How does everyone feel after their infusion? I always feel horrendous, frankly. Like I’ve been in a car crash, fatigue, pain, gastric issues, headaches. Anyone else? Been on it four years so no newbie.
Slept so hard when I got home from my infusion. Took the day after off just in case I need more rest which I do but I’m looking forward to feeling better I’m thankful for this page and the people on it when I’m feeling depressed and alone it’s nice knowing I’m not alone. I am trying to feed the wolf...
Hey all,
I’ve been on Ocrevus for almost five years now with almost no problems - until this year. I had my most recent treatment in February, and since March I’ve been struggling with persistent UTIs, which have spread to my kidneys and uterus, and more recently had to be hospitalised for pelvic in...
I know, I know. I should be used to this. It's something I always have to do a couple months after my infusion. However, I still get nervous....I am such a baby over this
Just posting my experience of my first half doses of Ocrevus, as I found reading other people’s experience really helpful when I was deciding treatment!
The infusions went smoothly! Once the cannula is in, you have a dose of steroids and antihistamines which can make you feel sleepy. The Ocrevus in...
Hi everyone, I spoke to my neurologist today and I am swapping to Kesimpta in July from Ocrevus after 2.5 years. I am swapping because Ocrevus leaves me feeling so wiped out pre and post infusion. I’ve also been getting chest pain and I think it has stemmed from Ocrevus. I also got infusion reaction...
I had my first Ocrevus infusion on 28th November. All went well and no reactions other than a bit of a sore throat on the day which went away. I'm now day 3 post infusion and the sore throat is back with a bit of ear pain and feels like I have a cough coming. Has anyone else experienced similar. Do ...
Hey everyone, had my first half dose #Ocrevus 3 days ago and I had some reactions during. Scratchy throat and widening throat (weirdly 😂), sneezing, watery eyes, runny nose. Nothing that wasn’t fixed by an extra dose of antihistamines. Thing is, I’m absolutely exhausted. Head feels really thick and...
I was diagnosed a few months and was very fortunate to be offered Lemtrada.
I had my first attack two years ago which came out of the blue. The right side of my body was affected, I couldn't move my arm, that side of my face, my leg was a bit wonky and my speech was very slurred and I also had a s...