Looking for
something specific?

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...

I’m just diagnosed primary progressive, to get another MRI soon which I believe tells me if it’s active or not, my neurologist has mentioned Ocrevus, has anyone had any experience with this? I didn’t sound great when my neurologist told me about it

Does anyone experience heaviness in legs or foot drop?

I recently got diagnosed with primary progressive MS. I know that any type is bad but when ever i talk to anyone about it they say "it's not that bad", "i have a friend with it"..... and it always turns out they have the remitting one. Does any one with the progressive kind, feel trapped? and doomed

I was diagnosed 5years ago with Ppms The other night I woke with severe pains in my diaphragm. I wasen’t sure what it was and thought maybe heart attack. Then I read about the ms hug. Anyone experience this?

So today I was told that I likely have Primary Progressive MS. Immediately I started doing research and I am just so bummed. I was really hoping this thing wouldn’t take too much from me but that doesn’t seem to be likely now.

Last year, when I was diagnosed with multiple sclerosis, my world ended. I have heard stories of how autoimmune disorders ruin lives, so I believed that's what would happen to me. Over the past year, I've read more literature, and read some success stories. One story that I've read was a book wr...