#positives of ms - Shift.ms

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Covid… again

I tested positive for Covid on Saturday and haven’t been able to get out of bed since. I’ve just switched from Tysabri to Ocrevus (3 weeks ago) and wondered if that might have something to do with the increase hit? It was after having covid I found out I have MS so I’ve never been a fan 😔

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@jumpingJacks

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If Today Was World No filter Day, what would you post about MS

Since the mental health bandwagon rolled in, MS awareness has turned into complete and utter bullshit. It’s all the same empowering, resilient, mindset bullshit and actually damages MS awareness. There’s nothing empowering about dragging your leg like dead weight or wondering if you’ll make it to t...

First posted on the Shift.ms app

@Jimmy369VT

Hello everybody, I am Jimmy. I just found this group and a little bit about me. Both biological parents were diagnosed with MS mom in her 20s. My dad and his 40s I have learned to watch for signs and symptoms, but I put them off thinking it can’t be happening to me it skips a generation And then I found out my dad‘s little sister was diagnosed and a cousin that is only two years older than me was diagnosed and I decided my wife being a nurse I might as well not put it off anymore because my body was getting worse. I have lost Feeling in both my feet. My limbs go numb for no reason I cannot stand or sit for long periods of time my bladder does not function the way it should. My balance isn’t the greatest anymore. I am pretty much going through all the same problems. My parents went through And I know I should listen to the neurologist and do everything but it just feels like he already knows he just wants to make sure that it isn’t a disease that mimics MS I know I just have to be patient and do everything but my body is in so much pain sometimes and I can’t sleep But then when I am able to walk around, we have sand spurs here in Florida. I can walk across my yard and my dog can feel them more than I can when they get stuck to the bottom of our feet and when I tell doctors and neurologist that both of my parents Suffered MS, their eyes light up like I’m assigning it to experiment and tell me that it is rare to hear that the neurologist I have studies MS and he says this was the first time he has ever heard of both biological parents having MS. He even showed me studies And it’s either a grandma or a grandpa Paw or a mom or a dad and then I was told I have a 12 to 15% more likely chance of having MS at first I was frustrated and then I was just depressed and then I realized if my parents could deal with it for so long and keep their positive attitude even though their bodies were breaking down And rejecting the things they wanted to do. I have decided that I will listen to the doctors but with everything else going on with me some of the medicines for it I can’t even take because of heart condition conditions or colitis. I appreciate being accepted to the group and I just wish there was something like this for my parents back in the 80s and 90s

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@Tehya1026

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Diagnosis drama

Hi I'm new here and looking for info, advice, and any help possible. Been dealing with the autoimmune battle for over 20 years. First they sent me to a Rheumatologist and he thought I had Lupus but then decided a year later that I didnt have enough positive markers for it. After years of telling my...

First posted on the Shift.ms app

@ballstoms

DOES THIS POEM CONNECT WITH HOW YOU FEEL?

I always try to look for the positives when it comes to MS, but occasionally I slip into a dark place, like when I wrote this poem that was originally published on the MS Society website. I was worried about my steady deterioration and thought I may be progressing from RRMS to Secondary (my neuro di...

Contin, United Kingdom

@ballstoms

MS Conscript

My first post, so let me introduce myself, in case it helps someone who’s closer to the beginning of this difficult journey. I’ve had RRMS for over 20 years and been on DMTs for around 15. I’m still walking and working, but get tired easily, and I still drive, just with a blue badge in the car. So,...

Wakefield, United Kingdom

@jumpingJacks

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28 Days Later, 28 Years Later: The MS Edition

They didn’t catch a virus. They caught MS. It started with a tingle. Then came the mysterious fatigue no one took seriously. By 28 days in, society hadn’t collapsed but a concerning number of people were falling over for no reason, losing feeling in random limbs, and quietly Googling “why does my e...

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@rosiehatton

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Methylene Blue

I’m really interested in hearing your thoughts and experiences of using Methylene Blue, if you do. I use HBOT (hyperbaric oxygen therapy) and I’ve heard MB being talked about positively by some of the HBOT experts I follow on YouTube albeit they’re not people with MS. So it’s made me curious to find...

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@AlexanderM

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Scared of disease progression even with DMT (long read)

I’m relatively new to this whole MS thing having gotten recently diagnosed and I haven’t had enough time to process this given that I’ve been distracting myself with work so much. To my detriment at times. My diagnosis has been a bit weird and quite dramatic but I’ll just vent here and hopefully s...

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@gtAtlantisSoul

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Walking through hell

Hello to you all , i’m not sure exactly where to start some of you may be in some really positive places and some of you may be in some really dark places with the diagnosis of Ms. I’ve been on one hell of a journey and come out the other side. If I can offer any help and guidance spiritually, I’ll...

First posted on the Shift.ms app

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