#jcv - Shift.ms

1 May 2025 02:12 EditedLast reply 1 May 2025 17:25

JCV

Hello everyone! So im not sure but does everyone gets all this like 8 or idk how many bloodtests done before picking their treatments? Because I did just to make sure of I was good for whichever I picked I was ok for and Today I got a result positive for Jcv ? What is this ? Is this related to MS An...

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@Boggy

28 Aug 2018 06:18Last reply 18 Feb 2024 20:52

JCV

Hi All, I've been on Tysabri for almost 3 years and my JCV has always been negative but from having a negative result in February I've just had a medium to high positive result. Since being on Tysabri I haven't relapsed so I'm worried about having the treatment stopped. Do you think I would be bet...

7

@jah14

3 Jul 2025 01:36 EditedLast reply 4 Jul 2025 01:29

Jcv results. Confusing? Help!

I'm a little worried & confused . I got diagnosed earlier this year. My neurologist did blood work on me and results came back good BUT on my jcv test it says it's abnormal high index and I was exposed but I'm negative?? I told him what's going on?? That sounds confusing! He said you're negative so...

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14

Unpublished

@Michellejohn35

2 Jun 2025 18:17

ecently had my MRI results and (as I kinda suspected after a rough few months) had new lesions.I'm currently on Plegridy (moved from Tecfidera as I'm JCV positive and my lymphocytes lowered a lot). Tecfidera worked ok for me, but Plegridy obviously hasn't been as effective. Due to the hard few months I've really isolated myself from people (some I'm unsure even how to reach out to again now) and live alone alone some of the time when my four children are at their mum's. Positive news is, they've mentioned Ocrevus and Kesimpta, which are obviously higher efficacy treatments. Could I ask for any advice people have around these DMTs, please? If you've seen me ask on Facebook or Instagram, then feel free to ignore and not repeat yourself.

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@RachH

2 Aug 2016 16:54Last reply 17 Jan 2025 21:19

High jcv+ level, Tysabri and Gilena

Hi. I've been on Tysabri for over 7 years. My jcv+ level is 3.5, which I'm told is high. I've been told I may have to come off Ty to go on a tablet, Gilena, I think it's possibly called. Has anyone had to do this and how effective it is in comparison? Thank you

7

@Caroline77xx

17 Jul 2024 12:03Last reply 18 Jul 2024 21:42

JCV Results…

So last year February upon getting my RRMS diagnosis I also found out that my JCV results were 2.14. On Tysabri for nearly 9 months now and my JCV results today is 0.84 🎉🎉🎉this is a definite win 🏆

Grays, United Kingdom

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2

@LouiseA92

14 Feb 2024 19:20

Positive JCV test

Hiya! So, I had my appointment with my neurologist today - and I am now positive for the JCV virus!! Going from 4 weekly tysabri infusions to 6 weekly! Has anyone been through this process? And if so, how did you find the transition? Any information from anyone who’s been through this would be gre...

Jersey

@Bev23uk

22 Feb 2023 05:51 Edited

Jcv positive where do i go next?

Hi w new to this site. Need some advice… i have been jv positive high titre levels for a year now, taking tysabri since 2017. I now have 3 monthly mri to monitor pml detection. I freak out everytime i have mri until i have mri results. Consultant recommends staying on tysabri, but i’m scared to stay...

@Gabi

20 Feb 2023 18:08Last reply 21 Feb 2023 02:15

JCV Positive

Hi All, Went for my Tysabri infusion today and got the news I’m JCV positive. I know this doesn’t mean the end of Tysabri right now and the nurses tried to reassure me, but just feeling so disappointed about it, broke down in tears in the middle of the infusion unit 😔 I’ve been feeling so much more...

5

@evecockerham

2 Feb 2023 08:55Last reply 2 Feb 2023 10:31

Tysabri and JCV

I got diagnosed with MS in October and started on Tysabri in December however, I tested positive for the JC Virus. Did any body else test positive at the start of their treatment and still continue with Tysabri?

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