New DMD offered - Ponvory
Just wondering if anyone has been offered Ponvory as a DMD? How has it been? I was offered it today and given a leaflet to take home with me. The side effects seem too good to be true
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I’ve been on Ponvory for 18months, I had no side effects except a few sore throats. I also seem to dodge infections when my family all get them. It’s been really good. It’s easy to take too as it’s only 1 tablet a day after a titration pack to gradually build it up. Saw my consultant recently and was told that feedback had been good from others who were taking it too. No relapses either so far which is amazing. I would recommend.
@Chooper thanks for your response. I've now told the Hospital I'd like to move forward with it,j ust have to get a blood test and an ECG done first. Glad to hear you've not been plagued with side effects and it's been keeping everything at bay!