Experience with Trigeminal Neuralgia
Hi Everyone,
Hope everyone is ok. I am just wondering what individuals experiences and advice with trigeminal neuralgia is. I was diagnosed with MS in October and TN was my first symptom starting back in September. My TN is a constant pain on the right hand side of my face/head and has been for just over 9 months so far. I have recently started Gabapentin for my symptoms as was on Amitriptyline prior to this.
If you have TN or experienced it, what did you find if anything helped the pain? Oxygen tanks have been mentioned to myself but I'm unsure what else may help?
I'm currently training for next years London Marathon as I've secured a spot with MS-UK and so far both my training for this and running in general causes a heightened pain to my face, so any way to help this would be great!
Thanks in advance.
Tom
Hi cuttsy! I have RRMS and I suffered with TN at the beginning of this year. It started off a belter of a relapse which I’m still recovering from. Anyhow! I saw my GP and he gave me carbamazepine which I had to take by gradually increasing the dose. It took a wee while- month maybe? But it eventually cleared it up. I’m feeling your pain tho- literally! It was the worst pain I’ve ever experienced! Hope that helps. Good luck with the marathon 🙂. Anna x
Hi Anna (@condansmum) Thanks for your response. I'm glad to hear that they have cleared up :) Are you still taking the carbamazepine to help control TN or are you coming off then going back on if a TN flare unfortunately comes again? Thanks for the wishes! Tom x