Shift.ms

7 Jun 2025 16:58Last reply 7 Jun 2025 17:32

Trigeminal neuralgia

Wanted to share an important lesson learned... I suffered from extreme jaw pain (on a scale of 1-10, it was about a 12)for several years! After extreme dose of medication (volume and pain patches), I was referred for Gamma Knife surgery. I have been pain free for 10 years! Hope this helps som...

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@Tracypen

20 Jan 2025 13:24Last reply 20 Jan 2025 20:09

Has anyone else have trigeminal neuralgia. I am so fed up with having to take 23 tablets a day plus capstone injections. Now my legs are so sore also does anyone else have really sore legs and if so what do you do to ease them

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@jumpingJacks

19 Jan 2025 21:21

MS Symptoms Explained #15. Trigeminal Neuralgia

Sharp, stabbing facial pain triggered by light touch. Why: The trigeminal nerve is often affected by MS lesions, causing intense pain in the face. #TrigeminalNeuralgia

@oskar

12 May 2020 10:40Last reply 9 Dec 2024 00:53

Trigeminal neuralgia

I recently experienced TN for the first time. Is it possible that it will eventually just run its course? Obviously I find carbamazepine very helpful but will I always need to be sure to stay stocked up with it?

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@ettelrahs

5 Jul 2024 14:19Last reply 9 Dec 2024 00:49

Trigeminal neuralgia nerve block clinics stopped?!

I've had trigeminal neuralgia since 2015 when I was diagnosed. It's become a bit more prominent and a problem in my life since my MS diagnosis. I was previously on tegretol (carbamazapine) for a period of time, unfortunately that stopped working even when increasing. I was then given the option of...

Liverpool, United Kingdom

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@Debbie79

7 Jan 2023 19:22Last reply 9 Dec 2024 00:43

Trigeminal neuralgia

Has anyone els had to deal with Trigeminal neuralgia (TN) due to their MS ?

28

@Erica’s

8 Dec 2024 03:07Last reply 9 Dec 2024 00:37

Trigeminal Neuralgia

I struggle with Trigeminal neuralgia and am wondering how others might deal with it

First posted on the Shift.ms app

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@Letslivelife123

14 Nov 2024 22:42Last reply 29 Nov 2024 15:17

Trigeminal Neuralgia

Hi all any of you have TN because of MS

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17

Deleted

@Evie_Meldrum

28 Jun 2023 20:43Last reply 9 Nov 2024 15:00

Trigeminal neuralgia self-help tips please 🙏

Hello ms hive mind, I'm entering hour 24 of the most excruciating pain 'episodes' I've ever known. Glad I've not got a gun handy bad. Nurse (and I) reckons it's TM, consultant will get involved next week (/this week after I phone at 9am in tears tomorrow), GP reluctant to prescribe anything until sh...

Glasgow, United Kingdom

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@Evie_Meldrum

8 Jun 2024 19:03Last reply 26 Oct 2024 20:21

Fampyra (fampridine) and trigeminal neuralgia

My consultant appointment is a few weeks away and I'm going to ask about Fampyra. He mentioned it last year but I decided against it (always weighing up cost v benefit and how many pills I'm taking!) but my walking has deteriorated and I'm keen to give it a go now, however I've read it can make trig...

, United Kingdom

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