Post-infusion infection - advice needed!
Hey all,
I’ve been on Ocrevus for almost five years now with almost no problems - until this year. I had my most recent treatment in February, and since March I’ve been struggling with persistent UTIs, which have spread to my kidneys and uterus, and more recently had to be hospitalised for pelvic inflammatory disease.
It’s been a pretty tough time all round, but I’ve just learned that the urine screen they did on the day of my last infusion was positive for high levels of E.coli. I wasn’t notified of this and nor was my GP - it seems like common sense to not give people immunosuppressants when they have an active infection, or at least treat it immediately, not just sit on the information.
Has anyone else experienced anything similar? Or have any advice on how to raise this as an issue with my neurologist/the hospital? I’ve been very unwell for months and can’t help but feel like this could have been avoided.