Shift.ms

6 Apr 2025 17:41 EditedLast reply 7 Apr 2025 09:01

Questions about Ocrevus injection

Hi, I’m Addy and I just got diagnosed with RRMS this week (based in England). After reading the official websites, I still have some questions below about the Ocrevus injection (not the infusion), so would appreciate any insight. Thanks! [1] How often do you need to visit a clinic for monitoring an...

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@DAPHYA

6 Apr 2025 05:05

How long in advance do you plan infusions?

I took my first half doses of Ocrevus back in October so I was due for my first full single dose in March, but Insurance has been giving me the runaround and I’m now a month overdue. Do you guys make your appointments a month in advance or two months in advance? I just don’t want this to happen agai...

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@terkillie

4 Apr 2025 12:48Last reply 5 Apr 2025 00:26

Looking for personal experience of DMT

Hi, I have be on Tysabri since diagnosis 2 years ago which has kept me really stable but unfortunately my latest bloods came back JCV positive so need to change treatment. My options are ocrevus or kesimpta…keen to hear peoples experiences of both. Thanks for reading Terri

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@Keith24

4 Apr 2025 05:28

Crap gap

Hey all been a while how many got sick in the crap gap between infusions I was ment get 600mg ocrevus infusion 4 weeks plus ago and I got sick 2 ta 3 times

, Ireland

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@not2bMSdwith

1 Apr 2025 16:30 EditedLast reply 6 Apr 2025 23:59

Ocrevus and Menstrual Cycle Absence

Ladies within child bearing ages on Ocrevus - **{ if you are not a woman, or a woman within child bearing age please keep scrolling.}** When you began Ocrevus did it disrupt your cycle? I took my first dose (full dose) of Ocrevus 1/31/2025. The first day of my last period was February 5th, no flow...

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@VickyD

1 Apr 2025 12:41Last reply 1 Apr 2025 18:57

Dizziness related to eyes

Hi, I feel like my dizziness, which I’ve been struggling with for 2 years now, stems from my eyes. Many solutions have been tried for the imbalance but no one has ever mentioned anything to do with my eyes. I was diagnosed with MS last May after being treated for vertigo for 18 months, MRIs, lumbar ...

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@Kalm007

31 Mar 2025 14:46Last reply 5 Apr 2025 17:48

I have no new B- Cells

Hi, new on here. I have had MS for at least 24 years. I been on Ocrevus for few years. My immunoglobulins are low and recently found out I have 0 new B-Cells. I currently off of infusions. My MS doctor is planning to speak with a team of doctors and mentioned possibility ivig infusions. Has anybody...

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@slamminsammyms

28 Mar 2025 17:45Last reply 29 Mar 2025 19:42

How’d you get through your first relapse?

Hi Ms family 👋 I may be going through my first real replapse (possibly new lesions) as I have new symptoms that have lasted more than 48 hours 😬. One new symptom is feeling cold water on parts of my body randomly when they are completed dry. I am on Ocrevus and have been since January. My question...

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@GetsOnMyNerves

26 Mar 2025 21:12Last reply 26 Mar 2025 23:12

Hello Fellow Warriors, Anna from Chelsea here!

Recently diagnosed and just had my 3rd OCREVUS IV. Reaching out to see if anyone else experiences brain squeeze headaches and emotional outbursts, memory loss, ear tingling. Since my 3rd IV I've rapidly deteriorated

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@clars64

24 Mar 2025 20:20Last reply 24 Mar 2025 23:42

I was diagnosed 17 years ago. Started with Tecfidera then Ocrevus, and now Kesimpta. My question/frustration is as follows. What should i expect from my Dr.? He is a neurologist. I see him 1 time a year which follows an MRi. We meet for 10 minutes and he tells me the MEI showed “ no remarkable changes”. Appointment complete. I get nothing about me and my progressing disability. I feel like a data point and nothing else. Thoughts? Thanks

Suring, United States

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