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Recent activityNewest posts

@Huda11 

Last reply

Huda11

Nystagmus

Hi everyone! I had a relapse recently that caused Nystagmus in my eyes, if any one had this before I would appreciate if you can share tips on how to cope with it 🙏🏻
First posted on the Shift.ms app
4

@show 

Last reply

show

Nystagmus , has anyone gottten this with MS ? It happened to me I’ve had it for 3 weeks now .

First posted on the Shift.ms app
11

@MrRuinedbyMS 

Last reply

MrRuinedbyMS

Does anyone have nystagmus?

First posted on the Shift.ms app
7

@jumpingJacks 

EditedLast reply

jumpingJacks

50 MS symptoms explained.

1. Burning or Uncomfortable Skin Sensations Medical Term: Dysesthesia Definition: Painful or uncomfortable abnormal sensations, such as burning, stinging, or crawling, triggered by a normally non-painful stimulus or occurring without any stimulus at all. Examples: 1. A burning sensation on the a...
11

@joao 

EditedLast reply

joao

Dizziness/vertigo?

How do you all usually feel these? Recently I started having what I’d call nystagmus episodes where my eyes go horizontally like crazy (fixable by fixating on my finger pretty quickly) or even today when I was on an appointment with my neuro just the act of laying back on the room bed thing was eno...
First posted on the Shift.ms app
6

@janeyh 

Last reply

janeyh

Pain between shoulder blades. MS Hug?

Diagnosed in July 2024 following nystagmus. But for at least 5 years I’ve been getting a pain between my shoulder blades / upper back that’s a bit like a punch/ stab. It normally happens when I’ve been bent forwards and then it hits as I try to get upright again. Today it hit really badly and I fe...
First posted on the Shift.ms app
10

@kez1978 

Last reply

kez1978

RRMS, ACQUIRED NYSTAGMUS, SEVERELY SIGHT IMPAIRED (BLIND)

Good afternoon. Hope everyone is feeling o.k. with the storm Bert. I have accepted everything that MS has thrown at us and this one was coming. I was registered visually impaired in July 2021. Now to be re registered as severely sight impaired isn't a massive shock, still dinks my confidence! Hey ho...
First posted on the Shift.ms app
4

@allytech 

Last reply

allytech

Anyone lost their car licence in UK due to MS

So I had to inform DVLA of my diagnosis as instructed by neuro - just to make sure I didn't get fined should something happen later. DVLA were really pushing that I surrender my Class 2 (hgv & bus) entitlement - which I did because, who cares right? But now they're going to write to neuro and my G...
First posted on the Shift.ms app
11

@Deedeexx 

Last reply

Deedeexx

Hi there my 16 year old has just been diagnosed with RRMS unfortunately due to the start of his journey he started experiencing eye problems which turned out to be nystagmus, he has just had his first lot of ocrevus and his eyes have got worse which is said to be normal has anyone else had this problem

First posted on the Shift.ms app
2

@choco_daiquiri 

Last reply

choco_daiquiri

Lightheadedness

Anyone else get random bouts of lightheadedness??? I’m trying to understand if it’s my MS or still a lingering result of having a really bad chesty head cold a few weeks ago 🤷🏾‍♀️ I’ve had vertigo and the vertigo like feeling caused by nystagmus before and it just gives me the fear that one of t...
Edinburgh, UK
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2
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