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Recent activityNewest posts

@jochad1 

3 Mar 2025 16:49Last reply 4 Mar 2025 14:51

jochad1

Ocrevus post infusion

How does everyone feel after their infusion? I always feel horrendous, frankly. Like I’ve been in a car crash, fatigue, pain, gastric issues, headaches. Anyone else? Been on it four years so no newbie.
First posted on the Shift.ms app
18

@Laura94 

21 Jul 2024 10:43

Laura94

Post-infusion infection - advice needed!

Hey all, I’ve been on Ocrevus for almost five years now with almost no problems - until this year. I had my most recent treatment in February, and since March I’ve been struggling with persistent UTIs, which have spread to my kidneys and uterus, and more recently had to be hospitalised for pelvic in...
London, United Kingdom
  • Treatment
  • Ocrevus
  • Diagnosis
  • Symptoms

@Bigzbe34 

18 Apr 2024 22:29Last reply 19 Apr 2024 10:42

Bigzbe34

One day post infusion

Slept so hard when I got home from my infusion. Took the day after off just in case I need more rest which I do but I’m looking forward to feeling better I’m thankful for this page and the people on it when I’m feeling depressed and alone it’s nice knowing I’m not alone. I am trying to feed the wolf...
Odessa, TX, USA
  • Treatment
  • Symptoms
4

@Ancratyne 

8 Apr 2023 03:06Last reply 9 Oct 2023 18:44

Ancratyne

Ocrevus post-infusion headache

Does anyone else that's on Ocrevus deal with this? Any advice?
3

@Charley14 

13 Jan 2024 17:25Last reply 14 Jan 2024 08:46

Charley14

Ocrevus people ❤️

How long did you post infusion reactions last ? ( fatigue headache and body aches ) this is my first time so am really wanting to make sure I stay well for the next 2 weeks so I can take 2nd 300mg. Dreading going out and school run in the cold 😫
Norwich, United Kingdom
  • Symptoms
  • Fatigue
  • Hot and cold
  • Healthy living
  • Work and Study
  • Exercise
  • Treatment
  • Work and play
  • Ocrevus
2

@Duggles2000 

2 Dec 2023 00:40 EditedLast reply 3 Dec 2023 22:12

Duggles2000

1st Ocrevus infusion

I had my first Ocrevus infusion on 28th November. All went well and no reactions other than a bit of a sore throat on the day which went away. I'm now day 3 post infusion and the sore throat is back with a bit of ear pain and feels like I have a cough coming. Has anyone else experienced similar. Do ...
Wolverhampton, UK
  • Pain
  • Symptoms
  • Treatment
  • Tysabri
  • Relapsing remitting
  • Diagnosis
  • Steroids
  • Healthy living
11

@tej1 

16 Sep 2023 08:34Last reply 16 Sep 2023 22:52

tej1

Post Ocrevus treatment

I had my first Ocrevus half dose on Thursday and was fine during the infusion and for a few hours after. That evening, I had a headache and for the next morning also. Now, I have a cold. Is this all normal? Has anyone else felt the same? I wish I had been given more info post infusion.
London, United Kingdom
  • Ocrevus
  • Treatment
  • Symptoms
  • Hot and cold
  • Tysabri
3
Deleted

@tej1 

16 Sep 2023 08:32 Edited

tej1

Post Ocrevus

I had my first Ocrevus half dose on Thursday and was fine during the infusion and for a few hours after. That evening, I had a headache and for the next morning also. Now, I have a cold. Is this all normal? I wish I had been given more info post infusion.
London, United Kingdom
  • Ocrevus
  • Treatment
  • Symptoms
  • Hot and cold
  • Tysabri

@jforster 

21 Jun 2022 10:03Last reply 14 Sep 2023 17:11

jforster

Ocrevus to Kesimpta

Hi everyone, I spoke to my neurologist today and I am swapping to Kesimpta in July from Ocrevus after 2.5 years. I am swapping because Ocrevus leaves me feeling so wiped out pre and post infusion. I’ve also been getting chest pain and I think it has stemmed from Ocrevus. I also got infusion reaction...
Melbourne, Australia
  • Ocrevus
  • Treatment
  • Pain
  • Symptoms
  • MRI
  • Relapsing remitting
  • Tysabri
12

@Fayebellina 

19 Nov 2022 22:04Last reply 5 Dec 2022 11:57

Fayebellina

First Half Dose Ocrevus Side Effects

Hey everyone, had my first half dose #Ocrevus 3 days ago and I had some reactions during. Scratchy throat and widening throat (weirdly 😂), sneezing, watery eyes, runny nose. Nothing that wasn’t fixed by an extra dose of antihistamines. Thing is, I’m absolutely exhausted. Head feels really thick and...
  • Ocrevus
  • Treatment
  • Symptoms
  • Blurred vision
  • Tecfidera
  • Numbness
10
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