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Evening folks, Sorry its been a while since I last posted... Has anyone given Cranio-sacral Therapy a shot? I decided to give it a go. Its a very gentle massage - and no meds/drugs so I figured at worst case it was an hour of relaxation.... The after effects were suprising, in that my walking w...

Hey everyone! 🌟 Just wanted to share a little bit about my journey with MS. Despite the challenges, I've come to see it as my very own superpower. It's a reminder that staying positive and resilient can truly make a difference. Let's keep pushing forward, supporting each other, and spreading hope. ...

Hey all Iv just been told I may have to start self catheterisation. I’m freaking out. Please send positive experiences. I’m literally crying in the hospital car park.

Hello all, I’ve had numb feet since a relapse last year. Any tips for helping with this? It’s affecting my balance alongside hyperreflexia (wobbly when going from sitting to standing) Any help much appreciated and sending all the positive vibes to all you MS warriors

Hi everyone, I’m so glad to have a place to come I’m only diagnosed a few weeks very nervous, my symptoms r ms hug which is nothing like a hug I have had , numbness in my hands torso and right leg. I also have ulcerative colitis so they have to find a medication to do both , the one they have picke...

It's funny how quickly my mind goes to "well it was fun while it lasted. Time to end things." In general I'm a very positive person and people compliment me a lot for being so positive, you always hear wiser (usually old )people say "it could be worse", and between that and MS, I've gotten through...

A couple months ago I tested highly positive for gluten antibodies in a blood sample. Biopsies confirm I have coeliac. I put it to my MS neurologist that my ataxia, positive lumbar puncture and brain lesions are actually symptoms of gluten intolerance (by reading scientific papers). He humoured me b...

So I am currently on Tysabri but I have to change due to coming up to my 2 years on it and being JCV positive. My two options are Ocrevus and Kesimpta. I know they both work in a very similar way but does anyone have any advice around side effects for both etc? My nurse told me Ocrevus has an incr...

After diagnosis last January and my neurologist not perpepared to identify my sub type although he says it more than likely PPMS. I've decided to take the bull by horns and go for HSCT in Mexico in November. EDSS currently 3.5. I know Dr Burt and NHS health experts do not recommend HSCT for PPMS a...