Shift.ms

17 May 2025 08:47Last reply 17 May 2025 17:36

Does anyone have nystagmus?

21 Jan 2025 02:09 EditedLast reply 22 Jan 2025 19:37

1. Burning or Uncomfortable Skin Sensations Medical Term: Dysesthesia Definition: Painful or uncomfortable abnormal sensations, such as burning, stinging, or crawling, triggered by a normally non-painful stimulus or occurring without any stimulus at all. Examples: 1. A burning sensation on the a...

@joao

14 Jan 2025 00:44 EditedLast reply 15 Jan 2025 21:39

Dizziness/vertigo?

How do you all usually feel these? Recently I started having what I’d call nystagmus episodes where my eyes go horizontally like crazy (fixable by fixating on my finger pretty quickly) or even today when I was on an appointment with my neuro just the act of laying back on the room bed thing was eno...

First posted on the Shift.ms app

@janeyh

7 Dec 2024 20:34Last reply 8 Dec 2024 07:27

Pain between shoulder blades. MS Hug?

Diagnosed in July 2024 following nystagmus. But for at least 5 years I’ve been getting a pain between my shoulder blades / upper back that’s a bit like a punch/ stab. It normally happens when I’ve been bent forwards and then it hits as I try to get upright again. Today it hit really badly and I fe...

First posted on the Shift.ms app

@kez1978

24 Nov 2024 13:33Last reply 24 Nov 2024 23:24

RRMS, ACQUIRED NYSTAGMUS, SEVERELY SIGHT IMPAIRED (BLIND)

Good afternoon. Hope everyone is feeling o.k. with the storm Bert. I have accepted everything that MS has thrown at us and this one was coming. I was registered visually impaired in July 2021. Now to be re registered as severely sight impaired isn't a massive shock, still dinks my confidence! Hey ho...

First posted on the Shift.ms app

@allytech

16 Oct 2024 15:38Last reply 17 Oct 2024 19:20

Anyone lost their car licence in UK due to MS

So I had to inform DVLA of my diagnosis as instructed by neuro - just to make sure I didn't get fined should something happen later. DVLA were really pushing that I surrender my Class 2 (hgv & bus) entitlement - which I did because, who cares right? But now they're going to write to neuro and my G...

First posted on the Shift.ms app

@Deedeexx

23 Jul 2024 16:53Last reply 24 Jul 2024 05:08

Hi there my 16 year old has just been diagnosed with RRMS unfortunately due to the start of his journey he started experiencing eye problems which turned out to be nystagmus, he has just had his first lot of ocrevus and his eyes have got worse which is said to be normal has anyone else had this problem

First posted on the Shift.ms app

@choco_daiquiri

25 Nov 2023 07:43Last reply 25 Nov 2023 07:55

Lightheadedness

Anyone else get random bouts of lightheadedness??? I’m trying to understand if it’s my MS or still a lingering result of having a really bad chesty head cold a few weeks ago 🤷🏾‍♀️ I’ve had vertigo and the vertigo like feeling caused by nystagmus before and it just gives me the fear that one of t...

Edinburgh, UK

@Queenofmisery

6 Sep 2023 07:26Last reply 9 Sep 2023 03:13

I'm new

I'm not 100% sure I have MS... I had VNG done and it's abnormal. My symptoms are dizziness and recently diagnosed with nystagmus and left sided weakness which I heard could be a sign of MS. I have to get a brain scan and see a neurologist. I'm scared and feel alone, I haven't even told my family yet...

Warrenton, United States

@StaceyCain91

1 Sep 2023 16:15Last reply 7 Sep 2023 06:06

Nystagmus

Hey :) In the midst of a relapse. Nystagmus & vertigo being the tell tale symptoms this time round. I’ve suffered with optic neuritis. Though my vision has never been the same, it did improve and I became accustomed to a change in sight. Now nystagmus 🤯😵‍💫 just curious, those who’ve experience...

Chester, UK

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