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Hi All, I am new to the group and have recently been prescribed ponesimod. It hasn’t arrived yet but wondering what people’s experiences were? Thanks 😊

In this episode of MSers React Dave, Roxy, Katt and Heather respond to posts on Shift.ms about loneliness. Have you experienced loneliness because of your MS? If so you’re not alone! If you have an experience to share, or a way that you’ve learnt to adapt then please share your story in the comment...

I’m newly diagnosed with RRMS so still don’t know what’s ‘normal’. I know everyone’s different but I’ve been experiencing tingling /internal tremors on and off. Normally when I wake up, I feel totally fine but as the day progresses I’m more aware of my legs buzzing - this becomes even more obvious ...

My first relapse experience was a month of dizziness that included speech being slurred, cognitive impairment (brain fog), and muscle weakness on my left side. Anyone else have similar symptoms or experiences?

My first relapse experience was a month of dizziness that included speech being slurred, cognitive impairment (confusion), and muscle weakness on my left side. Anyone else have similar symptoms or experiences?

Hello, I was wondering if anyone has any experience of getting critical illness or life insurance post-diagnosis. I am currently the "bread winner" in our household but more generally am interested in protecting myself financially if I am no longer able to work due to progression or severe relapses ...

I have RRMS, I am 34 and was diagnosed in 2011. I am a single mother of 4 children and I work full time. Although I am so grateful I can still do these things, I certainly struggle mainly with back/leg pain, memory and fatigue.

Hey guys. Had a really good chat with my MS nurse a few weeks ago... She was just brilliant, listened to everything I needed to tell her and gave me several referrals (did you know that neuro physio is a thing!!??). During that call however, I realised I'm really not doing as well mentally as I tho...

Has anyone experienced pressure to your head that is always there? I’m also not on medication and need to know what medications that you had good experience with. Thanks 🧡

In his 2nd Animated Symptoms video Dean "King of disco" Reilly, tells us how leg spasms can catch you off guard... Muscle spasms or stiffness affect at least 20% of people with multiple sclerosis. How do you manage sensory issues as a result of your MS? Have they ever been as funny as when they st...

Hiya, I was diagnosed in 2003 and have been on Copaxone and now on Gilenya but neurologist wants me to switch to Aubagio. He seemd fine with me on Gilenya for almost 6 years until I got shingles on the left side of my face and now he feels I need to change medication to Aubagio. I've bee kinda sca...

Hi, I need to go on MS medication and would like hear from anyone (both positive AND negative) experience from patients who are on or who has been on Ocrevus, Mavenclad & Kesimpta. My Neurologist recommends Mavenclad but here in the US it has a black box warning and that concerns me. Any informatio...

Hi friends I was diagnosed with RRMS in November of 2021 I think (these past few years have mushed my sense of time). I had all the things, you guys know what I mean. Anyway, since then I have had two sets of MRIs. Since my first set last year (March 2022) my MS has remained active. I had several...

Hi my MS has progressed & my neuro is changing me from Tecfidera to Gilenya. I was just wondering if many of u are or have taken it in the past. What did u think of it?

I haven’t started treatment yet as I’m recently diagnosed with MS, but my consultant has offered me the option of going on a trial of aHSCT. Has anyone else had stem cell transplantation, and would be willing to share their experience with me? I know that it’s a massive decision to make because ...

Been following OMS diet for a long time and decided to try Wahls Protocol, since keto makes sense to me. But having been vego for 30 years I just couldn’t tolerate the meat. Or all that coconut milk, actually! 😆does anyone have any experience with a modified keto diet? I can cope with eggs and fish...

Hi guys, hope you’re all okay. 🙏😊 I received a letter referring me for a ultrasound on my Thyroid a couple of months ago. There was no reason as to why I had to have one. Just the actual appointment on the letter. After trying to chase it up, I was told by one of the MS nurses that the referral w...

Does anybody have experience of Intermittent Self Catheterization? I would like to know how you get on with it.

Many of you may recall some of my posts — where I live in the USA even with a *stat* referral from my PCP would have taken seven months to see a neurologist. Mayo Clinic took my appt request and scheduled me to be there 9 days after they called me! I had never been. I stayed at the Kahler Grand w...

Wanted someone to talk to who has been through Ill Health retirement preferably with NHS Contract. I really want some help thinking this through and working out what to do, I am really struggling at work and don’t feel capable of doing it, I feel constantly guilty and like I am letting my team do...