Shift.ms

@Johnwayne

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Does anyone with MS have electrical shock like Sensations going up their spine into their brain....double vision when tilting head ?

First posted on the Shift.ms app

22

@runak

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After taking my almost 2 years old from his crib, my shoulder and back got crazy stabbing pain, I feel like hot pain, and I could not move at all. Not even breathing. I am not sure is this happen because I carry him in a wrong way to it is MS. I got diagnosed in 2013 after I had double vision. Since then I didn’t took any medication. I had another attack on 2018 but I had no symptoms. I am so afraid of this new MS attack. I have little toddlers I have to take care of them :(. How is MS pain?

Alexandria, United States

First posted on the Shift.ms app

1

@jeffco

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A little about my story

I'm finally typing this out. I apologize for the length. I just signed up for this Ap, and want to vent about life a little bit. I got diagnosed with RRMS in 2022. Although like I'm sure most of you, I was struggling with mysterious symptoms for years leading up to it. My left hand went numb, li...

First posted on the Shift.ms app

8

@irmarisdavila

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My eyesight

I been having problems w my eyes like a.month ago I have been.in the er for ms flare up ..my eyes become blurry and double vision I just went to the ophthalmologist and see and they are.giving me.new prescription for me eyes hopefully that workd

First posted on the Shift.ms app

5

@shiftmsmk

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Optic Neuritis

I’d love to hear people’s stories with optic neuritis. Like when did it start? Do you experience it with Uthoffs? How long? One of the major first symptoms I had was double vision. I got it after getting COVID. The double vision went away but I still experience brightness, especially when hot. If ...

First posted on the Shift.ms app

19

@JackDaniel

EditedLast reply

Both eyes effected?

Hi all, I’m just asking this as I don’t know of anyone else who this happened too. But I lost my vision in BOTH eyes in April 2023. I know many people only have it effect 1 eye, I had major double vision and then just blury. I may aswell have been blind. Just curious. It lasted about 9 weeks before...

First posted on the Shift.ms app

10

@prettysunsetsky

EditedLast reply

Hi, my name is Grace I am 19yrs old, Born and Raised in Philly. I never really knew much about MS though I do have 2 family members who have it. I have been experiencing numbness, tingling, sciatica, fatigue, double vision, itching and tingling sensation in my skin, tremors, weakness in my arms and legs, balance issues, etc… I went to see my Primary and she said it could be MS, though I do have some other things going on. She ordered a MRI for me but they didn’t really find anything. I went to see a Neurologist and he looked over my scans and suggested I get a another MRI just to be sure and this time lthey are looking at the whole spine. I sometimes I feel like I may not be taken seriously because of my age. But hopefully I can figure out what’s going on with me because this whole process has been tiring and frustrating. But the MRI is at the end of the month so I guess we’ll see.

First posted on the Shift.ms app

12

@Domingo

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Hello dear friends,

Hello my fellow combatants, how are you doing? Are you okay? I am, despite MS Relapses such , insomnia, Headache,,, numbness of hands and feet, double vision... God bless you.

Rwamagana, Rwanda

4

@iviPoole

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Hi I'm new to Shift so excuse the babbling I'm 53 and was diagnosed in 1995 was trying as you all are i had two episodes of double vision in 2003 & 04 and was offered Avonex i had to finished work in 2005 and have muddling through with various new things it wasn't going Tooo bad but was told 2022ish it's now Secondary. I honestly felt worse than when first diagnosed... I knew things are bleak but even though it nearly 30 years it's a whole new mountain. Apart from things not working right and luckily not having to go to work but I really don't know where the time goes ???? I've never been a get going kind of person (my partner has always said it's my Malabu thing) but time just seems to wiz by before I've got going. I'm supposed to do physio and day to day things but the time just goes 🙃 thanks x

First posted on the Shift.ms app

3

@ruari

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Newly diagnosed

Hi there This is my first post. Great to see this available as support. I had a double vision attack shortly after my partner who at 33 weeks pregnant lost her job overnight as her company went into administration, missing out on a years paid maternity leave. It was a stressful time getting the ...

First posted on the Shift.ms app

12

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