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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Han1 

Han1

Experience

The experience is good.
Manila, Philippines

@PoppyJo 

Last reply

PoppyJo

Cladribine/Mavenclad Year 1. I took my first week or Y1 last week. I don't feel sick or have a headache today but I am absolutely exhausted. My bones feel tired and I'm moving around in slow motion. Did anyone experience this in the week after your first round? I'm working from home but it is taking a herculean strength of mind. I've had interferons and dopamine years ago, azathiapron for 8 years and then 4 months of Tysabri (until I had an allergic reaction). All this to say, this isnt my first treatment experience but this one seems to have wiped me out. Is it just me or are there any other kindred spirits out there? I'd be really grateful for any shared experience and also experience of managing work through treatment weeks.

First posted on the Shift.ms app
3

@tttonilee 

Last reply

tttonilee

Does anyone else experience lack of balance when they are overly tired?

I always wake up to pee in the night, that’s another issue in itself as I can never get a full sleep. I literally always wake up and drunk stumble to the toilet it’s literally part of my night routine it’s so annoying, is there any way to help it? I even knocked over my boyfriends ps5 yesterday and ...
First posted on the Shift.ms app
60

@jamieerogers 

EditedLast reply

jamieerogers

I was diagnosed with MS in June 2025. Has anyone else found they catch everything that goes around? I work from home and honestly rarely leave as my MS is not controlled. But I literally am catching everything. Last month it was walking pneumonia and now bronchitis. I live in Iowa but we have had a mild winter. I am guessing my family is being the germs into our house. Has anyone else experienced this and if so how do you manage it? I eat very clean and already take a bunch of vitamins and drink a gallon of water daily. Would an air purifier help do you think?

First posted on the Shift.ms app
3

@redridinghood12 

Last reply

redridinghood12

Has anyone ever experienced Sciatica as a relapse before? I’m in progressive, don’t know if this is the right group or not seeing if most are still in RR

Federal Way, United States
First posted on the Shift.ms app
1

@lucycharlotte 

Last reply

lucycharlotte

Experiences with private diagnosis and referral back to NHS?

Wondering if anyone in the UK can share their experiences of being diagnosed privately. What was the process like and how quickly did you start treatment with the NHS after diagnosis? I have booked a consultation with Nuffield today, I reached breaking point after being told I would have to wait at...
Derby, United Kingdom
First posted on the Shift.ms app
27

@EJH 

Last reply

EJH

Does anyone experience crap gap on Ocrevus?

First posted on the Shift.ms app
14

@jmac95 

Last reply

jmac95

Has anyone experienced any hearing issues?

I’ve noticed my hearing in one ear not be as good, my left ear, which is also the side of my body that went completely numb a few months ago from head to toe. I can’t keep up in conversations in groups, can’t hear on the phone properly and even struggle sometimes with just one person talking. I’ve b...
First posted on the Shift.ms app
5

@Mt11 

Last reply

Mt11

Ocrevus injection -experiences please 🙏

Hi everyone, hope you're doing ok. I'm swapping onto the injection (bad veins) I've been on ocrevus for quite a few years and side effects are now manageable and predictable, I'm very tired day of infusion and for two days after normally reduced energy for a week after that but can still function an...
2

@SugaBug1971 

Last reply

SugaBug1971

Does anyone experience shortness of breath is this apart of this condition

First posted on the Shift.ms app
11
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