Shift.ms

3 Dec 2024 20:14

DMD

I got the info on Kesimpta and Ocrevus yesterday. Theres alot to read. I find Ocrevus info very easy user friendly. I can get dexterity dropping things so I don't know if I trust myself using an injection pen. I'm leaning to Ocrevus. I like that you can eat snacks while you have the IV drip! I've sa...

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@Graham_Phillips

29 Nov 2024 14:44Last reply 30 Nov 2024 19:18

DMD

Hope youre all well. Saw my Neurologist last week. I've had a lot of relapses in the last couple of years. He thinks a change of DMD. Ocrevus and also Kesimpta has been mentioned. I'm getting info about it in the post. I know one is an infusion and the other to inject it myself. Does anyone know a...

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@Emmaloo74

28 Jul 2023 09:56 EditedLast reply 13 Nov 2023 16:14

DMD

I was diagnosed back in 2009 with RRMS after a mri, no medication prescribed ,just been getting on with life, I've been struggling recently with my fatigue and my balance so phoned my gp to ask to be referred to neuro as wanted to speak about dmd after reading up on it on the ms site. I was surprise...

New Milton, United Kingdom

@jennymay1548

7 Dec 2022 14:09Last reply 8 Dec 2022 05:58

DMD

Alright so I’ll keep it short and sweet, im suppose to start my first DMD (Dimethyl fumarate) I’ve got them but reading through the huge leaflet has left me scared. I’ve found myself saying I’ll start taking them but another day goes by and I don’t take them. I’m just looking for others to share the...

@katrinaf93

10 Mar 2019 16:39Last reply 17 Mar 2019 07:27

DMD

Just wondering if anyone has said no to medication and treated their MS solely with diet? Is it better to take the opinion of "treat as early as possible" or "wait for more progression and then treat" Just trying to get as much info on this so I have all questions prepared for when I next meet w...

@PoppyJo

19 May 2025 07:38

Hi, has anyone got experience of starting a DMD after years of finishing and essentially opting out? I've been assigned a new consultant and I'm looking into being approved for one? Has anyone been turned down? Back in the day I had Copaxone and Avonex for a few years.

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@Lisaminni

14 Feb 2025 12:42

Hello I’m new here dx back in 2000 has anyone else gone of dmd after many years of use ?

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@Jackson40

25 Jan 2025 12:28

Hello legends haven't been on for a while just thought I check in I have a positive up date on my DMD and finally after a constant battle I am pleased to say I have started Kesimpta feeling a little rough with it but it's my 1st dose so it can only get better in time. Is there any pointers out there about dealing with side affect as I'm doing the regular paracetamol etc so other advice would ve great many thanks ???

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@harrison

15 Oct 2024 15:00Last reply 21 Dec 2024 01:38

New DMD offered - Ponvory

Just wondering if anyone has been offered Ponvory as a DMD? How has it been? I was offered it today and given a leaflet to take home with me. The side effects seem too good to be true

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@ball858

6 Dec 2024 14:14 EditedLast reply 6 Dec 2024 15:22

Neuro appointment today DMD advice

So just seen the neurologist and it’s confirmed as Tumification MS and rapid evolving MS (having had 3 episodes in 2 years). Reading everyone’s stories I think I’m lucky as it’s only been 7 weeks since my first scan and I have seen the neurologist and neurosurgeons. Now to look at DMD options, I’m l...

First posted on the Shift.ms app

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