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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@Em75 

Last reply

Em75

Tysabri - thoughts/ views/ experiences

Thoughts/ experiences from those who have taken Tysabri ? I am newly diagnosed rrms and have had blood results for jcv showing negative. I was offered Tysabri, ocrevus and kesimpta and and meeting ms nurse next week to talk through my decision.Ive read everything! I'm a bit apprehensive about Tysabr...
  • Treatment
  • Tysabri
  • Diagnosis
  • Newly diagnosed
  • Which DMT
  • Relapsing remitting
  • Ocrevus
  • Lemtrada
45

@shiftms-films 

EditedLast reply

shiftms-films

Have you experienced loneliness because of your MS?

In this episode of MSers React Dave, Roxy, Katt and Heather respond to posts on Shift.ms about loneliness. Have you experienced loneliness because of your MS? If so you’re not alone! If you have an experience to share, or a way that you’ve learnt to adapt then please share your story in the comment...
  • Healthy living
  • Diet
  • Exercise
  • Research
  • Relapses
  • Mind and body
  • Symptoms
  • Newly diagnosed
  • Diagnosis
34

@Russellms 

Last reply

Russellms

Has anyone experienced one leg getting weaker the more they wal

Seems like I start out ok but as I walk it gets worse and I can’t walk anymore using my left leg it’s so weak till I sit a while
Lenoir, United States
  • Exercise
  • Healthy living
  • Symptoms
6

@gpeps 

Last reply

gpeps

What's your experience of MS services?

Apologies, this is a UK-focused post, but all perspectives welcome. There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS cent...
  • Accessibility
  • Work and play
  • Which DMT
  • Symptoms
  • Treatment
32

@vixbaynham 

vixbaynham

Experiences with Mavanclad

Hi! I'm due to begin a course of Mavanclad in the next few weeks and I'm really on the fence about taking it after reading about the possible side affects and how it affects your immune system. I work full time and simply can't afford to be off work as I am a single mother of 2 children and would ge...
  • Work and play
  • Symptoms
  • Relapses
  • Fatigue
  • Family and children
  • Money
  • Work and Study
  • Diagnosis
  • Tecfidera
  • Treatment

@Alisha 

EditedLast reply

Alisha

Spet 6 a continuation of the weekly experiences :/

Today I woke up feeling fatigued. The dizzyness was present... Followed by spotty vision (again). Called my MS nurse and left a voice mail. Half an hour later I was puking. Then I slept for several hours. My fiance made me pho from a MS cookbook that I was gifted. All is fine and dandy when I remain...
  • Symptoms
  • Newly diagnosed
  • Relapses
  • Diagnosis
  • Blurred vision
  • Work and play
  • Relapsing remitting
  • Brain fog
5

@LoRobbo 

Last reply

LoRobbo

Anyone else experience the ms hug?

Mine sometimes feels like I have ‘a stitch’ or a ‘crampy feeling’ in between my ribs, sharp shooting pains or a ‘pressure’ feeling and tightness and when breathing, like I have a elastic band around my ribs and heavy feeling on chest. Anyone else? What kind of things do other experience with the ms ...
Southend-on-Sea, United Kingdom
  • Symptoms
  • Relapses
  • Pain
8

@keasy 

Last reply

keasy

Lhermitte's: First Experience ?

I think I just had my first experience of Lhermitte's Sign albeit nocturnal. I woke around 2am and my arms, legs back and my head were tingling and fuzzy. Really strange. I'm think maybe my pillow position has caused it. I have been trying to move my head and chin into different positions today to ...
Scotland, UK
  • Symptoms
  • Numbness
  • Spasticity
  • Blurred vision
  • Treatment
1

@Maramoll 

Last reply

Maramoll

My experience with Rituximab

Hi everyone, I have been posting here a lot lately. It's been a whirlwind of a month and my optic neuritis lead to a diagnosis of MS. I had my first infusion yesterday of Rituximab; I was so anxious at first but it went so smoothly - I wanted to share this with anyone who is about to do the same and...
Al Muharraq, Bahrain
  • Symptoms
  • Treatment
  • Blurred vision
  • Mental health
  • Steroids
  • Diagnosis
1

@spunky 

spunky

Mavenclad Experiences

Hi What is everyone’s experience with Mavenclad? Any side effects? Did you still relapse/accumulate lesions afterwards?
Oakville, Canada
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