#experience - Shift.ms

@Han1

Experience

The experience is good.

Manila, Philippines

@Boomer

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Does anyone have experience with the accelera proprio for addressing dropfoot and balance

First posted on the Shift.ms app

1

@malek

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Hi everyone. My JCV antibody index was 0.48, but the test was done last summer, about a year ago. I didn’t start Tysabri then and was on Avonex for about 8 months. Now I’m switching to Tysabri after a new MRI.Did anyone have to repeat their JCV test before their first Tysabri infusion if the previous result was around a year old? Or did your neurologist use the older result and repeat it later?I’m wondering whether I should ask to repeat the JCV test before starting Tysabri. I’d love to hear about your experiences.

First posted on the Shift.ms app

5

@StuartBaker

I have a neurogenic bladder so experience urgency + frequency of urin

This is my worst MS Symptom. I have tried Intermittent Self Catheterisation. For me this did not work. A few minutes after emptying my bladder with catheter I need to pass urine again. In the end I was admitted to Resus with Urosepsis. So stopped ISC. Have rescue dose of antibiotics when I get UTI. ...

@MSWARRIOR21

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Do you guys experience this often

One thing about it is when that fstigue hits it feels like a truck fell on you then ontop of that feels like pins and needles in your body it is crazy how MS workd

First posted on the Shift.ms app

2

@7997emily

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Has anyone gained experience with lions mane as a tincture? For cognitive help and energy? I enjoy the mushroom coffee but it’s so expensive, just saw this alternative and wondered if there was any real experience. I don’t trust marketing lol

First posted on the Shift.ms app

2

@Shadwell

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Overdid it last week and had an elevated heart issue but also had my ocrevus infusion, since I am rubbish, shaking and cannot walk far, my existing symptoms are elevated, has anyone else experienced this

Swansea, United Kingdom

First posted on the Shift.ms app

4

@JeanneH66

EditedLast reply

Hi, I'm fairly new to the community. I was diagnosed with MS in 2001. I've tried several "old school" treatments such as Copaxone, Betaseron and Rebif. I went off all meds around 2015 because I got tired of feeling the flu like symptoms. I suffered a pretty bad exacerbation in 2016 where I was hospitalized for 7 days while I completed steroid infusions. My MRI at that time showed new scars, one of which was on my cervical spine. The steroids did me well for several years. I didn't have any new symptoms until 2023. I've had several MRI's since, all of which show no new scars. My neurologist has refused to treat me with steroids because I don't have new scars. I told him I was open to infusion therapy and we decided on Rituximab. I will be starting my first infusion on Monday, July 20th. Does anyone have experience with this particular medication? If so, has it improved your symptoms and what can I expect as far as any side effects? Thank you in advance for any feedback.😊

First posted on the Shift.ms app

7

@MSMomStephanie

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Ok question lately I am experiencing stiff legs I ride my stationary bike everyday does anyone experienced the same and what happens?

First posted on the Shift.ms app

6

@mstcraig

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Travel insurance experiences and recommendations

Hi Has anyone in the UK had any 'interesting' experiences with travel insurance? I called my insurance provider yesterday to inform them of my MS diagnosis. After a lot of questions and being put on hold twice while they spoke to their supervisor, all seemed to be ok, and the existing policy was a...

2

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