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Recent activityNewest posts

@Vickim654 

26 Jun 2025 12:26Last reply 27 Jun 2025 17:52

Vickim654

Switch treatment or hold off ??

Hey everyone (sorry long post) Looking for advice, opinion or just really something. I completed mavenclad treatment in 2023 and have been having regular monitoring - all ok. I recently had mri and results have shown a new lesion - this was obviously a kick in the butt but after meeting with my c...
Coatbridge, United Kingdom
First posted on the Shift.ms app
13

@Ehan 

23 Jun 2025 18:10Last reply 23 Jun 2025 21:54

Ehan

Has anyone used cbd oil for pIn?

I am in mavenclad and havent got any new lesions in the last year tg. However i have awful pain and throbbing in my back caused by a back lesion. I am currently taking panadol 4 hourly together with my other meds. I don't want to increase my tripsol as it makes me dizzy and unfocused and I work ful...
First posted on the Shift.ms app
3

@Matt_Boyd 

20 Jun 2025 09:28Last reply 23 Jun 2025 07:02

Matt_Boyd

Mavenclad

Happy Friday everyone! I'm going to make the switch from Brabbio to Mavenclad on Monday. I'm excited and nervous all at once. Any tips would be welcome. Wish me luck!
Valsamata, Greece
7

@nanny82 

19 Jun 2025 02:04Last reply 19 Jun 2025 14:15

nanny82

I've been a nurse for about 10yrs, worked mostly nights. Since being diagnosed last December I have not worked. I took my first dose of Mavenclad awaiting the 2nd round in the next couple weeks. I want to return to work but I dont know if I trust my body and afraid I may send myself in a relapse. I want to transition to something less toxic on my mental/physical health. I DONT KNOW WHAT TO DO.

First posted on the Shift.ms app
5

@NickEady 

16 Jun 2025 16:31Last reply 16 Jun 2025 18:02

NickEady

How do we cope

How do you fit it all in, I get up at 5am taking Fampyra, wait until 8am to start Mavenclad, in the mean time have to fit Baclofen, Heart Attack meds and Diabetic meds in, was easier last year without Fampyra and Heart meds. Rant over, only two weeks to go 😀
Newport, United Kingdom
2

@Michelle1970 

15 Jun 2025 21:28Last reply 23 Jun 2025 22:09

Michelle1970

Mavenclad

Beginning Mavenclad. Was wondering what others experienced while taking it.
First posted on the Shift.ms app
2

@boat 

11 Jun 2025 12:46Last reply 12 Jun 2025 09:54

boat

Not sure what to choose. Ocrevus or Mavenclad?

For me Mavenclad is better cuz you don't need to take it all the time and effect lasts for ~8 years. But I will only get in January in the best case, worst is March. I also can start Ocrevus next month but I don't like infusions at all, and its every 6 moths for 6 hours, which is horrible tbh. Side ...
First posted on the Shift.ms app
9

@Henrietta 

3 Jun 2025 17:31Last reply 4 Jun 2025 16:21

Henrietta

Moving to Mavenclad

Hi how have people done on Mavenclad? My neuro wants me to swap to it as most recent MRI showed enlargement of 2 lesions (after five years stable on Aubagio). Other one he offered is Kesimpta but I don’t like the sound of monthly injections and he was way keener on Mavenclad. Any thoughts welcome :)
First posted on the Shift.ms app
10

@elliemb 

1 Jun 2025 14:39Last reply 1 Jun 2025 15:17

elliemb

Hello! Got my diagnosis last month for RRMS and I'm deciding on treatment options at the minute. I'm very prone to cold sores and UTI's and I've been suggested Kesimpta or mavenclad. I know they both have increased risk of oral herpes and uti's so confused as to which to go for. Any advice would be appreciated. Thank you :)

First posted on the Shift.ms app
2

@RoseRivera1214 

1 Jun 2025 03:03Last reply 1 Jun 2025 07:24

RoseRivera1214

What to do?? Hi, my name is Rose. I’m new to this app. I was diagnosed with Ms back in 2016. Since than I’ve tried two dmts. Gilenya and mavenclad since than. Gilenya gave me horrible rashes for four years before my neuro switched me to mavenclad. That medication was the absolute worst. I lost about half of my hair and had frequent heart palpitations to where I needed a heart monitor twice. I only did the first year round 1 and never followed up for my second because of fear. I am meeting with my neuro within the next month about starting a new medication. What is some options that he could give me? And what is your personal experience with those DMTS?

First posted on the Shift.ms app
3
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