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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Recent activityNewest posts

@Niccole 

7 Jun 2025 16:58Last reply 7 Jun 2025 17:32

Niccole

Trigeminal neuralgia

Wanted to share an important lesson learned... I suffered from extreme jaw pain (on a scale of 1-10, it was about a 12)for several years! After extreme dose of medication (volume and pain patches), I was referred for Gamma Knife surgery. I have been pain free for 10 years! Hope this helps som...
First posted on the Shift.ms app
1

@Bethers 

6 Jun 2025 08:19Last reply 10 Jun 2025 19:52

Bethers

Hi Newbie here.

I'm having symptoms; tingling and numbness in leg spreading to both. Pin s and needles in foot, trigeminal neuralgia, tripping over and bruising toes, increased bumping in to things. I've had a physio confirm not trapped nerve and x ray and bloods confirming not a cancer. (I had breast cancer 2 year...
First posted on the Shift.ms app
12

@bgabe 

14 Mar 2025 21:30 EditedLast reply 8 Jun 2025 18:27

bgabe

Diagnosed this week 🫠

Hey everyone, My name is Brittany and I was officially diagnosed this week. After the brain scans showed lesions my doc wanted the spinal tap to be sure. That was a nightmare because I had to get a blood patch the following week. I’ve connected with several people in the MS community on Instagram a...
First posted on the Shift.ms app
14

@Tracypen 

20 Jan 2025 13:24Last reply 20 Jan 2025 20:09

Tracypen

Has anyone else have trigeminal neuralgia. I am so fed up with having to take 23 tablets a day plus capstone injections. Now my legs are so sore also does anyone else have really sore legs and if so what do you do to ease them

First posted on the Shift.ms app
2
Deleted

@jumpingJacks 

19 Jan 2025 21:21

jumpingJacks

MS Symptoms Explained #15. Trigeminal Neuralgia

Sharp, stabbing facial pain triggered by light touch. Why: The trigeminal nerve is often affected by MS lesions, causing intense pain in the face. #TrigeminalNeuralgia

@jay940 

13 Dec 2024 18:10Last reply 14 Dec 2024 00:50

jay940

I'm over it

Ms is a crazy disease. I had a very stressful day a few weeks back and from that I developed trigeminal neuralgia,a breathing issue, and a slight swallowing issues. Yet I had my yearly MRI last month and no change.
First posted on the Shift.ms app
3

@Erica’s 

8 Dec 2024 03:07Last reply 9 Dec 2024 00:37

Erica’s

Trigeminal Neuralgia

I struggle with Trigeminal neuralgia and am wondering how others might deal with it
First posted on the Shift.ms app
5

@maz197407 

22 Nov 2024 08:16 EditedLast reply 23 Nov 2024 22:31

maz197407

Does anyone stay in?

Im scared to go out alone incase I fall over. My dizziness is constant and too drained to go out. Or even scared incase I have a trigeminal neuralgia attack from the wind. So hard 😔
First posted on the Shift.ms app
13

@Letslivelife123 

14 Nov 2024 22:42Last reply 29 Nov 2024 15:17

Letslivelife123

Trigeminal Neuralgia

Hi all any of you have TN because of MS
First posted on the Shift.ms app
17

@NatureDeb 

22 Oct 2024 09:32Last reply 5 Dec 2024 09:23

NatureDeb

TN

did anyone ever get told there was a risk of Trigeminal Neuralgia (the worst stingy,electric shock in your check when you're just trying to do the simple tasks of swallowing & drinking 🥹)
First posted on the Shift.ms app
10
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