#experience - Shift.ms

@Han1

Experience

The experience is good.

Manila, Philippines

@kellihr

Last reply

I had a spinal tap yesterday and besides feeling like I was beat with a sledgehammer on my back my head has never hurt this bad in my life. Did anyone else experience this? My dr did just to confirm her diagnosis.

First posted on the Shift.ms app

26

@jpaige1975

Hi Everyone 👋🏾 if anyone has experienced slight fevers and fell down always remember "lift assist" when calling 911. They then know to send the correct paramedics that it's not a life/death situation after answering their questions regarding bleeding, being unconscious, etc.. over the last 7-8 years this has happened to me and a high temperature is only 99-100 so not extremely high but it still took a toll on me. That's why I now have 2 sets of canes and walkers. And definitely do not have a friend, family member, etc to try to catch you while falling because dead weight is almost impossible to prevent and they can hurt themselves while trying to help

Lincoln, United States

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@cobou

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This upcoming Monday I have my 2nd Ocrevus infusion and I'm worried about the immediate and longterm side effects of this; wondering if I should even get this second infusion. If you are on this drug, What are your experiences? Have you experienced severe side effects since this is a very strong a...

Ottawa, United States

First posted on the Shift.ms app

8

@Chelle16

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Has anyone experienced any severe effects of Briumvi?

I am switching from Kesimpta to Briumvi this week and feel a little overwhelmed. Previously I was on ocrevus but got off it due to the risk of breast cancer and stomach issues (colitis). I want to know if anyone experienced abdominal pain after the first month of loading doses? Or did you have crap ...

13

@SugaBug1971

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Ever since I've been diagnosed with MS my stomach gets upset at times and bloated does anyone else experience this

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1

@alexxndria

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DISABILITY BENEFITS EXPERIENCE

I’m in the process of applying for disability benefits. What was your experience like? How long did it take for approval? What was the set back that caused your denial? What tips do you have? I am currently in phase 3 of 5. They sent me an “Activities of Daily Living Questionnaire”

First posted on the Shift.ms app

19

@csmith225

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MS affects me cognitive wise. My immediate family thinks I’m ignoring a conversation because sometimes I may forget something they said and sometimes I remember. Is there other Masers that experience cognitive issues? And if so, how do you explain the problem to family.

First posted on the Shift.ms app

12

@Haych

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Neuro-physio experience - help manage foot drop

Hi, has anyone had experience with a neuro-physio or exercises to help with foot drop? If you have any advice or had experience with it, DM me pls. Thanks in advance

London, United Kingdom

First posted on the Shift.ms app

19

@Angelbearak

Last reply

Hello everyone I was diagnosed in 2011 but never followed until I had a neurologist for the last year while they did pain management they didn’t do anything else so I am seeing a new neurologist this month. I have been in ER 3/4 times I am in extreme amounts of pain primarily my neck and left shoulder, shoulder blade, left hip and leg I keep asking is this MS or something else the ER and even my primary are not answering. Has anyone else experienced anything like this or am I a freak of nature?

First posted on the Shift.ms app

9

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