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Hi all! Can anyone share how life is after having the immune system prevented from working as effective as it should be? Do you get lots of colds or infections? I’m thinking to start either Ocrevus or kesimpta (there are pretty much the same really). I work as a primary school teacher and I’m a bit ...

So I guess with Ocrevus I'm immunosuppressed now. I'm not really getting a solid answer from any medical professionals in how seriously I need to be with this. Wash my hands and wear a mask? Stay away from snotty kids? Become a hermit? Any advice is good advice. Would also take silly answers to wi...

Hi all, I’m due to start Kesimpta next week and was just wondering about how DMT’s affect lifestyle. I work in the hospital and was wondering if it’s still safe to do so? Also do DMTs affect travelling? In general do you have to be super careful for infection?

Hello fellow MSers, does anybody have any tips on fighting colds while we take certain DMTs which lower our immune system? I had Omicron about 4 months ago and thankfully recovered, but since then I have started Kesimpta and have just finished my first month of injections. For the last 3 weeks I ha...

Hi all, MS expert Professor Gavin Giovannoni aka Prof G from Barts is taking part in this webinar from the ZOE COVID study team (they run the big UK COVID symptom app) talking about vaccines and immunosuppressed people, including MSers. It's going out on 28th October at 3pm but will be on youtube fo...

Spotted this interesting-looking webinar from the British Society for Immunology on "COVID-19 vaccines: how effective are they in people with weakened immune systems?" Might be of interest to some here, especially if you're on an immunosuppressing DMT. https://www.immunology.org/events/covid-19-v...

Hi everyone, I'm looking for advice about Ocrevus and immunosuppression, and would love to hear people's honest experiences. I’m newly diagnosed with RRMS and have agreed on Ocrevus with my neuro team. This is what I wanted and I feel confident in my choice; my doctors feel the same as my lumbar ...

Hi there, is anyone aware if Tecfidera is an immunosuppresant? As far as I'm aware it's on the lower scale compared to other drugs? If anyone has any information, I'd appreciate it. Thanks, Katie

BREAKING https://multiple-sclerosis-research.org/2020/04/does-immunosuppression-protect-you-from-severe-covid-19/# The picture is getting better and better if you are on an immunosuppressant DMT (not all are so if you want to know, check the DMT only video as I can't recall exactly what is what a...

I have been asked by a neurologist to consider starting this treatment. I was diagnosed with ppms in January 2018 by ( another) neurologist who says the condition is “quite indolent “ and thinks I should steer clear of such treatment. Has anyone any thoughts/ advice/ experience to share? I would be ...

Am I right in thinking that Ocrevus is an immunosuppressant whereas Lemtrada is an Immune Reconstitution Therapy ? If so, does that mean your vulnerability to opportunistic infection is permanent all the time you are on Ocrevus whereas with Lemtrada, once your immune system ‘rebuilds’, it is back t...

Hi there, I'm in the final stages of diagnosis for MS, but from the tests it's looking near certain that, that's what it is. I was looking at some pamphlets for DMT's today that I took from the neuro's office, as well as reading online. I don't want to upset/scare anyone with this post but it does ...

Planning our belated honeymoon via a wedding in Thailand in March. Have just looked up the risk profile and its a high risk zika area. Was planning on starting a family next year so am dismayed advice for my husband is to wait 6 months after being in a high risk area. Am also scared of acquiring zik...

Hi everyone. I’m hoping you’ll be able to help. Where I live there isn’t a big MS community. I find myself a bit confused and no one to ask really😞 I got diagnosed in October 2018 with RRMS. I’m on tecfidera since. In December last year I had my MRI and my neurologist told me I’ve got 2 new lesio...

Hello all My ms nurse has advised I use hormonal contraception now I am on ocrevus (I’m in a committed relationship but had a bad experience with the pill/many pills and stopped a while back). I’m considering getting the mirena coil fitted as it’s a low dose of localised hormones, but am concerned ...

Hello I am due to switch from tysabri to either ocrevus or cladribine in the new year. I was wondering how these drugs affected everyday life in relation to it's immunosuppressive nature. Do you still socialise the same? Do you still go in to big crowds? Is work affected. I also have a new born and...

Hi guys! I’m having a great deal of anxiety over starting Kesimpta. My neuro thinks my MS is aggressive based solely on how many lesions I have (just diagnosed), and none were showing active on my MRI. I have no symptoms right now. I would much rather go on a safer med, the side effects of Kesimpta...

Just looking to find out what supplements anyone takes to help keep immune system strongish when on immunosupprecents. I take rebif interferon which unfortunately weakens my immune system 😓 i take vitamin c, vitamin d and probiotic daily and multivitamin 3 times a week. On my 2nd antiobiotic this m...

Does anyone get Pneumonia constantly? I recently was referred to a immunologist due to recent bloodwork coming back bad for my immune system as I’ve had 2 different types of Pneumonia in the last month in a half that I was hospitalized for on separate occasions. The hospital staff knows me by now...

I just received my diagnosis last Friday and even though the news itself is unfortunate I feel so grateful for how the discussion was handled. I was called to the hospital’s immuno-neurology unit and two neurologists and the MS nurse gave me and my partner 1.5 hours — as much time as we needed to ex...