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Has anyone els had to deal with Trigeminal neuralgia (TN) due to their MS ?

I started with TN about 2 months ago. I do t think anything specific triggers the attacks, but I was wondering if and what anyone else does to help ease the pain? I’m in a low dose of Pregabalin that’s not really helping at the moment.

Hi all any of you have TN because of MS

I recently experienced TN for the first time. Is it possible that it will eventually just run its course? Obviously I find carbamazepine very helpful but will I always need to be sure to stay stocked up with it?

I've had trigeminal neuralgia since 2015 when I was diagnosed. It's become a bit more prominent and a problem in my life since my MS diagnosis. I was previously on tegretol (carbamazapine) for a period of time, unfortunately that stopped working even when increasing. I was then given the option of...

Hi Everyone, Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for jus...

Hi, I've had a relapse with the most excruciating electric shock like pain in the head. I've been told it's trigeminal neuralgia which can be triggered by MS. I've been told I may need epilepsy drugs to manage the pain. Has anybody else experienced this. My Dr has not been helpful and in fact has ca...

I am once again suffering from trigeminal neuralgia. Taking gabapentin but pain is still so bad. Any tips on what could relieve it?

Hi all. Anyone out there had TN on both sides of the face at the same time? The pain in my face can be excruciating particularly around and behind my eye sockets and upper cheek. Occasional shooting pains but mainly constant pain and burning. Is it just me? Thanks

Wanted to share an important lesson learned... I suffered from extreme jaw pain (on a scale of 1-10, it was about a 12)for several years! After extreme dose of medication (volume and pain patches), I was referred for Gamma Knife surgery. I have been pain free for 10 years! Hope this helps som...