#doublevision - Shift.ms

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

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Hi everyone, I have so many questions. My name is Karen. I had a TIA on September 2nd after that things started happening fast. I'm 62 yrs old and now my Dr says I have MS due to symptoms and family history. My systoms are pain from my ankles to my lower back, my legs feel like cold water is running down them and pain. My left hand shakes and my legs tremble when I try to stand up and walk. My stomach gets sharp pains, and my vision is blurry with double vision.My next step is to a neurologist but I don't know what they do there. I had the MRI and it said finding showed age or MS. I'm so confused with everything that's going on with my body. Can you all help me? Are my symptoms consistent with MS?

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Between double vision and leg spasms I'm so over it..

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Between double vision and leg spasms I'm so over it..

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Anyone else have serious issue with eye twitching, crossing and double vision?

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Double vision has anyone else had this? And did it clear up?! I seem to have had alot of eye issues this year. Sooo fed up with it. I'm seeing the nurse on Tuesday I just like oh another thing 😅

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I was diagnosed june 2025 but started noticing symptoms in January and didnt know anything about MS. I started off with vertigo,double vision falling down,headaches,numbness on left side of my face,eye peralysis,dizziness, very weak, shock feelings throughout my legs, high blood pressure, trouble swallowing food, couldnt be in the sun, trouble breathing, mood changes and anxiety. I workout every day though its hard take MS meds plus more and all i can say is no one knows what this is till you have it. I cant do things i used to do and hurts me every day also with a baby girl otw i know i have to stay strong as a MS WARRIOR 🙏

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Has anyone having problems with their eyesight? As for me I'm seeing double vision plus I have issues seeing long distance when driving, I can't see the white letters on green sign until I'm right on top of exit. Doctor says I'll lose my eyesight in a couple of years.

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@prettysunsetsky

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Hi, my name is Grace I am 19yrs old, Born and Raised in Philly. I never really knew much about MS though I do have 2 family members who have it. I have been experiencing numbness, tingling, sciatica, fatigue, double vision, itching and tingling sensation in my skin, tremors, weakness in my arms and legs, balance issues, etc… I went to see my Primary and she said it could be MS, though I do have some other things going on. She ordered a MRI for me but they didn’t really find anything. I went to see a Neurologist and he looked over my scans and suggested I get a another MRI just to be sure and this time lthey are looking at the whole spine. I sometimes I feel like I may not be taken seriously because of my age. But hopefully I can figure out what’s going on with me because this whole process has been tiring and frustrating. But the MRI is at the end of the month so I guess we’ll see.

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Does anyone with MS have electrical shock like Sensations going up their spine into their brain....double vision when tilting head ?

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