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11/10/17 I had a Suprapubic Catheter put in. The bladder spazums are intense!! Not only that I have the feeling of being stabbed with a knife in the vagina. My Urologist has not promised a light at the end of this very painful tunnel. I have not been told this is normal or abnormal. I'm worried. Thi...

Hi everyone I'm a newbie...i don't know much as of yet but I want to get start on views from others and what works or don't. Right now I'm taking tizanidne for muscle spans and tensions around my head that cause numbness, or tingling around forehead, down side of left face also middke of face around...

Hi All We have just added two amazing new prizes to the text tombola project we are running! We have signed books from the incredible photographer Rankin and ten pack of marvellous Sugru, the self-setting rubber to hack things better. You can check out the project here - www.shift.ms/texttombola...

Hi all, hope you are all doing as well as you can be... I just wanted to say that my MS nurse referred me to a neuropsychologist, locally- I was waiting for about 7 months on NHS, and i saw him for my first session yesterday. I really didn't think that after 7 years of being diagnised that there was...

Hi, I am due to change from plegridy to kesimpta but wondered about others experience of this? Does it cause lots of colds and infections because of the lowered immune system effect of the drug? Thanks in advance, Sophie

Hi I’m just looking for some advice/feedback about muscle spasms. I’m on tizanidine but it only seems to work for about half the day. Any advice is greatly appreciated!!

Hi all I will have MRIS at St. Marys next month need advice about Charing Cross and St. Marys.. Which hospital you think is better at MS? Thank you

The whole sign in process is crap. Entering your email to then wait for an email (which you then have exit the browser or sign in on a PC) for a link to then be asked to enter your email in again. Why is it so long winded!

Hey everyone, hope you’re doing well today! I’m a 25 year-old female living in San Francisco with RRMS (diagnosed when I was 23) I have an idea that could help people with MS. Before I invest a ton of time into it, I wanted to hear from you guys to see if this is worth pursuing. Here’s the link ...

Hi all i am looking for some feedback specially from anybody who is bedridden or unable to stand up from wheelchair . I have been degenerating continuously now i can no longer stand up from wheelchair and psychologically i torture myself everyday thinking I could do sth to avoid this that I am no l...