Hi, I have been diagnosed with rapidly evolving severe relapsing remitting multiple sclerosis and may be eligible for stemcell treatment just wondered if anyone has had that treatment and how the recovery was. Thanks
Hi everyone. Just very worried. I have Relapse Remitting MS. I have tried a few dmd’s (I’ve had tysabri , lemtrada & now ocrevus.) Initially I tend to be ok. But then I have had a big relapse on them. I’m just wondering what if history repeats itself. Where do I go to after having ocrevus?
I asked ...
Hi MS Gang … has anybody on here had stem cell therapy or know anyone that’s had stem cell therapy? if so is it any good? … any feedback or information would be appreciated, thank you 🧡
They said 2 weeks.
It's now 3.
Wish they were honest about how long it would take - if they'd said 4wks, I wouldn't be stressing [yet]!
Ah well. Good excuse for a hot choc 😂.
Hi, I’m Phil from Edinburgh, Scotland 🏴 🏰
I have HSCT (stem cells) pending in Sheffield, hopefully the start of January 2024. I am planning on documenting the process. Please, Please follow my journey on Instagram at:
stem.cells4phil
I would genuinely really appreciate it. I’m see...
I'm sharing my story as it might be helpful for other folk in a similar position.
About (roughly) 2 years ago I noticed my feet and left leg started feeling a bit numb and also had a strange sensation around my waist (which I'd later learn is an MS Hug) - felt a bit like wearing boxer shorts that w...
If you're interested in learning more about
Hematopoietec Stem Cell Transplantation (HSCT) please visit Facebook and search the below:
In the UK: UK HSCT for MS and Autoimmune Disorders (Point of Contact: Gwen Higgs is a lovely person).
Worldwide: HSCT Haematopoietic Stem Cell Transplantation fo...
If you're interested in learning more about
Hematopoietec Stem Cell Transplantation (HSCT) please visit Facebook and search the below:
In the UK: UK HSCT for MS and Autoimmune Disorders (Point of Contact: Gwen Higgs is a lovely person).
Worldwide: HSCT Haematopoietic Stem Cell Transplantation fo...
Hey PPMSers 👋
I came across an interesting article that delves into how genetics may affect the onset and progression of MS. The article discusses a recent study that used stem cells derived from people with MS to develop cerebral organoids, also known as "mini-brains," to better understand the ce...