@Hi, my name is Grace I am 19yrs old, Born and Raised in Philly. I never really knew much about MS though I do have 2 family members who have it. I have been experiencing numbness, tingling, sciatica, fatigue, double vision, itching and tingling sensation in my skin, tremors, weakness in my arms and legs, balance issues, etc… I went to see my Primary and she said it could be MS, though I do have some other things going on. She ordered a MRI for me but they didn’t really find anything. I went to see a Neurologist and he looked over my scans and suggested I get a another MRI just to be sure and this time lthey are looking at the whole spine. I sometimes I feel like I may not be taken seriously because of my age. But hopefully I can figure out what’s going on with me because this whole process has been tiring and frustrating. But the MRI is at the end of the month so I guess we’ll see. on Shift.ms

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Hi, my name is Grace I am 19yrs old, Born and Raised in Philly. I never really knew much about MS though I do have 2 family members who have it. I have been experiencing numbness, tingling, sciatica, fatigue, double vision, itching and tingling sensation in my skin, tremors, weakness in my arms and legs, balance issues, etc… I went to see my Primary and she said it could be MS, though I do have some other things going on. She ordered a MRI for me but they didn’t really find anything. I went to see a Neurologist and he looked over my scans and suggested I get a another MRI just to be sure and this time lthey are looking at the whole spine. I sometimes I feel like I may not be taken seriously because of my age. But hopefully I can figure out what’s going on with me because this whole process has been tiring and frustrating. But the MRI is at the end of the month so I guess we’ll see.

First posted on the Shift.ms app

When I was diagnosed, I had no lesions on MRI. I was finally diagnosed after having a lumbar puncture done. It can be frustrating knowing too much and not enough at the same time. Always remember to be your own best advocate and if at all possible, continue to push for a diagnosis. It took me over 3 years to be diagnosed It sounds bizarre, but when I actually received the MS diagnosis, I was actually relieved and not frightened. Good luck, Grace!

7 Mar 2025 19:34

3

I'm so sorry your going through this.i would ask for a spinal tap.i had one and I hugged rhe doc for not hurting me when I was done. It's not as painful as some people say and I got right up minutes later .I was told in order to get a true diagnoses this had to be done unless things have changed .there findingvout that it can be hereditary and you are not too youbg.my neuro told me babies as young as 2 are being diagnosed .good luck to you,you've got this

7 Mar 2025 20:51