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Recent activityNewest posts

@beckybarnes 

6 Jun 2023 10:12Last reply 6 Jun 2023 10:23

beckybarnes

Thyroid surgery/Radioactive iodine

Good morning all. I would appreciate hearing your experiences of thyroid removal surgery or radioactive iodine treatment for Graves disease and the effects on MS afterwards please.
Newton Abbot, United Kingdom
  • Treatment
1

@BillyGee 

2 Feb 2023 13:03Last reply 15 Nov 2024 08:05

BillyGee

MS and Thyroids

Hello folks, hope you've all had a good week. My wife was diagnosed with RRMS back in early 2020, shortly after having been diagnosed with - and treated for - acute Graves disease. Some of the symptoms of acute Graves disease blur with the symptoms of her MS (brain fog, word jumble, balance, mood)...
  • Newly diagnosed
  • Symptoms
  • Diagnosis
  • Relapsing remitting
  • Balance
  • Relationships
  • Brain fog
  • Work and play
  • Hot and cold
3

@juliacemilligan 

29 Aug 2022 09:20 EditedLast reply 15 Dec 2022 22:39

juliacemilligan

Autoimmune Diseases like company

So it has been a while since I was last here. I have had a couple of new autoimmune conditions to join the party that is my body. Firstly, alopecia areata, I gained a small bald patch and my hair is thinning, not fun. I guess I just have to hope it will come back but I wear it up almost all the tim...
  • Disclosure
  • Relapses
  • Diagnosis
  • Work and play
  • Symptoms
  • Fun drugs
  • Treatment
1

@Shaun_Paskin 

3 Jul 2020 12:17Last reply 4 Jul 2020 11:12

Shaun_Paskin

Graves Disease

Hi all, I need some advice. I had Lemtrada in 2016/17 and have had an awful time of it with ITP last year and Graves Disease this year. After speaking with the Endocrinologist today he has offered either Radioactive Iodine or the surgery. Has anyone had experiences with this? Please help.
  • Treatment
  • Lemtrada
3

@Shaun_Paskin 

2 Feb 2020 20:22Last reply 3 Feb 2020 11:30

Shaun_Paskin

Lemtrada - side affect

In September 2016 I had my first round of Lemtrada, felt awful initially, but then ok. This was followed by the second course in 2017 - all seemed ok. My problems started 2 years after the second course, in March 2019 I was in hospital with ITP (a rare blood disorder and a side affect from Lemtrada...
  • Diagnosis
  • Newly diagnosed
  • Treatment
  • Lemtrada
4

@Hoytfreak 

12 Dec 2018 19:45Last reply 13 Dec 2018 06:35

Hoytfreak

Graves’ disease question

Hi Does anyone have any information about how graves adds or mimics and makes your rrms worse?
  • Relapsing remitting
  • Diagnosis
  • Symptoms
6

@shelfie 

29 Aug 2018 05:18Last reply 18 Jul 2019 08:03

shelfie

Lemtrada and thyroid

Hi everybody, I've not posted here for ages and this isn't totally MS-related but maybe somebody here is in a similar position. I was treated with Lemtrada 2015-2016. It has to be said that overall it's been a raging success. I've had three annual MRIs showing no progression and even some improvem...
  • Symptoms
  • Hot and cold
  • Treatment
  • Lemtrada
  • Work and play
9

@keistt 

22 May 2018 17:47Last reply 23 May 2018 13:51

keistt

I now have Double autoimmune disease

Hey everyone it’s been a while Yesterday I was diagnosed with another autoimmune disease called Graves’ disease Have anyone here have 2 autoimmune disease at the same time? I am currently taking as of yesterday anti thyroid med and a beta blocker for my rapid heart rate My resting heart rate was 1...
  • Diagnosis
  • Newly diagnosed
14

@Hoytfreak 

23 Apr 2018 03:28Last reply 23 Apr 2018 10:56

Hoytfreak

News

I just got called and told by the endocrinologist that I have Graves’ disease. I had to go see him and do the tests because my gp noticed something on my monthly blood test. I guess it’s one of the risks that you have to take to do lemtrada. Has anybody else been diagnosed with a new autoimmune cond...
  • Diagnosis
  • Lemtrada
  • Newly diagnosed
  • Disclosure
  • Treatment
  • Work and play
3

@Joanna 

29 Feb 2016 15:11Last reply 24 Jul 2017 14:20

Joanna

Lemtrada Course 2 & overactive thyroid

I had my first Lemtrada infusion in December 2014 and found that in the months after my walking improved, the pins and needles in my hands and feet were significantly reduced, my fatigue levels decreased and I could once again enjoy a hot shower. An MRI carried out in August 2015 found evidence of a...
  • Symptoms
  • Fatigue
  • Mental health
  • Relapses
  • Lemtrada
36
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