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Diagnosed in July 2024 following nystagmus. But for at least 5 years I’ve been getting a pain between my shoulder blades / upper back that’s a bit like a punch/ stab. It normally happens when I’ve been bent forwards and then it hits as I try to get upright again. Today it hit really badly and I fe...

Good afternoon. Hope everyone is feeling o.k. with the storm Bert. I have accepted everything that MS has thrown at us and this one was coming. I was registered visually impaired in July 2021. Now to be re registered as severely sight impaired isn't a massive shock, still dinks my confidence! Hey ho...

So I had to inform DVLA of my diagnosis as instructed by neuro - just to make sure I didn't get fined should something happen later. DVLA were really pushing that I surrender my Class 2 (hgv & bus) entitlement - which I did because, who cares right? But now they're going to write to neuro and my G...

Anyone else get random bouts of lightheadedness??? I’m trying to understand if it’s my MS or still a lingering result of having a really bad chesty head cold a few weeks ago 🤷🏾‍♀️ I’ve had vertigo and the vertigo like feeling caused by nystagmus before and it just gives me the fear that one of t...

I'm not 100% sure I have MS... I had VNG done and it's abnormal. My symptoms are dizziness and recently diagnosed with nystagmus and left sided weakness which I heard could be a sign of MS. I have to get a brain scan and see a neurologist. I'm scared and feel alone, I haven't even told my family yet...

Hey :) In the midst of a relapse. Nystagmus & vertigo being the tell tale symptoms this time round. I’ve suffered with optic neuritis. Though my vision has never been the same, it did improve and I became accustomed to a change in sight. Now nystagmus 🤯😵‍💫 just curious, those who’ve experience...

I read A LOT in spite of dealing with MS-caused nystagmus. I recommend reading to all of my clients who enjoy reading and want to learn more about the troubles they are experiencing. While some of my reading is, well, dry and pedantic (Existential Therapy in the Western World, for example), I have f...

Has anyone tried the drug Gavapentin to ease the symptoms of Nystagmus? Was it successful?

Double vision, nystagmus .Still recovering from a broken ankle it was horrendous. Vision is more or less back, nystagmus when tired and first thing In the morning. And today whilst using my hand controls for the car some mild loss of sensation to my left side. Balance..shocking!!!Does anyone else ha...