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I just received my diagnosis last Friday and even though the news itself is unfortunate I feel so grateful for how the discussion was handled. I was called to the hospital’s immuno-neurology unit and two neurologists and the MS nurse gave me and my partner 1.5 hours — as much time as we needed to ex...

Hey guys! We go through soooo much having MS and many people can’t relate and it is so frustrating. However, we are still here my loves. WE HAVE LIFE!!

Hi everyone, I’ve had RRMS for over 20 years. I was diagnosed during a time when Australian TV was flooded with commercials of young women with MS in wheelchairs. So, when I was diagnosed naturally I assumed this was what my future held. Thankfully, I had a tribe of supporters who would not allow ...

Does anyone suffer from wearing the wrong pee pad? Nothing seems to work. Please, let me know.

Good day all, Just want to say this site has really helped answer questions others couldn't also just having a platform to share with people who understand. I'm sure I'll have more comments and questions on the future but thanks to everyone for all the help thus far 🙂

Hey guys, this is going to be a rant because I’m in a ranty mood. !!!Content Warning for medical gaslighting!!! A few weeks ago I posted a review of a neurologist who I feel treated me very poorly (I was quite frustrated when I posted it so it was heated I admit). He tried calling me and left a voi...

Hi everyone, I was diagnosed about 2 months ago and have been struggling a lot with the mental side of things. I have my first appointment at the NHS MS clinic in May but one of the things that worries me is that my neurologist says it will then be another few months before the treatment begins an...

It sounds strange to say, but I appreciate how it has taught me to slow down and not take life so seriously. I might not be well and able tomorrow, but I'm feeling really good today and I want to enjoy these days while I have them. ❤

I was diagnosed with relapsing-remitting MS in 2011, when I was young I was diagnosed with (NF-1) neurofibromatosis. Both rare diseases I unfortunately have both. It is hard because, sometimes some symptoms cant pinpoint, what is causing it and the relationship between two rare autoimmune diseases...

Yes, it might be hard to even entertain the thought of being grateful, when you have such an unpredictable disease. Consider this post a mere excuse to pause everything for a short second, and think of something that you have that shouldn't be given for granted. Because, as we all know but tend to f...

Hi, my name is Lynne and I am new to this group. I haven't been officially diagnosed with MS yet. The tests I have had so far are all pointing in the direction of eventually getting one though. I only have dissemination in time, not yet in space which is one of the criteria to get an official diagno...

Hi everyone. My name is Kevin, and I was diagnosed with MS about a year and a half ago. What a whirlwind journey so far. I actually have a question for anyone thats felt this...i had a very serious bout of anxiety and stress in mid July; I've started yet another drug for that but does anyone have re...

I love southern Europe but since the MS have realised a) how behind the times they re: disability and b) how much we have to be thankful for in the UK. Holidaying in Greece, Italy and Spain is pretty tricky - so many stepped areas just don't have hand rails. As for ramps - you'll be lucky. I couldn'...

As a sister of one of the members, I'd really appreciate it if you were to check out the attached link. It's the official video of INJU5TICE's (a new boyband) debut single 'Long Long Way From Home'. They need as many viewings as possible! So please show your support and check it out! Thanks guys. h...

I am having double vision . Booked in to an experienced optician next week. I have read in various formats that certain specific lenses can help with double vision. I mainly get this at night and when I am tired. Does anyone have any suggestions , I would be very grateful.

My Neurologist isn't the best, hasn't even called me back for an appointment to see him regarding the diagnosis. Saw some posts referring to medication, don't know anything about this. Any advice would be grateful.

Hello. I'm having a relapse at the moment - 4 years since my last. I'm on ocrevus.... has anyone relapsed since having it? It's made me feel really sad as I felt like superwoman since having the treatment. I guess it's not a cure though, right! Anyway, I'm waiting on receiving my course of steriods...

Does anyone have any advice for me? I was diagnosed with RRMS in December 2022 but have not started any treatment yet. This diagnosis has come at a bad time as I'm in my second year at university. I've had a lot of support from my personal academic tutor, but he has now suggested that I consider su...

Hi everyone👋🏻 I’m new in this community, but I felt an imminent need to share my ms story with other people. I was diagnosed with a relapsing-remitting ms at the age 19. But I had first symptoms a long time ago. My name is Elisa, I’m Italian and I study primary education sciences at university. My...

i complete today 15 years since i was diagnosed(13y). i feel that i am solid to pass all of these years fighting but sometimes i feel annoyed and tired . sometimes i feel i am grateful for that and sometimes i feel melancholia . all these years passed but i learn that the life is worthless to keep f...