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I just received my diagnosis last Friday and even though the news itself is unfortunate I feel so grateful for how the discussion was handled. I was called to the hospital’s immuno-neurology unit and two neurologists and the MS nurse gave me and my partner 1.5 hours — as much time as we needed to ex...

Hey guys! We go through soooo much having MS and many people can’t relate and it is so frustrating. However, we are still here my loves. WE HAVE LIFE!!

Hi everyone, I’ve had RRMS for over 20 years. I was diagnosed during a time when Australian TV was flooded with commercials of young women with MS in wheelchairs. So, when I was diagnosed naturally I assumed this was what my future held. Thankfully, I had a tribe of supporters who would not allow ...

Does anyone suffer from wearing the wrong pee pad? Nothing seems to work. Please, let me know.

Good day all, Just want to say this site has really helped answer questions others couldn't also just having a platform to share with people who understand. I'm sure I'll have more comments and questions on the future but thanks to everyone for all the help thus far 🙂

Reading alot of stories on here bout insurance issues and problems delaying treatment,, i cant imagine what stress that brings to an already stressful situation. Im incredibly lucky that here in UK we have access to top treatments and excellent professionals and for free ( well national insurance c...

Hey guys, this is going to be a rant because I’m in a ranty mood. !!!Content Warning for medical gaslighting!!! A few weeks ago I posted a review of a neurologist who I feel treated me very poorly (I was quite frustrated when I posted it so it was heated I admit). He tried calling me and left a voi...

Hi everyone, I was diagnosed about 2 months ago and have been struggling a lot with the mental side of things. I have my first appointment at the NHS MS clinic in May but one of the things that worries me is that my neurologist says it will then be another few months before the treatment begins an...

It sounds strange to say, but I appreciate how it has taught me to slow down and not take life so seriously. I might not be well and able tomorrow, but I'm feeling really good today and I want to enjoy these days while I have them. ❤

I was diagnosed with relapsing-remitting MS in 2011, when I was young I was diagnosed with (NF-1) neurofibromatosis. Both rare diseases I unfortunately have both. It is hard because, sometimes some symptoms cant pinpoint, what is causing it and the relationship between two rare autoimmune diseases...