@Hi there my 16 year old has just been diagnosed with RRMS unfortunately due to the start of his journey he started experiencing eye problems which turned out to be nystagmus, he has just had his first lot of ocrevus and his eyes have got worse which is said to be normal has anyone else had this problem on Shift.ms

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@Deedeexx

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Hi there my 16 year old has just been diagnosed with RRMS unfortunately due to the start of his journey he started experiencing eye problems which turned out to be nystagmus, he has just had his first lot of ocrevus and his eyes have got worse which is said to be normal has anyone else had this problem

First posted on the Shift.ms app

@Laure

https://youtu.be/CNeSLhjhlxc?si=i52VYAHA4pb-fZ_i when it comes to eyes, bring your kids to hospital

23 Jul 2024 23:50

@mellowmedusa

Hi Deedeex, sorry your son is having to deal with this so young. It must cause you so much anxiety too. The Ocrevus is unlikely to cause nystagmus or make it worse - that’s not one of the side effects. But it is a direct symptom of MS so this could be a continuing relapse. Ocrevus works well to reduce relapses but it doesn’t have its full effect for 12 weeks, possibly even six months. Hope it starts to work well for him soon!

24 Jul 2024 05:08