Join to explore more

Shift.ms is better if you're logged in

Join the communityOr find out more

By signing in to Shift.ms you agree to our terms of use and privacy policy.

Already have an account?

Sign in

Shift.ms
Donate
Learn about MS
MS symptoms
MS symptomsA guide to MS symptomsWhat are the early signs of MS?Understanding visible and invisible symptoms of MSMS HugMS and optic neuritis
MS diagnosis
MS diagnosisBeing diagnosed with MSWhat is MS?Different types of MSIs MS hereditary?Late onset MS and treatment
MS treatment
MS treatmentGetting treatment for MSCoping with MS fatigueExercising with MSUnderstanding MS relapseHSCT treatment for MS
Living with MS
Living with MSAfter diagnosis: living with MSMultiple sclerosis and mental healthWorking with MSMS, sex and relationshipsA guide to MS benefits in the UK
  • Forum
  • Learn about MS
  • MS symptoms
  • MS diagnosis
  • MS treatment
  • Living with MS
  • Find MSers
  • Buddy Network
  • Films
  • MS Latest
  • Get Involved
  • Volunteer
  • Fundraise
  • Donate
  • About us
  • Contact us
  • House rules
  • Terms of use
  • Privacy policy
  • Cookie policy
Sign in

We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2025 Shift.ms

  • Picked for you
  • Browse topics
  • Find MSers

Topics

  • Diagnosis
  • Symptoms
  • Newly diagnosed
  • Healthy living
  • Research
  • Disclosure
  • MRI
  • Browse all
Sort 91 results by
Recent activityNewest posts

@Niccole 

7 Jun 2025 16:58Last reply 7 Jun 2025 17:32

Niccole

Trigeminal neuralgia

Wanted to share an important lesson learned... I suffered from extreme jaw pain (on a scale of 1-10, it was about a 12)for several years! After extreme dose of medication (volume and pain patches), I was referred for Gamma Knife surgery. I have been pain free for 10 years! Hope this helps som...
First posted on the Shift.ms app
1

@Tracypen 

20 Jan 2025 13:24Last reply 20 Jan 2025 20:09

Tracypen

Has anyone else have trigeminal neuralgia. I am so fed up with having to take 23 tablets a day plus capstone injections. Now my legs are so sore also does anyone else have really sore legs and if so what do you do to ease them

First posted on the Shift.ms app
2
Deleted

@jumpingJacks 

19 Jan 2025 21:21

jumpingJacks

MS Symptoms Explained #15. Trigeminal Neuralgia

Sharp, stabbing facial pain triggered by light touch. Why: The trigeminal nerve is often affected by MS lesions, causing intense pain in the face. #TrigeminalNeuralgia

@oskar 

12 May 2020 10:40Last reply 9 Dec 2024 00:53

oskar

Trigeminal neuralgia

I recently experienced TN for the first time. Is it possible that it will eventually just run its course? Obviously I find carbamazepine very helpful but will I always need to be sure to stay stocked up with it?
  • Healthy living
  • Exercise
10

@ettelrahs 

5 Jul 2024 14:19Last reply 9 Dec 2024 00:49

ettelrahs

Trigeminal neuralgia nerve block clinics stopped?!

I've had trigeminal neuralgia since 2015 when I was diagnosed. It's become a bit more prominent and a problem in my life since my MS diagnosis. I was previously on tegretol (carbamazapine) for a period of time, unfortunately that stopped working even when increasing. I was then given the option of...
Liverpool, United Kingdom
  • Diagnosis
  • Pain
  • Symptoms
  • Disclosure
  • Newly diagnosed
  • Relapses
  • Healthy living
  • Family and children
  • Exercise
  • Work and play
4

@Debbie79 

7 Jan 2023 19:22Last reply 9 Dec 2024 00:43

Debbie79

Trigeminal neuralgia

Has anyone els had to deal with Trigeminal neuralgia (TN) due to their MS ?
  • Symptoms
  • Healthy living
  • Treatment
28

@Erica’s 

8 Dec 2024 03:07Last reply 9 Dec 2024 00:37

Erica’s

Trigeminal Neuralgia

I struggle with Trigeminal neuralgia and am wondering how others might deal with it
First posted on the Shift.ms app
5

@Letslivelife123 

14 Nov 2024 22:42Last reply 29 Nov 2024 15:17

Letslivelife123

Trigeminal Neuralgia

Hi all any of you have TN because of MS
First posted on the Shift.ms app
17
Deleted

@Evie_Meldrum 

28 Jun 2023 20:43Last reply 9 Nov 2024 15:00

Evie_Meldrum

Trigeminal neuralgia self-help tips please 🙏

Hello ms hive mind, I'm entering hour 24 of the most excruciating pain 'episodes' I've ever known. Glad I've not got a gun handy bad. Nurse (and I) reckons it's TM, consultant will get involved next week (/this week after I phone at 9am in tears tomorrow), GP reluctant to prescribe anything until sh...
Glasgow, United Kingdom
  • Pain
  • Symptoms
  • Treatment
  • Work and play
3
Deleted

@Evie_Meldrum 

8 Jun 2024 19:03Last reply 26 Oct 2024 20:21

Evie_Meldrum

Fampyra (fampridine) and trigeminal neuralgia

My consultant appointment is a few weeks away and I'm going to ask about Fampyra. He mentioned it last year but I decided against it (always weighing up cost v benefit and how many pills I'm taking!) but my walking has deteriorated and I'm keen to give it a go now, however I've read it can make trig...
, United Kingdom
  • Healthy living
  • Exercise
  • Work and play
  • Symptoms
  • Diagnosis
  • Treatment
First posted on the Shift.ms app
2
PreviousNext page