by the neurologist I have lots of lesions in my brain,brain stem and spine. I just feel devastated. I feel this could of been prevented happening so quickly if i had treatment when got diagnosed. Just wanted to know how do you cope with this stage? Thankyou Anna ๐Ÿ˜ญ
@MamaWals

Iโ€™m confused. Weโ€™re you diagnosed with secondary progressive? You can have lots of lesions with very active RRMS.

@grandma

@lushy things have moved fast for you. I'm surprised you weren't offered a DMT 15 months ago, though as a rule you will be offered a stronger one if you've been dxd with spms. Mine has become spms (they think) after 23 years, but they did tell me that would happen after 10-15 so not complaining, I look at it that I had 8 years extra. Like all ms dxd, it's not the end of the world, you just have to tweak things to suit abs you can pretty much carry on as usual, I'm 62 , still swim, caravan, go shopping etc., so there is still life, it's what you make it.๐Ÿ‘๐Ÿ˜œโœŒ๐Ÿผ