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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Found 3776 results

@Melcake

Melcake

Experiences of Ponesimod

Hi All, I am new to the group and have recently been prescribed ponesimod. It hasn’t arrived yet but wondering what people’s experiences were? Thanks 😊

@shiftms-films

EditedLast reply

shiftms-films

Have you experienced loneliness because of your MS?

In this episode of MSers React Dave, Roxy, Katt and Heather respond to posts on Shift.ms about loneliness. Have you experienced loneliness because of your MS? If so you’re not alone! If you have an experience to share, or a way that you’ve learnt to adapt then please share your story in the comment...
  • Healthy living
  • Diet
  • Exercise
  • Research
  • Relapses
  • Mind and body
  • Symptoms
  • Newly diagnosed
  • Diagnosis
23

@Kfis

Last reply

Kfis

Does anyone experience this?

I’m newly diagnosed with RRMS so still don’t know what’s ‘normal’. I know everyone’s different but I’ve been experiencing tingling /internal tremors on and off. Normally when I wake up, I feel totally fine but as the day progresses I’m more aware of my legs buzzing - this becomes even more obvious ...
  • Diagnosis
  • Relapsing remitting
  • Newly diagnosed
  • Exercise
  • Healthy living
  • Symptoms
  • Spasticity
12

@gtateach

Edited

gtateach

First Relapse Experience

My first relapse experience was a month of dizziness that included speech being slurred, cognitive impairment (brain fog), and muscle weakness on my left side. Anyone else have similar symptoms or experiences?
  • Symptoms
  • Relapses
  • Brain fog
  • Dizziness

@gtateach

gtateach

First Relapse Experience

My first relapse experience was a month of dizziness that included speech being slurred, cognitive impairment (confusion), and muscle weakness on my left side. Anyone else have similar symptoms or experiences?
  • Symptoms
  • Relapses
  • Dizziness

@Bumblebee

EditedLast reply

Bumblebee

Experience with life/critical illness insurance?

Hello, I was wondering if anyone has any experience of getting critical illness or life insurance post-diagnosis. I am currently the "bread winner" in our household but more generally am interested in protecting myself financially if I am no longer able to work due to progression or severe relapses ...
London, United Kingdom
  • Work and play
  • Diagnosis
  • Work and Study
  • Newly diagnosed
  • Symptoms
  • Travel
  • Treatment
  • Relapses
6

@MegHR

Last reply

MegHR

What are some Symptoms you experience with RRMS and how do you help it

I have RRMS, I am 34 and was diagnosed in 2011. I am a single mother of 4 children and I work full time. Although I am so grateful I can still do these things, I certainly struggle mainly with back/leg pain, memory and fatigue.
  • Symptoms
  • Diagnosis
  • Relapsing remitting
  • Work and play
  • Newly diagnosed
  • Pain
  • Fatigue
  • Family and children
  • Brain fog
  • Work and Study
4

@SamanthaF

Last reply

SamanthaF

Duloxotine experience

Hey guys. Had a really good chat with my MS nurse a few weeks ago... She was just brilliant, listened to everything I needed to tell her and gave me several referrals (did you know that neuro physio is a thing!!??). During that call however, I realised I'm really not doing as well mentally as I tho...
  • Work and play
  • Mental health
  • Symptoms
  • Healthy living
  • Exercise
  • Fatigue
  • Work and Study
  • Diagnosis
  • Disclosure
  • Treatment
11

@Kyley090

EditedLast reply

Kyley090

Has anyone experience this? Medications?

Has anyone experienced pressure to your head that is always there? I’m also not on medication and need to know what medications that you had good experience with. Thanks 🧡
  • Symptoms
  • Diagnosis
4

@shiftms-films

Last reply

shiftms-films

Does Anybody Experience Spasms With MS? | Animated Symptoms series

In his 2nd Animated Symptoms video Dean "King of disco" Reilly, tells us how leg spasms can catch you off guard... Muscle spasms or stiffness affect at least 20% of people with multiple sclerosis. How do you manage sensory issues as a result of your MS? Have they ever been as funny as when they st...
  • Spasticity
  • Symptoms
  • Numbness
  • Limbo land
  • Work and play
4

@KgaleA

EditedLast reply

KgaleA

Anyone have experience with Aubagio?

Hiya, I was diagnosed in 2003 and have been on Copaxone and now on Gilenya but neurologist wants me to switch to Aubagio. He seemd fine with me on Gilenya for almost 6 years until I got shingles on the left side of my face and now he feels I need to change medication to Aubagio. I've bee kinda sca...
  • Treatment
  • Gilenya
  • Aubagio
  • Diagnosis
  • Newly diagnosed
  • Copaxone
  • Symptoms
  • Disclosure
  • Mental health
8

@Maggierose

Maggierose

I am looking for personal experiences regarding MS meds

Hi, I need to go on MS medication and would like hear from anyone (both positive AND negative) experience from patients who are on or who has been on Ocrevus, Mavenclad & Kesimpta. My Neurologist recommends Mavenclad but here in the US it has a black box warning and that concerns me. Any informatio...
  • Treatment
  • Mavenclad
  • Ocrevus
  • Work and play
  • Diagnosis
  • Relapsing remitting
  • Which DMT
  • Positives of MS

@Kristin

Last reply

Kristin

Active ms, your experience?

Hi friends I was diagnosed with RRMS in November of 2021 I think (these past few years have mushed my sense of time). I had all the things, you guys know what I mean. Anyway, since then I have had two sets of MRIs. Since my first set last year (March 2022) my MS has remained active. I had several...
  • Diagnosis
  • Relapsing remitting
  • Symptoms
  • MRI
  • Newly diagnosed
  • Treatment
  • Brain fog
  • Disclosure
  • Blurred vision
  • Bladder and bowel
2

@Hd78

Last reply

Hd78

Gilenya experiences?

Hi my MS has progressed & my neuro is changing me from Tecfidera to Gilenya. I was just wondering if many of u are or have taken it in the past. What did u think of it?
  • Treatment
  • Gilenya
  • Tecfidera
  • Diagnosis
13

@ChiMum

EditedLast reply

ChiMum

HSCT Experiences

I haven’t started treatment yet as I’m recently diagnosed with MS, but my consultant has offered me the option of going on a trial of aHSCT. Has anyone else had stem cell transplantation, and would be willing to share their experience with me? I know that it’s a massive decision to make because ...
Sheffield, UK
  • Work and play
  • Treatment
  • Which DMT
  • Symptoms
  • Exercise
  • Family and children
  • Healthy living
  • Work and Study
  • Relapses
  • Diagnosis
4

@Jojo007

Jojo007

What’s your experience with diet?

Been following OMS diet for a long time and decided to try Wahls Protocol, since keto makes sense to me. But having been vego for 30 years I just couldn’t tolerate the meat. Or all that coconut milk, actually! 😆does anyone have any experience with a modified keto diet? I can cope with eggs and fish...
Sydney, Australia
  • Diet
  • Healthy living
  • Symptoms
  • Work and play
Deleted

@Warriorforever

EditedLast reply

Warriorforever

Has anyone experienced this??

Hi guys, hope you’re all okay. 🙏😊 I received a letter referring me for a ultrasound on my Thyroid a couple of months ago. There was no reason as to why I had to have one. Just the actual appointment on the letter. After trying to chase it up, I was told by one of the MS nurses that the referral w...
  • Disclosure
  • Diagnosis
  • Treatment
  • Symptoms
7

@AmeliaLily

Last reply

AmeliaLily

Does anybody have experience of intermittent self catheterization?

Does anybody have experience of Intermittent Self Catheterization? I would like to know how you get on with it.
  • Symptoms
  • Diagnosis
5

@ellamom

ellamom

Mayo Clinic visit experience

Many of you may recall some of my posts — where I live in the USA even with a *stat* referral from my PCP would have taken seven months to see a neurologist. Mayo Clinic took my appt request and scheduled me to be there 9 days after they called me! I had never been. I stayed at the Kahler Grand w...
  • Symptoms
  • Pain
  • Healthy living
  • Mental health
  • Work and play
  • MRI
  • Spasticity
  • Diagnosis
  • Vitamins and supplements
  • Travel

@Kitty369

Last reply

Kitty369

NHS Ill health retirement experiences

Wanted someone to talk to who has been through Ill Health retirement preferably with NHS Contract. I really want some help thinking this through and working out what to do, I am really struggling at work and don’t feel capable of doing it, I feel constantly guilty and like I am letting my team do...
  • Mental health
  • Symptoms
  • Work and Study
  • Work and play
  • Money
21
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